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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
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DTSTART:20230312T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241008T080000
DTEND;TZID=America/Chicago:20241008T170000
DTSTAMP:20260405T134830
CREATED:20240917T220608Z
LAST-MODIFIED:20240917T220608Z
UID:5826-1728374400-1728406800@canadianrdn.ca
SUMMARY:PxP Webinar 3 2024: Different opportunities to engage as a patient partner
DESCRIPTION:The webinar series is all about patient engagement in health research\, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying a new treatment or management program) can be a great way to help advance healthcare\, but the role would not generally include giving input into the research study itself.
URL:https://canadianrdn.ca/event/pxp-webinar-3-2024-different-opportunities-to-engage-as-a-patient-partner/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241008T120000
DTEND;TZID=America/Chicago:20241008T130000
DTSTAMP:20260405T134830
CREATED:20241001T220753Z
LAST-MODIFIED:20241001T220753Z
UID:5948-1728388800-1728392400@canadianrdn.ca
SUMMARY:Understanding the importance of the social determinants of health for children and youth with disabilities
DESCRIPTION:
URL:https://canadianrdn.ca/event/understanding-the-importance-of-the-social-determinants-of-health-for-children-and-youth-with-disabilities/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241009T130000
DTEND;TZID=America/New_York:20241009T150000
DTSTAMP:20260405T134830
CREATED:20240923T214350Z
LAST-MODIFIED:20240923T214350Z
UID:5918-1728478800-1728486000@canadianrdn.ca
SUMMARY:ALS Canada Webinar: Medical Assistance in Dying (MAID) in Canada
DESCRIPTION:
URL:https://canadianrdn.ca/event/als-canada-webinar-medical-assistance-in-dying-maid-in-canada/
CATEGORIES:Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241015T120000
DTEND;TZID=America/Chicago:20241015T130000
DTSTAMP:20260405T134830
CREATED:20241004T013111Z
LAST-MODIFIED:20241004T013111Z
UID:6004-1728993600-1728997200@canadianrdn.ca
SUMMARY:Stem Cell Therapies for Neuromuscular Disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/stem-cell-therapies-for-neuromuscular-disorders/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Muscular.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241016T150000
DTEND;TZID=America/Chicago:20241016T160000
DTSTAMP:20260405T134830
CREATED:20241001T220430Z
LAST-MODIFIED:20241001T220430Z
UID:5945-1729090800-1729094400@canadianrdn.ca
SUMMARY:Supporting the Mental Health Needs of Rare Disease Patients\, Families\, and Communities
DESCRIPTION:During this session\, Dr. Al Freedman will provide tools and resources for supporting the mental health needs of rare disease patients\, families and communities.
URL:https://canadianrdn.ca/event/supporting-the-mental-health-needs-of-rare-disease-patients-families-and-communities/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241022T150000
DTEND;TZID=America/Chicago:20241022T160000
DTSTAMP:20260405T134830
CREATED:20240924T223058Z
LAST-MODIFIED:20240924T223058Z
UID:5921-1729609200-1729612800@canadianrdn.ca
SUMMARY:Update on treatment in Pompe disease
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on treatment updates in Pompe disease. This case-based rounds webinar is for Canadian clinicians\, academics\, and trainees with an interest in neuromuscular disease.
URL:https://canadianrdn.ca/event/update-on-treatment-in-pompe-disease/
CATEGORIES:National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241022T190000
DTEND;TZID=America/Chicago:20241022T200000
DTSTAMP:20260405T134830
CREATED:20240819T213841Z
LAST-MODIFIED:20240819T213841Z
UID:5208-1729623600-1729627200@canadianrdn.ca
SUMMARY:'Neurogeriatric and neurological aspects in palliative care of MSA\, PSP and advanced PD' by Martin Klietz
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/neurogeriatric-and-neurological-aspects-in-palliative-care-of-msa-psp-and-advanced-pd-by-martin-klietz/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241023T140000
DTEND;TZID=Europe/Paris:20241023T153000
DTSTAMP:20260405T134830
CREATED:20240819T214318Z
LAST-MODIFIED:20240819T214318Z
UID:5213-1729692000-1729697400@canadianrdn.ca
SUMMARY:EURORDIS Mental Health & Wellbeing Open Webinar
DESCRIPTION:
URL:https://canadianrdn.ca/event/eurordis-mental-health-wellbeing-open-webinar/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241024T080000
DTEND;TZID=UTC:20241025T170000
DTSTAMP:20260405T134830
CREATED:20240809T212727Z
LAST-MODIFIED:20241004T014606Z
UID:5097-1729756800-1729875600@canadianrdn.ca
SUMMARY:The 4th Annual Canadian Children\, Youth and Communities (CCYC) Health In | Equity Conference
DESCRIPTION:The Canadian Children\, Youth and Communities (CCYC) In | Equity Conference is an interdisciplinary conference designed to bring together pediatric health and allied health care professionals to address health care inequities from birth to adolescence using a family-centred approach. \nThis conference explores health equity topics specific to marginalized communities in the Canadian health care system and offers approaches that can be implemented to address barriers in accessing healthcare for under serviced\, high-risk and economically disadvantaged children and youth.
