News related to rare disease, including patient stories, new programs and initiatives, and more.
University of Calgary researchers have developed a groundbreaking computer program that uses 3D facial imaging and machine learning to identify genetic diseases in children, helping children and their families receive faster diagnoses and more timely treatment plans.
CRDN, alongside MICYRN and RareKids-CAN, will support the newly launched European Rare Diseases Research Alliance (EDERA), ensuring that Canada’s rare disease landscape is aligned with international efforts.
CRDN participated in a two-day Alberta Rare Disease (RD) Design Framework workshop to develop recommendations to help guide the creation of a comprehensive care framework in Alberta.
CRDN participated in annual NMD4C investigator meeting to share insights and explore synergistic efforts in the innovative therapy space in Canada.
Researchers from McMaster University discover that the protein mutates in patients with Huntington’s Disease doesn’t repair DNA as intended.
The Canadian Institute for Health Information (CIHI) has published a new report that provides crucial insights and considerations for utilizing CIHI’s pan-Canadian data to improve decision-making on drugs for rare diseases.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.
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The launch of RDI’s Mapping Rare project shines a spotlight on Canada’s contributions to the global rare disease community.
February 29, 2024, marks a momentous day for the Canadian Rare Disease Network (CRDN) as we embark on our official launch, dedicating ourselves to advancing rare disease care, research, and innovation.
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