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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/Edmonton
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DTSTART:20250309T090000
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DTSTART;TZID=America/Edmonton:20260917T090000
DTEND;TZID=America/Edmonton:20260917T100000
DTSTAMP:20260910T155343Z
CREATED:20260910T155343Z
LAST-MODIFIED:20260910T155343Z
UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260910T155541Z
CREATED:20260910T155541Z
LAST-MODIFIED:20260910T155541Z
UID:11621-1790247600-1790251200@canadianrdn.ca
SUMMARY:Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
DESCRIPTION:Drawing on Canada’s 2021 Census of Population\, Kienan will discuss Quantifiable Indigenous Concepts\, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people in the Status Indian population.
URL:https://canadianrdn.ca/event/health-data-research-network-canada-quantifiable-indigenous-concepts-increasing-precision-of-population-analysis-by-including-indian-act-legislation/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1787602896646.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260922T164651Z
CREATED:20260922T164651Z
LAST-MODIFIED:20260922T164651Z
UID:11634-1790247600-1790251200@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789154047611-1.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T060000
DTEND;TZID=America/Edmonton:20260929T070000
DTSTAMP:20260910T154559Z
CREATED:20260910T154559Z
LAST-MODIFIED:20260910T154559Z
UID:11611-1790661600-1790665200@canadianrdn.ca
SUMMARY:Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
DESCRIPTION:This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility\, governance\, stakeholder alignment\, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into Universal Health Coverage frameworks and long-term national strategies\, and to the realities of low- and middle-income settings where financing gaps are most acute.
URL:https://canadianrdn.ca/event/rare-diseases-international-innovative-financing-for-rare-diseases-from-concept-to-implementation/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788252678497.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T100000
DTEND;TZID=America/Edmonton:20260929T120000
DTSTAMP:20260922T164330Z
CREATED:20260922T164330Z
LAST-MODIFIED:20260922T164330Z
UID:11631-1790676000-1790683200@canadianrdn.ca
SUMMARY:CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
DESCRIPTION:Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy\, what can we learn from Phase 1\, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia\, thalassemia and sickle cell disease\, examining diagnosis\, specialist care\, access to therapies\, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
URL:https://canadianrdn.ca/event/cord-webinar-1-how-readiness-is-built-lessons-from-canadian-rare-disease-pathways/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789739264388.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T110000
DTEND;TZID=America/Edmonton:20260929T123000
DTSTAMP:20260910T155159Z
CREATED:20260910T155159Z
LAST-MODIFIED:20260910T155159Z
UID:11615-1790679600-1790685000@canadianrdn.ca
SUMMARY:Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
DESCRIPTION:In acknowledgement of the National Day for Truth and Reconciliation\, this virtual panel will centre the voices\, experiences\, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving\, culture\, community\, and reconciliation.
URL:https://canadianrdn.ca/event/indigenous-caregivers-collective-icc-virtual-panel-indigenous-values-in-care/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788281843629.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T123000
DTEND;TZID=America/Edmonton:20260929T133000
DTSTAMP:20260910T154339Z
CREATED:20260910T154339Z
LAST-MODIFIED:20260910T154339Z
UID:11608-1790685000-1790688600@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
DESCRIPTION:The Indigenous Health Office invites you to attend “Anti-Indigenous Racism in the Emergency Department”\, a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation-anti-indigenous-racism-in-the-emergency-department/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788891496595.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
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