Dr. Nicola Worsfold is a Rare Disease Consultant and Patient Advocate. Nicola is a biotech professional with over 15 years of experience working on drug development in the private sector. She is a parent of a child with a rare disease and has worked with many patient organizations over the last 8 years. She founded Stand for Duchenne Canada in 2016 and up until last year worked as National VP for Defeat Duchenne Canada. Nicola now works as an advisor and is an active member of the International Duchenne Community Advisory board for the World Duchenne Organization.
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