Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Webinars
Calendar of Events
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ERDERA Joint Transnational Call 2025 Extended Information Webinar
ERDERA Joint Transnational Call 2025 Extended Information Webinar
The European Rare Diseases Research Alliance (ERDERA) invites you to the Joint Transnational Call (JTC) 2025 Extended Information Webinar. Objectives of this webinar: The webinar scheduled for January 14th aims to provide educational and preparatory support to applicants at the pre-proposal stage, focusing on key elements that enhance the quality of their submissions. The objectives include: […]
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CIHI-Foundations of Patient Partnering Virtual Sessions
CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
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TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways, standards of care, and emerging therapies, while engaging with experts, patients, and peers to […]
ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
Learning Objectives: Review the ways in which patients can contribute as partners on your CHIR grant application Identify the challenges and barriers to patients in fulfilling grant application requirements and how researchers can support patient partners Describe the considerations specific to grant application requirements for researchers working with patient partners from groups who are frequently […]
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Webinar – Securing Funding for Clinical Trials
Webinar – Securing Funding for Clinical Trials
Webinar objectives: Identify various funding strategies for pediatric and perinatal clinical trials in Canada, including academic grants and industry partnerships. Develop realistic expectations regarding the timeline and effort required to fund clinical trials through shared examples. Understand different strategies when approaching industry and academic funders and identify key factors for successful proposals.
CIHI-Foundations of Patient Partnering Virtual Sessions
CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
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Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools, Healthcare, and Community
Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools, Healthcare, and Community
What do children with disabilities and their families need to thrive? A team of researchers, mothers, and children and youth with disabilities set out to answer this question by exploring their experiences during the COVID-19 pandemic and beyond. Their mission? To uncover what supports and services — spanning healthcare, education, and community life — families need now and in […]
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Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!