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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/Edmonton
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260617T120000
DTEND;TZID=America/Edmonton:20260617T133000
DTSTAMP:20260604T174114Z
CREATED:20260604T144508Z
LAST-MODIFIED:20260604T174114Z
UID:10844-1781697600-1781703000@canadianrdn.ca
SUMMARY:Cystic Fibrosis Canada's 2026 Webinar: Spotlight on CF Research 2026
DESCRIPTION:Register now for Cystic Fibrosis Canada’s 2026 Spotlight on CF Research Webinar\, offered in English and French with live simultaneous interpretation.
URL:https://canadianrdn.ca/event/cystic-fibrosis-canadas-2026-webinar-spotlight-on-cf-research-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/703763071_1393256339501763_581508815341888921_n.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260618T060000
DTEND;TZID=America/Edmonton:20260618T070000
DTSTAMP:20260527T195114Z
CREATED:20260527T160853Z
LAST-MODIFIED:20260527T195114Z
UID:10694-1781762400-1781766000@canadianrdn.ca
SUMMARY:Rare Diseases International-Innovative Models Reshaping Access to Diagnosis\, Treatment and Care - Practical examples and global case studies
DESCRIPTION:Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis\, treatment\, and care remains out of reach for millions of people living with a rare disease. \nThis webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms\, including venture philanthropy\, blended finance\, public-private partnerships\, solidarity funds\, and outcome-based models. Through real-world examples\, participants will gain insight into what makes these approaches work\, the conditions needed for success\, and how models can be adapted or combined across different health systems.
URL:https://canadianrdn.ca/event/rare-diseases-internationa-innovative-models-reshaping-access-to-diagnosis-treatment-and-care-practical-examples-and-global-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779876027736-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260623T120000
DTEND;TZID=America/Toronto:20260623T130000
DTSTAMP:20260604T174200Z
CREATED:20260604T144221Z
LAST-MODIFIED:20260604T174200Z
UID:10842-1782216000-1782219600@canadianrdn.ca
SUMMARY:CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
DESCRIPTION:Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of Canada’s Rare Disease Strategy
URL:https://canadianrdn.ca/event/cord-webinar-from-genomic-testing-readiness-to-rare-disease-system-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780406794177-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260626T070000
DTEND;TZID=America/Edmonton:20260626T080000
DTSTAMP:20260624T182340Z
CREATED:20260624T182340Z
LAST-MODIFIED:20260624T182340Z
UID:11079-1782457200-1782460800@canadianrdn.ca
SUMMARY:RARE REV-inar episode 027 - Living with systemic mastocytosis
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-rev-inar-episode-027-living-with-systemic-mastocytosis/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782115230643.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260706T070000
DTEND;TZID=America/Edmonton:20260706T090000
DTSTAMP:20260704T234158Z
CREATED:20260702T193008Z
LAST-MODIFIED:20260704T234158Z
UID:11234-1783321200-1783328400@canadianrdn.ca
SUMMARY:ERDERA Clinical Trial Call 2026: Information Webinar
DESCRIPTION:ERDERA will host an informational webinar on 6 July 2026. During this session\, participants will have the opportunity to hear directly from ERDERA experts\, who will present the objectives\, scope\, and requirements of the call\, and address questions from prospective applicants.
URL:https://canadianrdn.ca/event/erdera-clinical-trial-call-information-webinar/
CATEGORIES:Clinical Trials,Healthcare,International,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1782917672328.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260707T100000
DTEND;TZID=America/Toronto:20260707T110000
DTSTAMP:20260704T234131Z
CREATED:20260702T193159Z
LAST-MODIFIED:20260704T234131Z
UID:11237-1783418400-1783422000@canadianrdn.ca
SUMMARY:CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
DESCRIPTION:CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer questions on how to apply.
URL:https://canadianrdn.ca/event/webinar-for-canadian-applicants-to-the-erdera-clinical-trial-call-2026/
CATEGORIES:Clinical Trials,Healthcare,International,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/leaf-cihr-colour-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260708T110000
DTEND;TZID=America/Edmonton:20260708T120000
DTSTAMP:20260704T233610Z
CREATED:20260704T233610Z
LAST-MODIFIED:20260704T233610Z
UID:11341-1783508400-1783512000@canadianrdn.ca
SUMMARY:Spastic Paraplegia Foundation (SPF) TALKS w/ Dr Ziv Gan-Or/Neuro and Linda Lafontaine
DESCRIPTION:
URL:https://canadianrdn.ca/event/spastic-paraplegia-foundation-spf-talks-w-dr-ziv-gan-or-neuro-and-linda-lafontaine/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/image.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260709T120000
DTEND;TZID=America/Toronto:20260709T130000
DTSTAMP:20260702T193538Z
CREATED:20260624T182155Z
LAST-MODIFIED:20260702T193538Z
UID:11076-1783598400-1783602000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
DESCRIPTION:Register today for IMPaCT’s next webinar with Ami Baba\, PhD\, where she’ll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. \n✅ Identify who needs trial reporting guidelines\n✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews\n✅ Describe how SPIRIT-C\, CONSORT-C\, TIDieR-C\, and PRISMA-C can impact both upstream and downstream research processes
URL:https://canadianrdn.ca/event/impact-webinar-responsible-research-practices-how-reporting-guidelines-can-improve-child-health-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781796311513.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260714T100000
DTEND;TZID=America/Edmonton:20260714T110000
DTSTAMP:20260710T144840Z
CREATED:20260710T144840Z
LAST-MODIFIED:20260710T144840Z
UID:11375-1784023200-1784026800@canadianrdn.ca
SUMMARY:CORD Webinar: The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada
DESCRIPTION:CORD is pleased to invite you to our upcoming webinar\, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients\, caregivers\, clinicians\, researchers\, policy makers and health system leaders for a conversation on the real-world impacts of delayed diagnosis and fragmented care\, and what Canada can do to reduce the burden on families while building a more responsive rare disease system.