URL:https://canadianrdn.ca/event/the-4th-annual-canadian-children-youth-and-communities-ccyc-health-in-equity-conference/
CATEGORIES:Caregiver,Conferences,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Youth-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241024T130000
DTEND;TZID=America/Chicago:20241024T140000
DTSTAMP:20260405T134830
CREATED:20241004T221032Z
LAST-MODIFIED:20241004T221032Z
UID:6029-1729774800-1729778400@canadianrdn.ca
SUMMARY:Epilepsy Treatments in Rett Syndrome
DESCRIPTION:The International Rett Syndrome Foundation (IRSF) invites you to this live RettEd session with a goal of educating families on an approach to the treatment of epilepsy in Rett syndrome
URL:https://canadianrdn.ca/event/epilepsy-treatments-in-rett-syndrome/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241026T090000
DTEND;TZID=America/Chicago:20241026T100000
DTSTAMP:20260405T134830
CREATED:20240924T223454Z
LAST-MODIFIED:20240924T223454Z
UID:5924-1729933200-1729936800@canadianrdn.ca
SUMMARY:L4L Session: Sickle Cell Disease and Complications including Stroke
DESCRIPTION:The SCAGO is excited to announce the October Learning for Life session “Sickle Cell Disease and Complications including Stroke” slated for Sat. October 26th! Attendees will leave the session with a rich knowledge of how to prevent complications of Sickle Cell Disease and improve their health outcomes.
URL:https://canadianrdn.ca/event/l4l-session-sickle-cell-disease-and-complications-including-stroke/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241031T120000
DTEND;TZID=America/Denver:20241031T130000
DTSTAMP:20260405T134830
CREATED:20240828T231253Z
LAST-MODIFIED:20240828T231253Z
UID:5502-1730376000-1730379600@canadianrdn.ca
SUMMARY:CRDN Townhall – An Update on the Co-Development of our Strategic Plan
DESCRIPTION:Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders\, experts\, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its draft strategic plan. Following the presentation\, there will be an opportunity to ask questions and contribute to the co-development of CRDN’s strategic plan. Whether you are a patient\, caregiver\, researcher\, healthcare provider\, advocate\, or other member of the rare disease community\, your voice is vital in building a more integrated\, inclusive\, and compassionate approach to rare disease care and research in Canada. Register now to be part of this conversation!
URL:https://canadianrdn.ca/event/crdn-townhall-an-update-on-the-co-development-of-our-strategic-plan/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Provincial,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/Town-Hall-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T080000
DTEND;TZID=America/Chicago:20241102T170000
DTSTAMP:20260405T134830
CREATED:20241004T220842Z
LAST-MODIFIED:20241004T220842Z
UID:6025-1730534400-1730566800@canadianrdn.ca
SUMMARY:Virtual Event: Understanding EDS/HSD+ Symptomology\, Diagnoses and Treatment - A Guide for Primary Care Practitioners & Physician Specialists
DESCRIPTION:This Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain in their clinical practice\, which may or may not be related to Ehlers-Danlos Syndromes or hypermobility Spectrum Disorders (EDS/HSD+).
URL:https://canadianrdn.ca/event/virtual-event-understanding-eds-hsd-symptomology-diagnoses-and-treatment-a-guide-for-primary-care-practitioners-physician-specialists/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/EDS-scaled.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T090000
DTEND;TZID=America/Chicago:20241102T180000
DTSTAMP:20260405T134830
CREATED:20241017T224822Z
LAST-MODIFIED:20241017T224822Z
UID:6102-1730538000-1730570400@canadianrdn.ca
SUMMARY:EDS ECHO Summit: Diet and Nutrition
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Diet and Nutrition\, a virtual event held on November 2\, 2024. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals.  
URL:https://canadianrdn.ca/event/eds-echo-summit-diet-and-nutrition/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Web_banner-2048x634-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241105T190000
DTEND;TZID=America/Chicago:20241105T200000
DTSTAMP:20260405T134830
CREATED:20240819T213202Z
LAST-MODIFIED:20240819T213202Z
UID:5200-1730833200-1730836800@canadianrdn.ca
SUMMARY:Diagnostic approach to childhood-onset chorea' by Juan Darío Ortigoza-Escobar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/diagnostic-approach-to-childhood-onset-chorea-by-juan-dario-ortigoza-escobar/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241106T123000
DTEND;TZID=America/Chicago:20241106T133000
DTSTAMP:20260405T134830
CREATED:20241031T212323Z
LAST-MODIFIED:20241031T212323Z
UID:6877-1730896200-1730899800@canadianrdn.ca
SUMMARY:CF Canada Community Townhall
DESCRIPTION:Register today! Join the Community Townhall Meeting on Wednesday\, November 6\, 12:30PM EST/ 9:30 AM PST. You will hear from CF Canada’s President and CEO Kelly Grover on the latest updates in CF research and care\, be inspired by stories of how Canadians CF community members are shaping a future without limits and learn how you can help.
