Global Genes: RARE Drug Development Symposium
2026-09-09 08:00 - 2026-09-11 17:00 (America/Toronto)
Join Global Genes virtually from September 9 – 11, 2026 and access high-impact sessions directly from your home or office.
What’s included in the Live Stream:
2 Fireside Chats
6 General Sessions
Keynote Talks
Pitch Perfect Session
Connect with advocates, researchers, and leaders shaping the future of rare drug development.

Cavernous Malformation Canada Clinical & Scientific Symposium
2026-09-18 08:00 - 2026-09-19 16:00 (America/Toronto)
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.

Cavernous Malformation Canada Patient & Family Conference
2026-09-18 08:00 - 2026-09-19 17:00 (America/Toronto)
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted by cavernous malformation.

SickKids: Neurovascular Family Education Day 2026
2026-09-19 09:00 - 14:00 (America/Toronto)
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.

Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
2026-09-19 10:00 - 16:00 (America/Toronto)
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”.
This awareness day aims to be a space for exchange, reflection, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges, but also concrete ways to build a more inclusive society.

Sickle Cell Awareness Group of Ontario (SCAGO): Sickle Cell Awareness Month Community Engagement in Thunder Bay
2026-09-19 12:30 - 15:30 (America/Toronto)
SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)!
Join SCAGO for an afternoon of connection, education, and community as they come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.

Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
2026-09-24 08:00 - 2026-09-26 17:00 (America/Vancouver)
🔬 Thursday, September 24
CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members.
🩺 Friday, September 25
Scientific Sessions — a full day dedicated to the latest PH research, clinical advancements, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception, where the entire PH community comes together.
💜 Saturday, September 26
Patient & Family Symposium — designed specifically for PH patients, caregivers, family members, and supporters. A day of education, inspiration, connection, and community.

2026 NMD4C Annual Meeting
2026-09-25 08:00 - 17:00 (America/Edmonton)
Join NMD4C for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update, trainee and early‑career recognitions, flash talks, a health economics research showcase, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions

6th Western Canadian Neuromuscular Conference (WCNMC 2026)
2026-09-25 08:00 - 2026-09-27 17:00 (America/Edmonton)
WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians, researchers, trainees, nurses, and allied health professionals for three days of learning, featuring parallel basic/translational science and clinical sessions, alongside case discussions and neuromuscular research presentations.

17th International Symposium on Sjögren's Disease
2026-09-29 08:00 - 2026-10-02 17:00 (Europe/Paris)
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.

Defeat Duchenne Canada: Family Forum 2026
2026-10-03 08:00 - 2026-10-04 17:00 (America/Toronto)
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey.

Kids Brain Health Network (KBHN) Annual Conference
2026-10-18 08:00 - 2026-10-20 17:00 (America/Edmonton)
Save the Date!
Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!

Inaugural Canadian Gene & Cell Therapy Conference
2027-01-25 08:00 - 2027-01-26 17:00 (America/Toronto)
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the full translational pipeline.