URL:https://canadianrdn.ca/event/cord-webinar-the-cost-of-waiting-socioeconomic-impact-of-rare-disease-in-canada/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1783432322800.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260714T103000
DTEND;TZID=America/Toronto:20260714T113000
DTSTAMP:20260702T193701Z
CREATED:20260702T161146Z
LAST-MODIFIED:20260702T193701Z
UID:11188-1784025000-1784028600@canadianrdn.ca
SUMMARY:DNA2RNA: Generative AI to Predict and Engineer Human Tissues and Cells
DESCRIPTION:Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about “Generative AI to Predict and Engineer Human Tissues and Cells”. 
URL:https://canadianrdn.ca/event/dna2rna-generative-ai-to-predict-and-engineer-human-tissues-and-cells/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/d2r_-_events_-_d2r_seminar_series_newsletter_banner_template-3-newsletter_2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260716T100000
DTEND;TZID=America/Edmonton:20260716T120000
DTSTAMP:20260624T182800Z
CREATED:20260624T182800Z
LAST-MODIFIED:20260624T182800Z
UID:11085-1784196000-1784203200@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation Live Webinar: Together for Progress
DESCRIPTION:Join the Kabuki Syndrome Foundation at their upcoming live webinar\, Together for Progress\, on July 16\, 2026. You can look forward to the latest updates on treatment development\, learn about new resources for families and clinicians\, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-live-webinar-together-for-progress/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781198318313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260702T193457Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260702T193457Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260724T080000
DTEND;TZID=America/Edmonton:20260724T090000
DTSTAMP:20260710T144656Z
CREATED:20260710T144656Z
LAST-MODIFIED:20260710T144656Z
UID:11372-1784880000-1784883600@canadianrdn.ca
SUMMARY:ERDERA Introductory Webinar: Situating ethics in the research continuum
DESCRIPTION:Join on 24 July for a free webinar and explore how ethics applies across different research activities\, illustrated through a real-world case study that brings the concepts to life.
URL:https://canadianrdn.ca/event/erdera-introductory-webinar-situating-ethics-in-the-research-continuum/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260728T100000
DTEND;TZID=America/Edmonton:20260728T110000
DTSTAMP:20260715T194531Z
CREATED:20260715T194531Z
LAST-MODIFIED:20260715T194531Z
UID:11378-1785232800-1785236400@canadianrdn.ca
SUMMARY:CORD Webinar: Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?
DESCRIPTION:Join CORD for an interactive 60-minute indicator lab exploring how Canada can measure progress in rare disease readiness. Together\, experts and participants will examine and rate key policy and delivery indicators to identify what matters most\, where data gaps exist\, and what a national readiness baseline could look like. This session focuses on building a Canada-wide picture of rare disease readiness\, not ranking provinces. Participants will help identify promising examples and shared opportunities for improvement as CORD develops a national readiness indicator inventory.
URL:https://canadianrdn.ca/event/cord-webinar-building-the-baseline-how-does-canada-measure-up-in-terms-of-rare-disease-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1784125132372.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260811T120000
DTEND;TZID=America/Toronto:20260811T133000
DTSTAMP:20260730T181325Z
CREATED:20260730T181325Z
LAST-MODIFIED:20260730T181325Z
UID:11408-1786449600-1786455000@canadianrdn.ca
SUMMARY:CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
DESCRIPTION:Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
URL:https://canadianrdn.ca/event/cord-from-readiness-to-action-the-capstone-consultation-before-the-rare-readiness-scorecard-launch/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1785351822684.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260819T130000
DTEND;TZID=America/Toronto:20260819T140000
DTSTAMP:20260730T182454Z
CREATED:20260730T182454Z
LAST-MODIFIED:20260730T182454Z
UID:11414-1787144400-1787148000@canadianrdn.ca
SUMMARY:ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials
URL:https://canadianrdn.ca/event/als-canada-als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260820T130000
DTEND;TZID=America/Toronto:20260820T140000
DTSTAMP:20260730T182604Z
CREATED:20260730T182604Z
LAST-MODIFIED:20260730T182604Z
UID:11417-1787230800-1787234400@canadianrdn.ca
SUMMARY:ALS Canada: Storytelling and Legacy Building for the ALS Community
DESCRIPTION:Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document your journey\, build connection through storytelling\, and preserve your story for the future.
URL:https://canadianrdn.ca/event/als-canada-storytelling-and-legacy-building-for-the-als-community/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
END:VEVENT
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