URL:https://canadianrdn.ca/event/cf-canada-community-townhall/
CATEGORIES:Events,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/CFcan_bil_rgb_TM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241107T080000
DTEND;TZID=America/Denver:20241107T090000
DTSTAMP:20260405T134830
CREATED:20240830T231441Z
LAST-MODIFIED:20240830T231441Z
UID:5531-1730966400-1730970000@canadianrdn.ca
SUMMARY:IPNA Webinar: 2024 ISPD guidelines on peritonitis and exit site infection in children receiving peritoneal dialysis
DESCRIPTION:
URL:https://canadianrdn.ca/event/ipna-webinar-2024-ispd-guidelines-on-peritonitis-and-exit-site-infection-in-children-receiving-peritoneal-dialysis/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241107T130000
DTEND;TZID=America/Chicago:20241107T140000
DTSTAMP:20260405T134830
CREATED:20241031T211720Z
LAST-MODIFIED:20241031T211720Z
UID:6874-1730984400-1730988000@canadianrdn.ca
SUMMARY:Measuring the Value of Genomics in Healthcare
DESCRIPTION:This virtual workshop will focus on exchanging strategies\, tools and experience in measuring the value of genomic testing in healthcare. Demonstrating value is key in informing health technology assessments (HTAs)\, clinical practice and policy decisions and yet standardized outcome measures and frameworks are still in their infancy. The task of demonstrating value is further complicated by genomic technologies and their clinical applications continuing to evolve at pace.
URL:https://canadianrdn.ca/event/measuring-the-value-of-genomics-in-healthcare/
CATEGORIES:Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/22ddcbc7-2021-4d95-a9f8-02c0612d0602.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241107T190000
DTEND;TZID=America/New_York:20241107T200000
DTSTAMP:20260405T134830
CREATED:20241106T224244Z
LAST-MODIFIED:20241106T224244Z
UID:6955-1731006000-1731009600@canadianrdn.ca
SUMMARY:Nutrition for your Energy and Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/nutrition-for-your-energy-and-health/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241108T080000
DTEND;TZID=UTC:20241109T170000
DTSTAMP:20260405T134830
CREATED:20241017T212626Z
LAST-MODIFIED:20241017T212626Z
UID:6093-1731052800-1731171600@canadianrdn.ca
SUMMARY:Global Congress of the GANSID: November 8-9\, 2024
DESCRIPTION:GANSID Congress 2024 is the 2nd Congress of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) taking place virtually to ensure all clinicians\, people with hereditary blood disorders\, and global advocates can participate from any part of the world.
URL:https://canadianrdn.ca/event/global-congress-of-the-gansid-november-8-9-2024/
CATEGORIES:Conferences,Healthcare,International,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/462814113_1091299899663904_8574680770729088772_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241108T160000
DTEND;TZID=America/Halifax:20241108T170000
DTSTAMP:20260405T134830
CREATED:20241106T224356Z
LAST-MODIFIED:20241106T224356Z
UID:6958-1731081600-1731085200@canadianrdn.ca
SUMMARY:Understanding Your Lab Results
DESCRIPTION:Making sense of your lab tests involves more than just knowing why the test is done. It’s also important to understand what the results mean and what can affect the results.  Join the webinar to better understand how your results affect your treatment and help you to manage your MDS\, AA or PNH.
URL:https://canadianrdn.ca/event/understanding-your-lab-results/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241113T110000
DTEND;TZID=America/Chicago:20241113T120000
DTSTAMP:20260405T134830
CREATED:20241105T222729Z
LAST-MODIFIED:20241112T223415Z
UID:6940-1731495600-1731499200@canadianrdn.ca
SUMMARY:Neuroinclusion at Work: Six Principles for Inclusion
DESCRIPTION:In this presentation\, facilitators will walk attendees through Six Principles that promote more supportive and\, ultimately\, successful work environments. In addition to explaining the basic concepts of each principle\, attendees will receive practical\, actionable ideas and strategies to apply the principles in your own workplace.
