Accessing Data through DASH
Learn how HDRN Canada's Data Access Support Hub (DASH) can help health researchers access multi-regional data.
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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Virtual
IPNA Webinar: Nutritional management during AKI
The webinar will discuss the current recommendations on nutritional management among children suffering from acute kidney injury.
Duchenne Patient Academy 2024!
This year, the 8th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. Duchenne Patient Academy 2024 will take place on Friday December 6, and Saturday December 7 fully online. Over the course of 2 days, Duchenne Patient Academy attendees will listen to […]
Mental health trajectories and targeted treatments in neurodevelopmental conditions
This presentation will summarize existing evidence as well as evidence gaps regarding mental health outcomes in children with neurodevelopmental conditions including rare genetic disorders.
ALS Canada Webinar: Exploring Holistic Therapies
Join ALS Canada and a panel of presenters for the ALS Canada Webinar: Exploring Holistic Therapies to learn about various holistic therapies and techniques including Reiki, deep breathing, intuitive energy healing, and wellness drumming. Each presenter will have a small presentation and demonstration.
ERDERA Joint Transnational Call 2025 Information Webinar
This Webinar will: Provide general information on the call, including its scientific goals, administrative aspects, support services, and patient engagement strategies. Address your questions through two dedicated Q&A sessions.
Webinar: How do rare conditions impact family and social relationships
This webinar will explore how rare conditions shape and inform social and family relationships, drawing from the lived experience of affected individuals, caregivers and parents, and siblings. The outcome of the webinar will be a factsheet to help increase awareness about the impact of rare conditions on both social and family relationships, and how to […]
TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways, standards of care, and emerging therapies, while engaging with experts, patients, and peers to […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!