Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Virtual
Calendar of Events
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Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools, Healthcare, and Community
Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools, Healthcare, and Community
What do children with disabilities and their families need to thrive? A team of researchers, mothers, and children and youth with disabilities set out to answer this question by exploring their experiences during the COVID-19 pandemic and beyond. Their mission? To uncover what supports and services — spanning healthcare, education, and community life — families need now and in […]
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Neuromuscular Mystery Case Rounds
Neuromuscular Mystery Case Rounds
Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians, academics, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with […]
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PxP 2025 Webinar Series. The patient perspective: Barriers and facilitators to patient partnership in research
PxP 2025 Webinar Series. The patient perspective: Barriers and facilitators to patient partnership in research
The webinar series is all about patient engagement in health research, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying […]
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Rare Disease Expertise, Centers & Networks: Results of the Public Survey
Rare Disease Expertise, Centers & Networks: Results of the Public Survey
This is a Public Webinar presenting the results of RDI Survey on rare disease expertise, care-providing centers and networks. This survey aimed to map the global landscape of rare disease expertise, identifying centers, networks, and collaborations dedicated to improving care for people living with rare diseases. During the webinar, they will share key findings and insights […]
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From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
Rare Moments: Virtual Storytelling Evening
Rare Moments: Virtual Storytelling Evening
Don’t miss Rare Moments: Virtual Storytelling Evening 📅 February 27 @ 7:00 p.m. ET Register: https://bit.ly/4ht5Ox9 It will be an inspiring evening of storytelling as families from across #Canada come together to share their experiences living with Duchenne #musculardystrophy.
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CORD Rare Disease Day 2025 Webinar
CORD Rare Disease Day 2025 Webinar
CORD is hosting a special webinar on Friday, Feb 28 from 12-1pm EST so that everyone from across Canada can tune in and help put that funding to work. Here’s what they’ll discuss: - Ending the diagnostic odyssey with CHEO’s ThinkRare - Treating and tracking rare diseases at BC Cancer - Caring for complex kids […]
Celebrate Rare Disease Day: Advancing Clinical Trials Together
Celebrate Rare Disease Day: Advancing Clinical Trials Together
On February 28th, in recognition of Rare Disease Day, the European project DREAMS (www.dreamshorizon.eu) invites you to a thought-provoking online webinar: "Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases". Join leading experts as they explore advancements in clinical trial methodologies, outcome measures, and lessons learned from research in muscular disorders.
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RQMO 2025 International Rare Disease Day
RQMO 2025 International Rare Disease Day
To celebrate International Rare Disease Day, the RQMO is organizing an activity on March 1, 2025 at the Sandman Hotel located at 999, rue de Sérigny in Longueuil. The event will take place from 10 a.m. to 3 p.m. and will be followed by a networking cocktail from 3 p.m. to 5 p.m. The activity […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!