News related to rare disease, including patient stories, new programs and initiatives, and more.
Researchers from McMaster University discover that the protein mutates in patients with Huntington’s Disease doesn’t repair DNA as intended.
The Canadian Institute for Health Information (CIHI) has published a new report that provides crucial insights and considerations for utilizing CIHI’s pan-Canadian data to improve decision-making on drugs for rare diseases.
Canada’s Drug Agency (CDA) has published a national inventory of rare disease registries (RDRs) that includes both registries in Canada and international registries with participants who live in Canada.
CRDN is hosting a virtual townhall on October 31 to provide an update on the co-development of its strategic plan.
Canada launches its first-ever national registry for systemic autoinflammatory diseases (SAID) through the CAN-SAID initiative.
Muscular Dystrophy Canada and partners deliver on new born screening goal outlined in Canada’s Rare Disease Strategy.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.
Participate in CRDN’s Social Media Survey to share your valuable insights and help us create content that resonates with the rare disease community in Canada.
The launch of RDI’s Mapping Rare project shines a spotlight on Canada’s contributions to the global rare disease community.
February 29, 2024, marks a momentous day for the Canadian Rare Disease Network (CRDN) as we embark on our official launch, dedicating ourselves to advancing rare disease care, research, and innovation.
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