Our Governance
Our governance structure is designed to ensure integrity, inclusivity, and effectiveness in steering the CRDN towards its mission of addressing the complex challenges of rare diseases within Canada. The CRDN is founded as a patient-centered network, where patient advocacy and community group participation are fully integrated in the network governance and activities.
Here’s an overview of our governance framework:
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For more information about the people involved in our various committees, councils, and working groups, please click here.