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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251104T053000
DTEND;TZID=America/Edmonton:20251104T073000
DTSTAMP:20260409T170938
CREATED:20251027T200736Z
LAST-MODIFIED:20251027T200736Z
UID:9094-1762234200-1762241400@canadianrdn.ca
SUMMARY:Screen4Rare: Making AI Diagnosis Understandable
DESCRIPTION:A co-creation workshop  inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable\, trustworthy and human.
URL:https://canadianrdn.ca/event/screen4rare-making-ai-diagnosis-understandable/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251104T130000
DTEND;TZID=America/Toronto:20251106T170000
DTSTAMP:20260409T170938
CREATED:20251014T175501Z
LAST-MODIFIED:20251014T175501Z
UID:9011-1762261200-1762448400@canadianrdn.ca
SUMMARY:Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
DESCRIPTION:This will include presentations and panel discussions focused on current scientific findings\, the opportunities to strengthen research design\, and the need to create more inclusive and accessible research spaces.
URL:https://canadianrdn.ca/event/canadian-collaborative-conference-on-myalgic-encephalomyelitis-me/
CATEGORIES:Conferences,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251105T060000
DTEND;TZID=America/Edmonton:20251105T080000
DTSTAMP:20260409T170938
CREATED:20251006T202535Z
LAST-MODIFIED:20251006T202535Z
UID:8955-1762322400-1762329600@canadianrdn.ca
SUMMARY:Webinar: Health Financing & Social Health Protection for Rare Diseases
DESCRIPTION:Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that concretely promote effective health coverage\, increased access and adequate financial protection for people living with rare diseases.
URL:https://canadianrdn.ca/event/webinar-health-financing-social-health-protection-for-rare-diseases/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758185385885.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251107T170000
DTSTAMP:20260409T170938
CREATED:20251014T175245Z
LAST-MODIFIED:20251014T175245Z
UID:9008-1762502400-1762534800@canadianrdn.ca
SUMMARY:The McMaster Immune Thrombocytopenia (ITP) Summit 2025
DESCRIPTION:By attending this activity\, participants will be able to: \n\nCompare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).\nEvaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.\nInterpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.\nDiscuss the role of antibody\, complement\, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.
URL:https://canadianrdn.ca/event/the-mcmaster-immune-thrombocytopenia-itp-summit-2025/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/ITP25_website_card-1-768x432-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20260409T170938
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251113T100000
DTEND;TZID=America/Edmonton:20251113T113000
DTSTAMP:20260409T170938
CREATED:20250924T182037Z
LAST-MODIFIED:20250924T182037Z
UID:8916-1763028000-1763033400@canadianrdn.ca
SUMMARY:Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
DESCRIPTION:Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut\, Assistant Professor and regular researcher at the CHUM Research Centre\, Université de Montréal \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/le-poisson-zebre-pour-accelerer-la-recherche-sur-les-maladies-rares/
CATEGORIES:Patient Focused,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251121T060000
DTEND;TZID=America/Edmonton:20251121T073000
DTSTAMP:20260409T170938
CREATED:20251024T183912Z
LAST-MODIFIED:20251024T183913Z
UID:9087-1763704800-1763710200@canadianrdn.ca
SUMMARY:IP Strategies for Repurposing
DESCRIPTION:Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes. \n 
URL:https://canadianrdn.ca/event/ip-strategies-for-repurposing/
CATEGORIES:Industry,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251122T110000
DTEND;TZID=America/Toronto:20251122T160000
DTSTAMP:20260409T170938
CREATED:20251103T203915Z
LAST-MODIFIED:20251103T203915Z
UID:9119-1763809200-1763827200@canadianrdn.ca
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
DESCRIPTION:Bringing together neuroscience researchers\, patients\, advocates and caregivers to highlight brain health research in an accessible format.
URL:https://canadianrdn.ca/event/bridging-gaps-a-patient-oriented-neuroscience-research-symposium/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T180000
DTEND;TZID=America/Toronto:20251128T190000
DTSTAMP:20260409T170938
CREATED:20251113T225719Z
LAST-MODIFIED:20251113T225719Z
UID:9156-1764180000-1764356400@canadianrdn.ca
SUMMARY:Hope on the Horizon: Trials\, Treatments and Therapies for DMD\, DM1 & MG
DESCRIPTION:Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! \nThese webinars are geared towards family members and people living with NMDs.\nJoin us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy\, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!
URL:https://canadianrdn.ca/event/hope-on-the-horizon-trials-treatments-and-therapies-for-dmd-dm1-mg/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
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