Discover inspiring and informative stories of individuals living with rare diseases in Canada.
Daniel Kinchlea, a 10-year-old Canadian rare disease patient, embodies resilience and hope in the face of living with an undifferentiated autoinflammatory condition.
The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first cystic fibrosis modulator in Canada.
The courageous story of Sylvie Tress, navigating multiple painful conditions and the impact of late diagnosis on her health, while finding strength and purpose in advocacy.
The inspiring journey of Kathleen Degenhardt, navigating life with fibrodysplasia ossificans progressiva (FOP), and the transformative power of innovative treatments and community support in the face of a rare connective tissue disorder.
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