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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:8010-1748851200-1748970000@canadianrdn.ca
SUMMARY:Advancing Innovation in Rare Disease Research
DESCRIPTION:Join researchers\, clinicians\, and industry leaders to discuss real-world research breakthroughs\, novel #ClinicalTrial designs\, and how NORD’s Rare Disease Centers of Excellence are leading collaborative efforts in #RareDisease innovation.
URL:https://canadianrdn.ca/event/advancing-innovation-in-rare-disease-research/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
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DTSTART;TZID=America/Edmonton:20250612T160000
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CREATED:20250520T191546Z
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UID:8295-1749744000-1749747600@canadianrdn.ca
SUMMARY:Community Conversation: The Living Rare Study
DESCRIPTION:Join NORD on Thursday\, June 12 at 4 p.m. ET for a virtual conversation about the #LivingRareStudy. This session will guide you through joining the first large-scale study in the U.S. focused on tracking the real-life experiences of individuals and caregivers impacted by #RareDiseases\, including how to create an #IAMRARE account\, review the consent form\, and navigate the platform.
URL:https://canadianrdn.ca/event/community-conversation-the-living-rare-study/
CATEGORIES:Caregiver,Events,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=Europe/London:20250618T183000
DTEND;TZID=Europe/London:20250618T210000
DTSTAMP:20260410T031946
CREATED:20250520T192927Z
LAST-MODIFIED:20250520T192927Z
UID:8310-1750271400-1750280400@canadianrdn.ca
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:This annual event celebrates the innovative work and powerful stories emerging from the rare disease community – uniting patient groups\, researchers\, clinicians\, industry professionals\, and more from across the UK and beyond.
URL:https://canadianrdn.ca/event/the-cambridge-rare-disease-showcase/
CATEGORIES:Events,In Person,International,Patient Focused,Research Focused
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