Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Virtual
Calendar of Events
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PxP Webinar 3 2024: Different opportunities to engage as a patient partner
PxP Webinar 3 2024: Different opportunities to engage as a patient partner
The webinar series is all about patient engagement in health research, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying […]
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Supporting the Mental Health Needs of Rare Disease Patients, Families, and Communities
Supporting the Mental Health Needs of Rare Disease Patients, Families, and Communities
During this session, Dr. Al Freedman will provide tools and resources for supporting the mental health needs of rare disease patients, families and communities.
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Update on treatment in Pompe disease
Update on treatment in Pompe disease
Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on treatment updates in Pompe disease. This case-based rounds webinar is for Canadian clinicians, academics, and trainees with an interest in neuromuscular disease.
‘Neurogeriatric and neurological aspects in palliative care of MSA, PSP and advanced PD’ by Martin Klietz
‘Neurogeriatric and neurological aspects in palliative care of MSA, PSP and advanced PD’ by Martin Klietz
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
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The 4th Annual Canadian Children, Youth and Communities (CCYC) Health In | Equity Conference
The Canadian Children, Youth and Communities (CCYC) In | Equity Conference is an interdisciplinary conference designed to bring together pediatric health and allied health care professionals to address health care inequities from birth to adolescence using a family-centred approach. This conference explores health equity topics specific to marginalized communities in the Canadian health care system […]
Epilepsy Treatments in Rett Syndrome
Epilepsy Treatments in Rett Syndrome
The International Rett Syndrome Foundation (IRSF) invites you to this live RettEd session with a goal of educating families on an approach to the treatment of epilepsy in Rett syndrome
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L4L Session: Sickle Cell Disease and Complications including Stroke
L4L Session: Sickle Cell Disease and Complications including Stroke
The SCAGO is excited to announce the October Learning for Life session “Sickle Cell Disease and Complications including Stroke” slated for Sat. October 26th! Attendees will leave the session with a rich knowledge of how to prevent complications of Sickle Cell Disease and improve their health outcomes.
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CRDN Townhall – An Update on the Co-Development of our Strategic Plan
CRDN Townhall – An Update on the Co-Development of our Strategic Plan
Join the Canadian Rare Disease Network (CRDN) - Réseau Canadien des Maladies Rares - for a dynamic townhall to engage with thought leaders, experts, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its […]
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Virtual Event: Understanding EDS/HSD+ Symptomology, Diagnoses and Treatment – A Guide for Primary Care Practitioners & Physician Specialists
Virtual Event: Understanding EDS/HSD+ Symptomology, Diagnoses and Treatment – A Guide for Primary Care Practitioners & Physician Specialists
This Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain in their clinical practice, which may or may not be related to Ehlers-Danlos Syndromes or hypermobility Spectrum Disorders (EDS/HSD+).
EDS ECHO Summit: Diet and Nutrition
EDS ECHO Summit: Diet and Nutrition
The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Diet and Nutrition, a virtual event held on November 2, 2024. This event is suitable for community members, their friends, families, and caregivers, as well as healthcare professionals.
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Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!