2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases

This second edition will convene a wide range of international experts, including researchers, clinicians, patient advocates, industry representatives, policymakers, and funders to strengthen the collaborative ecosystem that underpins clinical research […]
CAGC & CCMG Joint Conference

The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise, all sharing a common interest in education and […]
MDA Clinical and Scientific Conference
FSHD Clinical Updates

Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on FSHD clinical updates. This webinar is for Canadian clinicians, […]
Pediatric Inclusion Roundtable – Effective Inclusion of Children Early in Clinical Trials

Join Leavitt Partners, LLC, and Friedreich’s Ataxia Research Alliance (FARA) for the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials. The program will engage all stakeholders regarding […]
ALS Clinical Trials Unboxed

On Thursday, July 4, at 1 p.m. ET, join ALS Canada for our next ALS Clinical Trials Unboxed webinar to learn more about ongoing ALS clinical trials. In this webinar, Dr. […]
4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome

The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan, Italy and offers access to the latest research and analysis related to this […]
End-user Training for the EJP RD Virtual Platform

EJP RD – European Joint Programme on Rare Diseases – End-user Training for the EJP RD Virtual Platform This training is intended for potential users of the Virtual Platform (VP) that is […]
North America Rare Diseases Summit 2024

This event brings together leading researchers, healthcare professionals, patient advocates, policymakers, industry experts, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing […]