Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together […] |
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This conference reaches a national, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together, you'll explore how sustainable solutions and community partnerships can improve child and youth health equity. 
The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year's theme, "Cardiac Precision Medicine in the 21st Century," delves into cardiovascular genomics and precision medicine in the era of 'Omics', AI and digital medicine. Join us as we bring together international experts and innovators […] |
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A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence, will mobilize caregivers, care providers, systems leaders, policy makers and researchers across the aging, disability and healthcare communities to work together to make caregiving […] |
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This will include presentations and panel discussions focused on current scientific findings, the opportunities to strengthen research design, and the need to create more inclusive and accessible research spaces. |
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IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. With a truly international impact, the congress has earned its definite place and role in the PID clinical landscape. |
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November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference |
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TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us! |
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This premier event will bring together leading experts, researchers, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists, psychologists, researchers, clinicians, mental health professionals, neuroscientists, healthcare practitioners, academicians, and industry experts to join us on November 10-11, 2025, in Dubai, UAE. |
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This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond. |
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Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
