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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:4095-1716372000-1716375600@canadianrdn.ca
SUMMARY:Clinical trials in rare disease: The role of patient registries
DESCRIPTION:Therapies for rare diseases are emerging at a rapid pace yet rigorous evidence regarding their safety\, efficacy\, and effectiveness in practice is often sparse and is difficult to generate. High quality longitudinal patient registries may help to address this evidence gap.
URL:https://canadianrdn.ca/event/clinical-trials-in-rare-disease-the-role-of-patient-registries/
CATEGORIES:National,Patient Focused,Policy,Virtual,Webinars
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DTSTART;TZID=Asia/Shanghai:20240523T120000
DTEND;TZID=Asia/Shanghai:20240525T183000
DTSTAMP:20260501T112111
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UID:4107-1716465600-1716661800@canadianrdn.ca
SUMMARY:Global Rare Diseases Research Symposium
DESCRIPTION:IRDiRC is co-hosting together with Hope for Rare Foundation and Fudan University\, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine Annual Conference on May 23-25 in Shanghai (China). \nThe conference will last for 2.5 days with 21 parallel sessions and several satellite meetings. It will bring together over 100 speakers from global universities\, hospitals\, academic institutions\, and pharmaceutical companies. Topics will cover basic research on rare diseases\, gene and cell therapies\, Investigator Initiated Trials\, clinical studies\, drug development\, and international research collaborations.
URL:https://canadianrdn.ca/event/global-rare-diseases-research-symposium/
LOCATION:Greenland International Convention Center\, Shanghai\, China
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Research Focused
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DTSTART;TZID=America/Edmonton:20240528T120000
DTEND;TZID=America/Edmonton:20240528T130000
DTSTAMP:20260501T112111
CREATED:20240523T204453Z
LAST-MODIFIED:20240523T204534Z
UID:4204-1716897600-1716901200@canadianrdn.ca
SUMMARY:Network 2 Network May Community Forum
DESCRIPTION:Register for the next N2 Canada Community Forum\, where N2 will celebrate International Clinical Trials Day! Raisa Chowdhury\, Project Coordinator from the Canadian Cancer Trials Network (3CTN) will present their new EDI way finder tool. Additionally\, Sarah Bridges\, Research Coordinator from the Maritime SPOR SUPPORT Unit and the N2 Public Engagement Committee Co-Chair will present their DIY community engagement toolkit.
URL:https://canadianrdn.ca/event/network-2-network-may-community-forum/
CATEGORIES:Clinical Trials,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
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