We strive to establish meaningful partnerships with a diverse range of patient organizations, whether they operate on a national level or focus on specific rare diseases. These organizations are essential in delivering critical services, information, and guidance to patients, caregivers, and their families. They also provide a vital support network, connecting individuals who share similar experiences.

Looking for personalized help or guidance? Contact the Canadian iRARE centre. This service offers free, bilingual, and confidential support provided by a professional. 

Looking for specific patient organizations? Visit the iRARE Patient Organization Directory, which offers a comprehensive list of groups dedicated to different rare diseases across Canada.