Publications

This page highlights evidence-informed insights, thought leadership, and strategic outputs that reflect our mission to improve diagnosis, treatment, and holistic care across Canada.

Connecting Canada for rare disease care and research. Bernier, F.P., Boycott, K.M., Ward, L.M., Stedman, I., Wong-Rieger, D., Espenhahn, S., Open Access Government (2025)

  • This article outlines the need for a coordinated rare disease ecosystem in Canada and highlights how the Canadian Rare Disease Network (CRDN) is helping to connect care, research, and lived experience across the country. It describes key challenges in diagnosis, access to care, and national coordination, and presents CRDN’s strategic approach to uniting stakeholders around shared goals for innovation, equity, and integrated systems.
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