Canadian Rare Disease Network

PxP Webinar 2 2024: Motivations for being a patient partner in research
2024-05-09 13:00 - 14:30 (America/New_York)
The webinar series is all about patient engagement in health research, also known as patient and public involvement (in the UK) or consumer involvement (in Australia). ‘Patient engagement’ in health research is where patients are research team members. This is different from volunteering to be a research participant where you might help advance research or healthcare, but a research participant generally does not give input into the research study itself.
