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Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Webinars
Events
Calendar of Events
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Join CDA's preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. You will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews. |
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Delivered by Prof. Kleopas Kleopa (Cyprus Institute of Neurology and Genetics (CING), Thu 29 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
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Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling. |
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1st Zebra of the Month of Zebrier 2026 of the RQMO Speakers: - Dr. Roberta, La Piana, Assistant Professor, Department of Neurology and Neurosurgery, McGill University - Dr. Thomas Durcan, Associate Professor, Department of Neurology and Neurosurgery, McGill University
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Single-arm trials remain a cornerstone of rare disease research, but their limitations and complexities cannot be ignored. In the third webinar, experts Yulia Dyachkova (Merck Healthcare), Jenny Devenport (Roche), Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and […] |
2 events,
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In honour of Black History Month, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada, trace the evolution of anti-Black racism within Canadian health research, and highlight practices and strategies to address and counter these challenges.
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Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care. |
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Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon |
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OSSU World Café Conversations series with Maureen Smith🇨🇦, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): "Find and Seek: Conversations on Matching Researchers and Lived Experience Partners" |
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3rd Zebinary of the Month of Zebrier 2026 Speaker: - David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France |
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Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇨🇦 and Beth Potter about how to evaluate engagement beyond process metrics, and what this means for future patient engagement practice and evaluation.
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The final webinar focuses on what truly matters: the patient. Rare disease trials often struggle to capture outcomes that reflect patient priorities but RealiseD is working to change that. Rudradev Sengupta, Senior Trial Design Lead at One2Treat, will present an approach that embeds patient voices into every stage of trial design and analysis. By using […] |
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Speaker: - Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval
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You will learn: ➡️ To minimize or even Eliminate Taxes on your estate. ➡️ How to Change your Estate Plans in this virtual environment. ➡️ To Avoid Double Taxation on your “Red” retirement accounts. ➡️ To Bypass paying upfront Capital Gains Taxes when selling your investments. ➡️ To convert assets into an Income You Can’t […] |
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Speakers: - Christine Yergeau, Msc, RARE Network Manager. QC - Lilit Antonyan, Research Pillars Coordinator at RARe.qc |
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Speaker: - Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais |
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Speakers: - Kim Auclair, consultant, speaker and blogger - Elsie Côté, Founder and President of Sirote-moi |
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Speaker: - François Bernier, entrepreneur, strategist, co-founder of Horizon b2b |
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Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!