URL:https://canadianrdn.ca/event/neuroinclusion-at-work-six-principles-for-inclusion/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241113T180000
DTEND;TZID=America/Chicago:20241113T190000
DTSTAMP:20260405T134830
CREATED:20241017T224617Z
LAST-MODIFIED:20241017T224617Z
UID:6099-1731520800-1731524400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 webinar: Healthcare professionals
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-webinar-healthcare-professionals/
CATEGORIES:Healthcare,International,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Healthcare-professionals-.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241114T160000
DTEND;TZID=Europe/Paris:20241114T170000
DTSTAMP:20260405T134830
CREATED:20241031T213203Z
LAST-MODIFIED:20241031T213203Z
UID:6883-1731600000-1731603600@canadianrdn.ca
SUMMARY:'DBS in Dystonia - the network perspective' by Juho Joutsa
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/dbs-in-dystonia-the-network-perspective-by-juho-joutsa/
CATEGORIES:Healthcare,International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241118T143000
DTEND;TZID=Europe/Paris:20241118T160000
DTSTAMP:20260405T134830
CREATED:20241118T225114Z
LAST-MODIFIED:20241118T225114Z
UID:7010-1731940200-1731945600@canadianrdn.ca
SUMMARY:The impact of rare conditions on self-identity
DESCRIPTION:Living with a rare condition can significantly impact a person’s identity\, as they may struggle to separate who they are from their condition. This internal conflict is often intensified during formative years\, affecting self-perception and even sexuality. The stigma and discrimination associated with rare diseases\, especially genetic ones\, add further challenges. Carriers of genetic conditions face their own fears\, such as discrimination\, complicating their sense of self-worth. However\, finding a sense of identity beyond the disease is vital. Connecting with others in similar situations can be transformative\, offering a sense of belonging that helps individuals see themselves beyond their condition. This webinar will explore the impact of rare diseases on identity from various perspectives\, including the experiences of individuals\, families\, and those living with different conditions.
URL:https://canadianrdn.ca/event/the-impact-of-rare-conditions-on-self-identity/
CATEGORIES:Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241119T080000
DTEND;TZID=America/Denver:20241119T090000
DTSTAMP:20260405T134830
CREATED:20240830T231620Z
LAST-MODIFIED:20240830T231620Z
UID:5533-1732003200-1732006800@canadianrdn.ca
SUMMARY:ERKNet Webinar: "Highlights from the KDIGO Clinical Practice Guideline for ADPKD" by Olivier Devuyst
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-highlights-from-the-kdigo-clinical-practice-guideline-for-adpkd-by-olivier-devuyst/
CATEGORIES:Clinical Trials,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241119T150000
DTEND;TZID=Europe/Paris:20241119T160000
DTSTAMP:20260405T134830
CREATED:20241031T213420Z
LAST-MODIFIED:20241031T213420Z
UID:6886-1732028400-1732032000@canadianrdn.ca
SUMMARY:'Autonomic dysfunction in movement disorders' by Pietro Guaraldi
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/autonomic-dysfunction-in-movement-disorders-by-pietro-guaraldi/
CATEGORIES:International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241120T130000
DTEND;TZID=America/Chicago:20241120T140000
DTSTAMP:20260405T134830
CREATED:20241107T230330Z
LAST-MODIFIED:20241107T230330Z
UID:6970-1732107600-1732111200@canadianrdn.ca
SUMMARY:ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials.
URL:https://canadianrdn.ca/event/als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241120T170000
DTEND;TZID=Europe/Paris:20241120T180000
DTSTAMP:20260405T134830
CREATED:20241119T234913Z
LAST-MODIFIED:20241119T234913Z
UID:7016-1732122000-1732125600@canadianrdn.ca
SUMMARY:Webinar on ''mental health and behavioral difficulties in children with rare neonatal surgical disease''
DESCRIPTION:You are invited to join an insightful webinar hosted by ERNICA\, eUROGEN\, and EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical disease: assessment\, outcomes and implications for research\, policy and practice’. \nThis interactive session will raise awareness of the mental health and behavioral challenges faced by children with rare neonatal surgical conditions\,
URL:https://canadianrdn.ca/event/webinar-on-mental-health-and-behavioral-difficulties-in-children-with-rare-neonatal-surgical-disease/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241121T160000
DTEND;TZID=Europe/Paris:20241121T170000
DTSTAMP:20260405T134830
CREATED:20241031T213608Z
LAST-MODIFIED:20241031T213608Z
UID:6888-1732204800-1732208400@canadianrdn.ca
SUMMARY:Muscle pathology of storage diseases with focus on plyglucosan and lipid storage myopathies
DESCRIPTION:Delivered by Prof. Anders Oldfors (University of Gothenburg\, Sweden) on November 21st 2024 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel.
URL:https://canadianrdn.ca/event/muscle-pathology-of-storage-diseases-with-focus-on-plyglucosan-and-lipid-storage-myopathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
END:VCALENDAR