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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART:20230101T000000
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DTSTART;TZID=UTC:20241105T170000
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LAST-MODIFIED:20241031T202009Z
UID:6858-1730826000-1730829600@canadianrdn.ca
SUMMARY:FSHD Clinical Updates
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on FSHD clinical updates. This webinar is for Canadian clinicians\, academics\, researchers\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence. AGENDA: Chair and Speaker: Dr. Lawrence Korngut Speakers: Dr. Patrick Horn: Results of a phase 3 study of losmapimod in the treatment of FSHD Dr. Eva Chin: Catalysing Innovation in FSHD Therapeutics Objectives: – Innovative new therapies on the horizon for FSHD – The role of patient foundations and patient-funded R&D for accelerating novel therapies – Understand the outcome to the REACH study of losmapimod in FSHD The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada. If you have any questions\, please email <research@muscle.ca> If you would like to learn more about NMD4C and to become a member: https://neuromuscularnetwork.ca/become-a-member/
URL:https://canadianrdn.ca/event/fshd-clinical-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Webinars
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DTSTART;VALUE=DATE:20241118
DTEND;VALUE=DATE:20241119
DTSTAMP:20260522T094138
CREATED:20240618T030756Z
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UID:4471-1731888000-1731974399@canadianrdn.ca
SUMMARY:4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
DESCRIPTION:The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan\, Italy and offers access to the latest research and analysis related to this rare disease. \nMeeting participants will gain valuable insights into innovative perspectives in both basic and clinical research. The scientific programme will draw together experts from around the world to discuss breakthroughs in basic research\, advances in clinical practice\, novel therapeutic approaches and new insights into stem-cell and cellular therapies. An ideal forum to share knowledge\, connect with professional colleagues and grow your professional network.
URL:https://canadianrdn.ca/event/4th-annual-symposium-for-researchers-and-clinicians-on-wiskott-aldrich-syndrome/
LOCATION:San Raffaele Institute\, Milan\, Italy
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
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