Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut, Assistant Professor and regular researcher at the CHUM Research Centre, Université de Montréal Moderator: Jonathan Pratt, […]
2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
This second edition will convene a wide range of international experts, including researchers, clinicians, patient advocates, industry representatives, policymakers, and funders to strengthen the collaborative ecosystem that underpins clinical research […]
Rare Disease Day 2025 University of Alberta
From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
The impact of rare conditions on self-identity
Living with a rare condition can significantly impact a person’s identity, as they may struggle to separate who they are from their condition. This internal conflict is often intensified during […]
Genetic Rare Immune Disorders Symposium (GRIDS)
GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
CRDN Townhall – An Update on the Co-Development of our Strategic Plan
Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders, experts, and the rare disease community as […]