Durhane Wong-Rieger, PhD

Dr. Durhane Wong-Rieger is the President and CEO of the Canadian Organization for Rare Disorders (CORD). She is Chair of the Consumer Advocare Network, President & CEO of the Institute for Optimizing Health Outcomes, Chair of Canadian Heart Patient Alliance, and serves on the Implementation Advisory Group for the National Strategy for Drugs for Rare Diseases.

Internationally, she is Chair of Rare Disease International (RDI), President of Asia Pacific Rare Disease International, Treasurer of United Nations Nongovernmental Organization for Rare Diseases, Chair of Patient Advocates Constituency Committee of the International Rare Disease Research Consortium, Patient Advisor to the APEC Rare Disease Network, member of the Editorial Board of The Patient- Patient Centred Outcomes Research, and member of Health Technology Assessment International Patient / Citizen Involvement Interest Group.