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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:8463-1756886400-1757005200@canadianrdn.ca
SUMMARY:2025 RARE Drug Development Symposium
DESCRIPTION:Rare disease patient advocates are taking the lead in research like never before\, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge\, skills\, and connections to navigate early-stage research with confidence. During this 1.5 day event\, attendees will have a mix of main stage sessions\, targeted breakouts\, group presentations\, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy\, this symposium offers practical insights to accelerate progress in research strategies and activities.
URL:https://canadianrdn.ca/event/2025-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
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DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250912T170000
DTSTAMP:20260410T035900
CREATED:20250902T192157Z
LAST-MODIFIED:20250902T192157Z
UID:8839-1757404800-1757696400@canadianrdn.ca
SUMMARY:PxP2025
DESCRIPTION:The PxP (For Patients\, By Patients) conference will be September 9-11 (for those in Europe\, Africa or North and South America)\, or 10-12 (Asia and Oceania). This free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on Patient Engagement in health research.
URL:https://canadianrdn.ca/event/pxp2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250910T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260410T035900
CREATED:20250902T192340Z
LAST-MODIFIED:20250902T192340Z
UID:8842-1757491200-1757696400@canadianrdn.ca
SUMMARY:PCSI 2025
DESCRIPTION:From September 10 to 12\, 2025\, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: “Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions.” The topics will be: \n\nInnovations in case-mix\, data and technology.\nAdvancements in coding\, classification systems\, and data quality.\nCase-mix and costing beyond funding.\nFrom case-mix to policy: the patient at the center.\nConnecting funding with patient outcomes and quality of care\nUsing costing and funding to create value and demonstrate productivity.\nArtificial intelligence & case-mix: in service of patient-centered care.\n\nOn September 9th\, there will be a day of pre-conference workshops.
URL:https://canadianrdn.ca/event/pcsi-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250917T140000
DTEND;TZID=America/Toronto:20250917T150000
DTSTAMP:20260410T035900
CREATED:20250916T185523Z
LAST-MODIFIED:20250916T185523Z
UID:8906-1758117600-1758121200@canadianrdn.ca
SUMMARY:RareKids-CAN-Education Session: Family Engagement in Research Fundamentals
DESCRIPTION:Join RareKids-CAN on September 17\, 2025\, from 2-3pm ET for their next education session\, led by their Patient and Family Engagement Facilitators. This session is open to everyone interested in strengthening engagement practices. Don’t miss out!
URL:https://canadianrdn.ca/event/rarekids-can-education-session-family-engagement-in-research-fundamentals/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
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