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X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/Edmonton
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250812T080000
DTEND;TZID=America/Edmonton:20250815T170000
DTSTAMP:20260409T015748
CREATED:20250703T195305Z
LAST-MODIFIED:20250703T195305Z
UID:8517-1754985600-1755277200@canadianrdn.ca
SUMMARY:7th International Indigenous Voices in Social Work Conference 2025 One Child Every Child:  Indigenous Ways of Knowing\, Doing\, Connecting\, and Being  for Advancing the Well-Being of Our Future Generations
DESCRIPTION:Situated between the Rocky Mountains and prairielands of Treaty 7 Territory in what we now call Southern Alberta\, Canada\, the 7th International Indigenous Voices in Social Work (IIVSW) Conference is a vital forum for sharing Indigenous perspectives and experiences in the field of social work. \nThis global gathering brings together a diverse and inspiring community of individuals dedicated to Indigenous social work\, healing\, and systemic change. IIVSW will provide a powerful space to connect\, learn\, and share knowledge across borders and cultures. \nHosted by UCalgary’s One Child Every Child\, the Office of Indigenous Engagement and the Faculty of Social Work\, the 7th IIVSW gathering welcomes all people from communities\, practice\, and research to gather for cultural exchange\, shared learning and shared wisdom. From August 12 – 15\, attendees will strengthen their spirits while walking parallel paths and sharing ethical space to advance the well-being of children\, future generations and communities. Participants will meet\, feast\, and travel for experiential learning.
URL:https://canadianrdn.ca/event/7th-international-indigenous-voices-in-social-work-conference-2025-one-child-every-child-indigenous-ways-of-knowing-doing-connecting-and-being-for-advancing-the-well-being-of-our-future-generati/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/IIVSW-Logo.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T130000
DTEND;TZID=America/Edmonton:20250813T150000
DTSTAMP:20260409T015748
CREATED:20250729T162316Z
LAST-MODIFIED:20250729T162316Z
UID:8607-1755090000-1755097200@canadianrdn.ca
SUMMARY:ALS Canada: Driving & ALS Webinar
DESCRIPTION:Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability\, adaptive driving equipment\, how an ALS diagnosis may affect insurance\, and available alternative options.
URL:https://canadianrdn.ca/event/als-canada-driving-als-webinar/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T180000
DTEND;TZID=America/Edmonton:20250813T200000
DTSTAMP:20260409T015748
CREATED:20250728T214152Z
LAST-MODIFIED:20250728T214152Z
UID:8598-1755108000-1755115200@canadianrdn.ca
SUMMARY:PxP Africa 2025: Virtual Meeting August 13\, 2025 From Research Participants to Patient Partners in Research: Centering African Patients Voices
DESCRIPTION:PxP Africa is the first regional PxP meeting\, led by Joab Wako and Kwanele Asante who are members of the 2025 steering committee for the global PxP conference taking place in September. PxP Africa will spotlight the critical role of patient partners—especially African patients—as active contributors in research\, not just research participants. The session will challenge the traditional top-down model of research and explore how lived experience can inform\, shape\, and lead meaningful\, inclusive studies.
URL:https://canadianrdn.ca/event/pxp-africa-2025-virtual-meeting-august-13-2025-from-research-participants-to-patient-partners-in-research-centering-african-patients-voices/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T080000
DTEND;TZID=America/Edmonton:20250819T090000
DTSTAMP:20260409T015748
CREATED:20250729T164703Z
LAST-MODIFIED:20250729T164703Z
UID:8610-1755590400-1755594000@canadianrdn.ca
SUMMARY:PxP Australia 2025
DESCRIPTION:PxP Australia is a regional webinar\, led by Letisha Living and Janelle Bowden who are members of the 2025 steering committee for the global PxP conference taking place in September. The theme of PxP Australia is “working well together” and Dr. Joan Carlini will be joining the session as a speaker.
URL:https://canadianrdn.ca/event/pxp-australia-2025/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T120000
DTEND;TZID=America/Edmonton:20250819T133000
DTSTAMP:20260409T015748
CREATED:20250812T200201Z
LAST-MODIFIED:20250812T200201Z
UID:8741-1755604800-1755610200@canadianrdn.ca
SUMMARY:Genome Editing in Stem Cells and Regenerative Medicine
DESCRIPTION:CRISPR-based genome editing has revolutionized biomedical research\, offering powerful tools to investigate gene function\, model diseases\, and develop novel therapies. This focused workshop will provide participants with both theoretical grounding and practical insights into current genome editing technologies. \nThe Stem Cell Network (SCN) is pleased to offer the online workshop “Genome Editing in Stem Cells and Regenerative Medicine”. This workshop will equip participants with both a theoretical grounding and practical insights into current genome editing technologies. It will also explore key concepts in experimental design\, delivery\, and selection methods.
URL:https://canadianrdn.ca/event/genome-editing-in-stem-cells-and-regenerative-medicine/
CATEGORIES:National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250821T080000
DTEND;TZID=America/Edmonton:20250824T170000
DTSTAMP:20260409T015748
CREATED:20250526T204722Z
LAST-MODIFIED:20250526T204722Z
UID:8328-1755763200-1756054800@canadianrdn.ca
SUMMARY:Building Bridges "Bridging" Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/building-bridges-bridging-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250826T080000
DTEND;TZID=America/Edmonton:20250826T170000
DTSTAMP:20260409T015748
CREATED:20250730T205148Z
LAST-MODIFIED:20250730T205148Z
UID:8632-1756195200-1756227600@canadianrdn.ca
SUMMARY:2025 Transdisciplinary Child & Maternal Health Trainee Research Day
DESCRIPTION:Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI\, the graduate portion of this symposium is funded by UCalgary’s Graduate Students’ Association.
URL:https://canadianrdn.ca/event/2025-transdisciplinary-child-maternal-health-trainee-research-day/
CATEGORIES:Conferences,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250827T000000
DTEND;TZID=America/Edmonton:20250827T000000
DTSTAMP:20260409T015748
CREATED:20250827T165451Z
LAST-MODIFIED:20250827T165535Z
UID:8777-1756252800-1756252800@canadianrdn.ca
SUMMARY:Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:Co-developed by ERN ReCONNET and LUPUS EUROPE\, The Lupus100 Project is a multilingual resource based on real patient questions about lupus\, turning a national patient booklet into a Europe-wide\, medically validated information tool. Speakers Eric Hachulla (clinician\, ERN ReCONNET)\, Jeanette Andersen (patient representative\, ERN ReCONNET)\, and Zoe Karakikla-Mitsakou (General Secretary\, Lupus Europe) will share how meaningful collaboration between patients and clinicians shaped this impactful communication initiative!
URL:https://canadianrdn.ca/event/webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250828T060000
DTEND;TZID=America/Edmonton:20250828T073000
DTSTAMP:20260409T015748
CREATED:20250728T213522Z
LAST-MODIFIED:20250728T213535Z
UID:8595-1756360800-1756366200@canadianrdn.ca
SUMMARY:WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action
DESCRIPTION:This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
URL:https://canadianrdn.ca/event/wha-resolution-coalition-webinar-turning-the-wha-resolution-on-rare-diseases-into-action/
CATEGORIES:Hybrid,International,Patient Focused,Research Focused,Virtual,Webinars
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