BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Edmonton
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20270314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20271107T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260521T122221
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260425T080000
DTEND;TZID=America/Toronto:20260426T170000
DTSTAMP:20260521T122221
CREATED:20260401T192005Z
LAST-MODIFIED:20260401T192005Z
UID:10061-1777104000-1777222800@canadianrdn.ca
SUMMARY:ALS Disrupt
DESCRIPTION:A bold new meeting designed to bring together global leaders in #ALS for open\, timely\, and collaborative discussions that move the field forward.
URL:https://canadianrdn.ca/event/als-disrupt/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773237619453-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260507T100000
DTEND;TZID=America/Edmonton:20260507T110000
DTSTAMP:20260521T122221
CREATED:20260507T150625Z
LAST-MODIFIED:20260507T150625Z
UID:10633-1778148000-1778151600@canadianrdn.ca
SUMMARY:From Blueprint to Action: How We Can Advance Palliative Care in Canada Together
DESCRIPTION:Access to hospice palliative care in Canada still varies widely\, with barriers linked to geography\, diagnosis\, and social factors. The Blueprint for Action 2025–2030 outlines priorities to improve equitable\, culturally safe care. This webinar introduces the roadmap and offers practical guidance on advocacy and government engagement to help individuals and organizations drive meaningful change.
URL:https://canadianrdn.ca/event/from-blueprint-to-action-how-we-can-advance-palliative-care-in-canada-together/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777905407002.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260514T110000
DTEND;TZID=America/Edmonton:20260514T120000
DTSTAMP:20260521T122221
CREATED:20260508T140710Z
LAST-MODIFIED:20260508T140801Z
UID:10640-1778756400-1778760000@canadianrdn.ca
SUMMARY:RareKids-CAN-Bill C-265 Webinar: Improving Access to Essential Medications in Canada
DESCRIPTION:Join RareKids-CAN for a timely conversation with MP Marcus Powlowski (MP for Thunder Bay – Rainy River) alongside healthcare professionals and patient advocates from across Canada\, on improving access to essential medications not currently available in the country.
URL:https://canadianrdn.ca/event/rarekids-can-bill-c-265-webinar-improving-access-to-essential-medications-in-canada/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776961091115.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260514T163000
DTEND;TZID=America/Edmonton:20260514T173000
DTSTAMP:20260521T122221
CREATED:20260507T150910Z
LAST-MODIFIED:20260507T150910Z
UID:10636-1778776200-1778779800@canadianrdn.ca
SUMMARY:Newly Diagnosed with a Genetic Aortic Disorder: What You Need to Know
DESCRIPTION:Led by patient advocates\, Lindsey Rusche and Liz Martin\, this educational webinar is designed specifically for individuals and families who have been newly diagnosed with a genetic aortic disorder. The goal of this session is to provide clear\, reassuring\, and evidence-based information to help patients better understand their diagnosis and feel supported as they begin their care journey.
URL:https://canadianrdn.ca/event/newly-diagnosed-with-a-genetic-aortic-disorder-what-you-need-to-know/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777586095311.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260515T100000
DTEND;TZID=America/Edmonton:20260515T110000
DTSTAMP:20260521T122221
CREATED:20260508T140938Z
LAST-MODIFIED:20260508T140938Z
UID:10644-1778839200-1778842800@canadianrdn.ca
SUMMARY:ALS Canada: ALS Clinical Trials Unboxed
DESCRIPTION:On Friday\, May 15\, 2026 at 12 p.m. ET\, join ALS Canada for our next ALS Clinical Trials Unboxed webinar to learn more about ongoing ALS clinical trials.
URL:https://canadianrdn.ca/event/als-canada-als-clinical-trials-unboxed/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1778176822111.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260519T100000
DTEND;TZID=America/Edmonton:20260519T110000
DTSTAMP:20260521T122221
CREATED:20260501T145155Z
LAST-MODIFIED:20260501T145155Z
UID:10614-1779184800-1779188400@canadianrdn.ca
SUMMARY:RQMO: Le grand pouvoir des petites populations
DESCRIPTION:6e épisode de la série de webinaires RARE.QC-RQMO présenté par Simon Girard\, Ph.D\, Professeur en génétique humaine\, Université du Québec à Chicoutimi et un de ses étudiants au doctorat en biologie\, M. Gilles-Philippe Morin. \nLe titre de la présentation de M. Morin est : Déceler la structure fine de population du Saguenay–Lac-Saint-Jean par la génétique et la généalogie. \nModération : Jonathan Pratt\, Directeur général du RQMO
URL:https://canadianrdn.ca/event/rqmo-le-grand-pouvoir-des-petites-populations/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777574069811.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260520T100000
DTEND;TZID=America/Edmonton:20260520T113000
DTSTAMP:20260521T122221
CREATED:20260501T145341Z
LAST-MODIFIED:20260501T145341Z
UID:10617-1779271200-1779276600@canadianrdn.ca
SUMMARY:Rare Diseases International: A Catalyst for Global Health Transformation
DESCRIPTION:Bringing together policymakers\, patient advocates\, industry leaders\, researchers\, and global health institutions\, the event will explore how rare diseases can drive people-centered\, equitable health systems.
URL:https://canadianrdn.ca/event/rare-diseases-international-a-catalyst-for-global-health-transformation/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1777359615421.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260530T090000
DTEND;TZID=America/Edmonton:20260530T223000
DTSTAMP:20260521T122221
CREATED:20260501T145607Z
LAST-MODIFIED:20260501T145607Z
UID:10620-1780131600-1780180200@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario: Learning for Life Webinar
DESCRIPTION:Join SCAGO for an informative virtual session on Novel Therapies in Sickle Cell Disease Pain Management: What Patients and Families Should Know.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-learning-for-life-webinar/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776347502365.jpg
END:VEVENT
END:VCALENDAR