PiPER Community of Practice for 2026
Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Healthcare
Events
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Canada’s Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
Join CDA's preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. You will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
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Defeat Duchenne Canada-Research Grant Announcement 2026
Mark your calendar for Thursday, January 29, 2026, from 6:00–7:30 p.m. ET, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their community and the promise of the future.
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Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life – Clinical Trials 101 What Every Patient Should Know Before Enrolling
Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling.
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RQMO: 1st Zebra of the Month of Zebrier 2026
1st Zebra of the Month of Zebrier 2026 of the RQMO Speakers: - Dr. Roberta, La Piana, Assistant Professor, Department of Neurology and Neurosurgery, McGill University - Dr. Thomas Durcan, Associate Professor, Department of Neurology and Neurosurgery, McGill University
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RealiseD Webinar 3: Single arm, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
Single-arm trials remain a cornerstone of rare disease research, but their limitations and complexities cannot be ignored. In the third webinar, experts Yulia Dyachkova (Merck Healthcare), Jenny Devenport (Roche), Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and […]
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D2R-Webinar | Anti-Black Racism in Health Research
In honour of Black History Month, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada, trace the evolution of anti-Black racism within Canadian health research, and highlight practices and strategies to address and counter these challenges.
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RQMO: 2nd Zebinary of the Month of Zebra 2026
Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon
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OSSU World Café Conversations Series:”Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”
OSSU World Café Conversations series with Maureen Smith🇨🇦, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): "Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
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RQMO: 3rd Zebinary of the Month of Zebrier 2026
3rd Zebinary of the Month of Zebrier 2026 Speaker: - David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France
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8th TREAT-NMD® International Conference – Lisbon, 2026
Join TREAT-NMD at this vital, in-person gathering where patients, clinicians, researchers, industry, and regulators come together to tackle the biggest challenges in neuromuscular treatment development, diagnosis and care. Topics will include; disrupted clinical trial delivery, regulatory uncertainty, global access inequalities and shrinking public funding, they’ll tackle these themes with a holistic, solutions-driven approach and a […]
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RealiseD Webinar 4: Enhancing patient-centricity in Rare Disease Clinical Trials
The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev Sengupta, Senior Trial Design Lead at One2Treat, will present an approach that embeds patient voices into every stage of trial design and analysis. By using […]
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