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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260409T084608
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T100000
DTEND;TZID=America/Toronto:20260307T130000
DTSTAMP:20260409T084608
CREATED:20260212T211012Z
LAST-MODIFIED:20260212T211012Z
UID:9803-1772791200-1772888400@canadianrdn.ca
SUMMARY:Rare Kidney Disease Foundation: 5th International ADTKD Summit
DESCRIPTION:The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit – A Time For Action Friday\, March 6\, 10AM – 1:00PM EST – Science Program Saturday\, March 7\, 10AM – 1:00PM EST – Patient Program
URL:https://canadianrdn.ca/event/rare-kidney-disease-foundation-5th-international-adtkd-summit/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770644514287.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260409T084608
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260312T100000
DTEND;TZID=America/Edmonton:20260312T130000
DTSTAMP:20260409T084608
CREATED:20260311T225507Z
LAST-MODIFIED:20260311T225507Z
UID:9931-1773309600-1773320400@canadianrdn.ca
SUMMARY:CAN-Child: F-words Foundations Workshop
DESCRIPTION:Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773068481975.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260317T090000
DTSTAMP:20260409T084608
CREATED:20260311T225739Z
LAST-MODIFIED:20260311T225739Z
UID:9934-1773734400-1773738000@canadianrdn.ca
SUMMARY:Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-for-leukodystrophies-and-other-rare-neurological-diseases-pediatric-focus/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1771348322685.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260318T070000
DTEND;TZID=America/Edmonton:20260318T080000
DTSTAMP:20260409T084608
CREATED:20260225T181636Z
LAST-MODIFIED:20260225T181636Z
UID:9870-1773817200-1773820800@canadianrdn.ca
SUMMARY:Rare Diseases International-Global Perspectives on Rare Disease Centers: What We Learned from Case Studies
DESCRIPTION:Join RDI for a public webinar exploring how rare disease centers are organized and how they function in practice across different countries and health system contexts. Rare disease centers play a critical role in improving diagnosis\, care coordination\, research\, and access to treatment for people living with rare diseases. Yet\, their structures\, levels of recognition\, funding models\, and integration into national and international networks vary widely. To better understand this diversity\, Rare Diseases International (RDI) conducted a series of qualitative case studies of selected rare disease centers worldwide. This public webinar will present key insights from the case studies. Through a panel discussion with representatives from participating centers\, the session will reflect on shared enablers and barriers and highlight practical lessons learned.
URL:https://canadianrdn.ca/event/rare-diseases-international-global-perspectives-on-rare-disease-centers-what-we-learned-from-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1771933530600.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260318T180000
DTEND;TZID=America/Edmonton:20260318T190000
DTSTAMP:20260409T084608
CREATED:20260311T225219Z
LAST-MODIFIED:20260311T225219Z
UID:9928-1773856800-1773860400@canadianrdn.ca
SUMMARY:CIHR Café Scientifique: Chronic Pain and Primary Care
DESCRIPTION:Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST \nTogether you’ll explore what chronic pain looks like for young people and their families\, how pain can occur across generations\, and why quality care in our communities matters.
URL:https://canadianrdn.ca/event/cihr-cafe-scientifique-chronic-pain-and-primary-care/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773157132669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260319T190000
DTEND;TZID=America/Toronto:20260319T200000
DTSTAMP:20260409T084608
CREATED:20260316T133623Z
LAST-MODIFIED:20260316T133623Z
UID:9941-1773946800-1773950400@canadianrdn.ca
SUMMARY:People's Perspectives: Living with Loeys-Dietz Syndrome
DESCRIPTION:For the first time\, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion.
URL:https://canadianrdn.ca/event/peoples-perspectives-living-with-loeys-dietz-syndrome/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773507672043.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T110000
DTSTAMP:20260409T084608
CREATED:20260311T230004Z
LAST-MODIFIED:20260311T230004Z
UID:9937-1774432800-1774436400@canadianrdn.ca
SUMMARY:PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
DESCRIPTION:Save the date on *March 25th 2026*  for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-patient-partners-in-learning-health-systems-the-centre-for-digital-health-evaluation-experience/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772648035669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T120000
DTSTAMP:20260409T084608
CREATED:20260316T133840Z
LAST-MODIFIED:20260316T133840Z
UID:9944-1774432800-1774440000@canadianrdn.ca
SUMMARY:Gene Therapy for IEI: It's Taken Us So Long 'Cause We've Got So Far To Come
DESCRIPTION:Moderated by Dr. Jordan Orange\, this important conversation will explore the progress\, promise\, and future of gene therapy for Inborn Errors of Immunity.
URL:https://canadianrdn.ca/event/gene-therapy-for-iei-its-taken-us-so-long-cause-weve-got-so-far-to-come/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772805626074.jpg
END:VEVENT
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