News related to rare disease, including patient stories, new programs and initiatives, and more.
The Honourable Mark Holland, Canada’s Minister of Health, and the Honourable John Main, Nunavut’s Minister of Health, announced a bilateral agreement investing over $7.3 million over three years to improve access to selected new drugs for rare diseases, and to support enhanced access to existing drugs, early diagnosis, and screening.
The Honourable Mark Holland, Canada’s Minister of Health, and the Honourable Lesa Semmler, Northwest Territories’ Minister of Health and Social Services, announced a bilateral agreement investing over $7.8 million to improve access to selected new drugs for rare diseases, and to support enhanced access to existing drugs, early diagnosis, and screening.
The Honourable Mark Holland, Canada’s Minister of Health and the Honourable Tracy-Anne McPhee, Yukon’s Minister of Health and Social Services, announced a bilateral agreement investing over $8.5 million over three years to improve access to selected new drugs for rare disease and to support enhanced access to existing drugs, early diagnosis and screening.
The Honourable Mark Holland, Canada’s Minister of Health and the Honourable Mark McLane, Minister of Health and Wellness for Prince Edward Island (PEI) announced a $40 million federal investment as part of two bilateral agreements to improve access to medications for Islanders.
CHEO’s groundbreaking ThinkRare algorithm is transforming rare disease diagnosis by flagging young patients who may benefit from genetic testing earlier.
The RDI-Lancet Commission on Rare Diseases has officially launched, co-chaired by CRDN’s own Dr. Kym Boycott, to develop evidence-based policy solutions that enhance healthcare for Persons Living with a Rare Disease (PLWRD) worldwide.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.
CRDN proudly supports the WHA Resolution on Rare Diseases, aligning with our mission to advance care, research, and health equity for Canada’s rare disease community through global collaboration.
CRDN invites the rare disease community to take part in a survey to share feedback on our draft strategic plan, helping us ensure it meets the needs of the entire community.
The Patient and Community Engagement Research (PaCER) program is launching its January 2025 cohort, focusing on how rare diseases impact families. This unique, fully sponsored opportunity invites parents from across Canada to collaborate and share their experiences.
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