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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260115T053000
DTEND;TZID=America/Edmonton:20260115T063000
DTSTAMP:20260409T134532
CREATED:20260111T210920Z
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UID:9596-1768455000-1768458600@canadianrdn.ca
SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n 
URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767795977515.jpg
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DTSTART;TZID=America/Edmonton:20260115T080000
DTEND;TZID=America/Edmonton:20260115T090000
DTSTAMP:20260409T134532
CREATED:20260101T225316Z
LAST-MODIFIED:20260101T225316Z
UID:9476-1768464000-1768467600@canadianrdn.ca
SUMMARY:CMT episode 2: Progress in genetic diagnosis for neuropathies
DESCRIPTION:Delivered by Dr. Andrea Cortese (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 15 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-2-progress-in-genetic-diagnosis-for-neuropathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/03c6e293-c06f-4597-a551-ca4e516f7312.png
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DTSTART;TZID=America/Edmonton:20260115T100000
DTEND;TZID=America/Edmonton:20260115T110000
DTSTAMP:20260409T134532
CREATED:20260101T230631Z
LAST-MODIFIED:20260101T230631Z
UID:9491-1768471200-1768474800@canadianrdn.ca
SUMMARY:When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism
DESCRIPTION:4e épisode de la série de webinaires en collaboration avec Rare.qc et le RQMO. \nTitre complet : When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism \nPaul A. Dutchak\, Ph.D is an Associate Professor at Université Laval and Principal Investigator at the CERVO Brain Research Centre (Québec\, Canada). His laboratory studies how genetic mutations in the GATOR1 amino acid–sensing complex drive epilepsy and autism spectrum disorders through disruptions in cellular signaling\, neurometabolism\, and brain excitability. His group has developed a first-in-class antisense oligonucleotide therapeutic targeting this pathway\, with strong preclinical efficacy in genetic epilepsies. His research program is currently supported by the Canadian Institute of Health Research. \nModerator : Jonathan Pratt\, Executive director of the RQMO
URL:https://canadianrdn.ca/event/when-nutrient-sensing-goes-wrong-how-metabolic-signals-can-drive-epilepsy-and-autism/
CATEGORIES:Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766431845099.jpg
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