people_banner_v1-1-scaled

Events

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE. 

Calendar of Events

M Mon

T Tue

W Wed

T Thu

F Fri

S Sat

S Sun

0 events,

1 event,

-

State of the art of clinical stage gene therapies for Leukodystrophies – EURO NMD

0 events,

2 events,

-

Questions, Answered: Genetic Counselling & Autoinflammatory Diseases

-

ALS Clinical Trials Unboxed

0 events,

0 events,

0 events,

0 events,

0 events,

1 event,

-

Webinar: Rare Barometer survey on the impact of rare diseases on everyday life

2 events,

-

CADTH: CDA-AMC Webinar – An Update on the Development of Newborn Screening Guidance in Canada 

0 events,

0 events,

0 events,

0 events,

2 events,

-

Pediatric Inclusion Roundtable – Effective Inclusion of Children Early in Clinical Trials

-

RARE Storytelling Webinar

2 events,

Sneak Peek into Rare Disease Day 2025

-

Racial and Ethnic Diversity in Pediatric Clinical Trials: Current Barriers and a Path Towards Inclusive Clinical Trial Design and Conduct

0 events,

0 events,

0 events,

0 events,

0 events,

1 event,

-

EURO-NMD Gene Therapy Webinar Series – Genetic therapies and therapy developments for rare movement disorders

0 events,

0 events,

0 events,

0 events,

0 events,

0 events,

0 events,

1 event,

-

CHILD-BRIGHT Network – Applying Anti-Racism Principles in Healthcare

0 events,

0 events,

0 events,

0 events,

Share your Event

Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!

Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details

HERE!

Skip to content