Canadian Rare Disease Network

Canadian Rare Disease Network https://validator.w3.org/feed/docs/rss2.html Scholarship Planning Orphan Device Development Using the GAITS Framework Canadian Genomics Innovation Showcase CRDN launches first-ever rare disease student scholarship program in Canada 4th Edition of the Sickle Cell Awareness Day Education Conference NMD4C and MDC: Neuromuscular Mystery Case Rounds Regroupement québécois des maladies orphelines: NRGI – open science to understand common and rare neurological disorders RareKids-CAN-From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions? RareKids-CAN Advanced Therapy Medicinal Products (ATMPs) series: ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists Home Newly Diagnosed with a Genetic Aortic Disorder: What You Need to Know From Blueprint to Action: How We Can Advance Palliative Care in Canada Together CRDN-RAREvolution Information Webinar 2026 Children’s Healthcare Canada Annual Conference, “Tomorrow’s Promise, Today’s Plan: Transforming Children’s Healthcare in Canada” Newsletter Sign-Up ALS Canada: ALS Clinical Trials Unboxed Ehlers-Danlos Society: Biobank Research Event Sickle Cell Awareness Group of Ontario: Learning for Life Webinar Rare Diseases International: A Catalyst for Global Health Transformation RQMO: Le grand pouvoir des petites populations CRDN submits response to Health Canada’s consultation on ‘Clinical Trial Regulations’ RareKids-CAN-Bill C-265 Webinar: Improving Access to Essential Medications in Canada Scholarship List Find a Patient Organization 15th edition of the International Myotonic Dystrophy Consortium (IDMC-15) Turning lived experience into health system change: Manda Roddick’s story CORD: Rare Disease Day 2026 Conference News Living with Xia-Gibbs: Through the voices of Emily Honderich and Katherine Govier 4th Heritable Aortic Disorders Symposium Launch of the Rare Disease Event Calendar Public consultation on the Canadian Rare Disease Network proposed Strategic Plan New resource: Rare disease awareness days calendar now live! CRDN featured in Open Access Government: Connecting Canada for rare disease care and research CRDN featured in Open Access Government: Rethinking rare disease diagnosis in Canada CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase Building Business Cases for Genomics CRDN welcomes the introduction of the Connected Care for Canadians Act Ontario Rare Action Group Information Meeting Voices for Rare Advocacy Day Wilson Disease Association Spring Support Symposium Ehlers-Danlos Syndrome (EDS) Research Symposium MitoRevolution Research Symposium and Innovation Day Innovative Financing for Rare Diseases ALS Disrupt ALS Clinical Trials Unboxed CRDN at RARE.Qc’s Scientific Day & Annual General Meeting Our Impact Publications Bio Page Breanne Stewart