Canadian Rare Disease Network

Canadian Rare Disease Network https://validator.w3.org/feed/docs/rss2.html Cavernous Malformation Canada Patient & Family Conference Cavernous Malformation Canada Clinical & Scientific Symposium Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions Sickle Cell Awareness Group of Ontario-Annual Summit 2026 Registration RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia Kabuki Syndrome Foundation Live Webinar: Together for Progress RareKids-CAN-Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey RARE REV-inar episode 027 – Living with systemic mastocytosis IMPaCT Webinar-Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials Publications & Media About CRDN Our Impact Patient Stories Awareness Days Find a Patient Organization News Contact Us Scholarship Find a Patient Registry Newsletter Sign-Up Our Governance Our History 15th edition of the International Myotonic Dystrophy Consortium (IDMC-15) RAREvolution information webinar supports applicants ahead of scholarship deadline New resource: Scholarship list for students living with rare disease CRDN-RAREvolution Information Webinar CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness A REAL disease, NOT imagined Rare Diseases International-Innovative Models Reshaping Access to Diagnosis, Treatment and Care – Practical examples and global case studies Brain-Heart Interconnectome (BHI) State of the Science Summit Muscular Dystrophy Canada- Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis PONDA Pop-up-Rare Care: What Care Support looks like for Patients and Families Affected by Rare Disease and Rare Diagnoses Cystic Fibrosis Canada’s 2026 Webinar: Spotlight on CF Research 2026 Building on Progress: Charting the Future of Canada’s Rare Disease Strategy Planning Orphan Device Development Using the GAITS Framework ‘Neuro-opthalmological presentations of ataxia and other rare neurological disorders’ by Tatiana Brémovà-Ertl Canadian Genomics Innovation Showcase 4th Edition of the Sickle Cell Awareness Day Education Conference NMD4C and MDC: Neuromuscular Mystery Case Rounds Regroupement québécois des maladies orphelines: NRGI – open science to understand common and rare neurological disorders RareKids-CAN-From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions? RareKids-CAN Advanced Therapy Medicinal Products (ATMPs) series: ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists CRDN featured in Open Access Government: Rethinking rare disease diagnosis in Canada CRDN launches first-ever rare disease student scholarship program in Canada 2026 Children’s Healthcare Canada Annual Conference, “Tomorrow’s Promise, Today’s Plan: Transforming Children’s Healthcare in Canada” ALS Canada: ALS Clinical Trials Unboxed RareKids-CAN-Bill C-265 Webinar: Improving Access to Essential Medications in Canada Newly Diagnosed with a Genetic Aortic Disorder: What You Need to Know Home