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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261015T110000
DTEND;TZID=America/Edmonton:20261015T120000
DTSTAMP:20260922T171018Z
CREATED:20260922T164806Z
LAST-MODIFIED:20260922T171018Z
UID:11637-1792062000-1792065600@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-2/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261016T120000
DTEND;TZID=America/Toronto:20261016T133000
DTSTAMP:20261001T190544Z
CREATED:20261001T190544Z
LAST-MODIFIED:20261001T190544Z
UID:11735-1792152000-1792157400@canadianrdn.ca
SUMMARY:CORD: Webinar 2: When Innovation Rewrites the Pathway
DESCRIPTION:From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies – so that screening\, diagnosis\, eligibility\, expertise\, delivery\, patient choice\, monitoring and learning do not have to be rebuilt after each access decision?
URL:https://canadianrdn.ca/event/cord-webinar-2-when-innovation-rewrites-the-pathway/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1790866766307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261019T080000
DTEND;TZID=America/Edmonton:20261019T090000
DTSTAMP:20261001T190421Z
CREATED:20261001T190421Z
LAST-MODIFIED:20261001T190421Z
UID:11732-1792396800-1792400400@canadianrdn.ca
SUMMARY:Rare Disease Day 2027 Launch Webinar
DESCRIPTION:EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. They are hosting two identical sessions on Monday 19 October 16:00 CEST and the next is Tuesday 20 October 09:00 CEST.
URL:https://canadianrdn.ca/event/rare-disease-day-2027-launch-webinar/
CATEGORIES:Healthcare,International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/2026-Mailings-Resources-2-1024x284-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T120000
DTEND;TZID=America/Toronto:20261118T140000
DTSTAMP:20261027T162658Z
CREATED:20261027T162658Z
LAST-MODIFIED:20261027T162658Z
UID:11848-1795003200-1795010400@canadianrdn.ca
SUMMARY:HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
DESCRIPTION:The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan:\n🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research.\n🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action.\n🔹 Core Questions Reflection Tool — to prompt researchers and data administrators to consider IDEA from the earliest stages of project design. \nHear the thinking behind each tool\, how they were developed and how they can be put to work in real-world settings.
URL:https://canadianrdn.ca/event/hdrn-canada-discussion-session-from-idea-to-action-three-new-tools-for-health-data-research/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792701356267.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T190000
DTEND;TZID=America/Toronto:20261118T200000
DTSTAMP:20261027T164427Z
CREATED:20261027T164427Z
LAST-MODIFIED:20261027T164427Z
UID:11866-1795028400-1795032000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Gene Therapy Education Night
DESCRIPTION:Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne\, sponsored by REGENXBIO\, Roche Canada\, and Solid Biosciences. Together with patient voices and clinical expertise\, they’ll help translate complex science into clear\, practical information you can use. \n 
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-gene-therapy-education-night/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792075442229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261125T190000
DTEND;TZID=America/Toronto:20261125T203000
DTSTAMP:20261027T164901Z
CREATED:20261027T164901Z
LAST-MODIFIED:20261027T164901Z
UID:11872-1795633200-1795638600@canadianrdn.ca
SUMMARY:CASL-CaNAL Autoimmune Liver Disease Case Spotlight Series Third Edition
DESCRIPTION:The Canadian Association for the Study of the Liver (CASL)\, in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL)\, is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital’s Autoimmune and Rare Liver Disease Program. The activity is accredited for continuing medical education.
URL:https://canadianrdn.ca/event/casl-canal-autoimmune-liver-disease-case-spotlight-series-third-edition/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/CASL-CaNAL-AILD-Pan-Canadian-Webinar-Series-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261126T110000
DTEND;TZID=America/Edmonton:20261126T120000
DTSTAMP:20260922T170955Z
CREATED:20260922T170955Z
LAST-MODIFIED:20260922T170955Z
UID:11641-1795690800-1795694400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-3/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261214T070000
DTEND;TZID=America/Edmonton:20261214T080000
DTSTAMP:20261027T163327Z
CREATED:20261027T163327Z
LAST-MODIFIED:20261027T163327Z
UID:11854-1797231600-1797235200@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2027: Information Webinar
DESCRIPTION:This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2027-information-webinar/
CATEGORIES:Clinical Trials,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/ERDERA-funding-visual-1-1024x724-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261214T120000
DTEND;TZID=America/Edmonton:20261214T123000
DTSTAMP:20261027T163918Z
CREATED:20261027T163918Z
LAST-MODIFIED:20261027T163918Z
UID:11860-1797249600-1797251400@canadianrdn.ca
SUMMARY:CFRD in 30 Minutes
DESCRIPTION:Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. \nJoin Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for CFRD in 30 Minutes\, a short\, practical webinar for people with CF\, families and caregivers.
URL:https://canadianrdn.ca/event/cfrd-in-30-minutes/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792610398406.jpg
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