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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20260416T170000
DTEND;TZID=America/Toronto:20260416T180000
DTSTAMP:20260403T131802
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UID:10082-1776358800-1776362400@canadianrdn.ca
SUMMARY:CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
DESCRIPTION:Over the past few weeks\, youth from across Canada have come together to explore equity\, diversity\, inclusion\, decolonization\, and Indigenization in brain-based developmental disability research. Now\, they are ready to share what they have created!
URL:https://canadianrdn.ca/event/child-bright-network-edi-di-youth-empowerment-program-knowledge-mobilization-showcase/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774903947681.jpg
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DTSTART;TZID=America/Toronto:20260421T190000
DTEND;TZID=America/Toronto:20260421T200000
DTSTAMP:20260403T131802
CREATED:20260401T193125Z
LAST-MODIFIED:20260401T193125Z
UID:10079-1776798000-1776801600@canadianrdn.ca
SUMMARY:Ontario Rare Action Group Information Meeting
DESCRIPTION:Join the Ontario Rare Action Group information meeting April 21\, 2026. They will be talking to you about what they’ve been up to the last month and how the community is continuing to grow.
URL:https://canadianrdn.ca/event/ontario-rare-action-group-information-meeting/
CATEGORIES:Caregiver,Patient Focused,Policy,Provincial,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774982101843.jpg
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DTSTART;TZID=America/Toronto:20260422T120000
DTEND;TZID=America/Toronto:20260422T130000
DTSTAMP:20260403T131802
CREATED:20260401T193543Z
LAST-MODIFIED:20260401T193543Z
UID:10086-1776859200-1776862800@canadianrdn.ca
SUMMARY:Building Business Cases for Genomics
DESCRIPTION:In this panel discussion and interactive Q & A with Dr. Colleen Campbell\, Andrea Spencer\, MBA\, CHE\, CMP (Prosci)\, Megan Trinkle-Knotts\, and host DNA Today‘s Kira Dineen\, MS\, LCGC\, CG(ASCP)CM\, genetic counselling directors\, hospital consultants\, and business case experts will address how to build compelling\, evidence-backed business cases.
URL:https://canadianrdn.ca/event/building-business-cases-for-genomics/
CATEGORIES:Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774993937888.jpg
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DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260403T131802
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
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DTSTART;TZID=America/Toronto:20260425T080000
DTEND;TZID=America/Toronto:20260426T170000
DTSTAMP:20260403T131802
CREATED:20260401T192005Z
LAST-MODIFIED:20260401T192005Z
UID:10061-1777104000-1777222800@canadianrdn.ca
SUMMARY:ALS Disrupt
DESCRIPTION:A bold new meeting designed to bring together global leaders in #ALS for open\, timely\, and collaborative discussions that move the field forward.
URL:https://canadianrdn.ca/event/als-disrupt/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773237619453-1.jpg
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