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DTSTART;TZID=America/Edmonton:20261014T110000
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UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
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DTSTART;TZID=America/Edmonton:20261015T110000
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DTSTAMP:20260922T171018Z
CREATED:20260922T164806Z
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UID:11637-1792062000-1792065600@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-2/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
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DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
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