News related to rare disease, including patient stories, new programs and initiatives, and more.
Canada’s Drug Agency (CDA) has published a national inventory of rare disease registries (RDRs) that includes both registries in Canada and international registries with participants who live in Canada.
CRDN is hosting a virtual townhall on October 31 to provide an update on the co-development of its strategic plan.
Canada launches its first-ever national registry for systemic autoinflammatory diseases (SAID) through the CAN-SAID initiative.
Muscular Dystrophy Canada and partners deliver on new born screening goal outlined in Canada’s Rare Disease Strategy.
The Government of Canada announced $194 million to improve access to drugs for rare diseases in British Columbia, including funding for Poteligeo and Oxlumo, as part of the National Strategy for Drugs for Rare Diseases.
SickKids and CHEO join program aiming to offer pro bono genetic testing to undiagnosed children in under-resourced communities.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.
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