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Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

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This Month

Calendar of Events

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1 event,

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Exploring the Brain – Advocating for Your Child with Disabilities

1 event,

21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE

21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE

3 events,

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Canadian Scleroderma Research Group – Navigating Systemic Sclerosis Waters

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WHA Resolution on Rare Diseases Webinar

1 event,

0 events,

0 events,

0 events,

2 events,

Canada’s Drug Agency 2024 Symposium: From Disruption to Opportunity: Embracing Change in Health Care

Canada’s Drug Agency 2024 Symposium: From Disruption to Opportunity: Embracing Change in Health Care

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Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

2 events,

2 events,

1 event,

0 events,

1 event,

C-Path 2024 Global Impact Conference

C-Path 2024 Global Impact Conference

3 events,

PxP 2024 Conference (For Patients, By Patients)

PxP 2024 Conference (For Patients, By Patients)

4 events,

31st European Paediatric Rheumatology

31st European Paediatric Rheumatology

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Designing effectiveness-implementation hybrid trials in child health research

2 events,

1 event,

1 event,

0 events,

2 events,

Global Alliance for Genomics and Health – 12th Plenary

Global Alliance for Genomics and Health – 12th Plenary

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CANPKU+ 2024 ANNUAL GENERAL MEETING

2 events,

3 events,

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RITA Patient-Centered: Risk of Infection and Immunological Rare Diseases

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Rare Disease Day 2025 webinar: Enhancing Accessibility in Physical and Digital Spaces

3 events,

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IPNA Webinar: Chronic kidney disease care in low resource settings: Can we make it a smooth ride for children?

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Webinar – Clinical trials across the lifespan: Considerations for trials with pregnant people and children

2 events,

CHAEN / International Guideline Conference

CHAEN / International Guideline Conference

1 event,

1 event,

0 events,

1 event,

4 events,

Week in RARE: RARE Advocacy Summit and Health Equity Forum

Week in RARE: RARE Advocacy Summit and Health Equity Forum

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Webinar – Designing effectiveness-implementation hybrid trials in child health research

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Turner syndrome and fertility options

6 events,

North American Cystic Fibrosis Conference

North American Cystic Fibrosis Conference

2024 Global CMT Research Convention

2024 Global CMT Research Convention

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The important elements of the Medicine Wheel” with Dr. Terri-Lynn Fox

5 events,

Western Canadian Neuromuscular Conference (WCNMC)

Western Canadian Neuromuscular Conference (WCNMC)

5 events,

3 events,

4th International Symposium on Arthrogryposis

4th International Symposium on Arthrogryposis

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4th Regional Meeting on ITP – PDSA Canada

2 events,

Featured

National Day for Truth and Reconciliation
Featured

National Day for Truth and Reconciliation

1 event,

0 events,

0 events,

0 events,

0 events,

0 events,

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

HERE!

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