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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART:20261101T080000
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260820T130000
DTEND;TZID=America/Toronto:20260820T140000
DTSTAMP:20260730T182604Z
CREATED:20260730T182604Z
LAST-MODIFIED:20260730T182604Z
UID:11417-1787230800-1787234400@canadianrdn.ca
SUMMARY:ALS Canada: Storytelling and Legacy Building for the ALS Community
DESCRIPTION:Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document your journey\, build connection through storytelling\, and preserve your story for the future.
URL:https://canadianrdn.ca/event/als-canada-storytelling-and-legacy-building-for-the-als-community/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260909T080000
DTEND;TZID=America/Toronto:20260911T170000
DTSTAMP:20260826T202920Z
CREATED:20260826T202920Z
LAST-MODIFIED:20260826T202920Z
UID:11552-1788940800-1789146000@canadianrdn.ca
SUMMARY:Global Genes: RARE Drug Development Symposium
DESCRIPTION:Join Global Genes virtually from September 9 – 11\, 2026 and access high-impact sessions directly from your home or office. \nWhat’s included in the Live Stream:\n2 Fireside Chats\n6 General Sessions\nKeynote Talks\nPitch Perfect Session \nConnect with advocates\, researchers\, and leaders shaping the future of rare drug development.
URL:https://canadianrdn.ca/event/global-genes-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1787775215021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260917T090000
DTEND;TZID=America/Edmonton:20260917T100000
DTSTAMP:20260910T155343Z
CREATED:20260910T155343Z
LAST-MODIFIED:20260910T155343Z
UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260910T155541Z
CREATED:20260910T155541Z
LAST-MODIFIED:20260910T155541Z
UID:11621-1790247600-1790251200@canadianrdn.ca
SUMMARY:Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
DESCRIPTION:Drawing on Canada’s 2021 Census of Population\, Kienan will discuss Quantifiable Indigenous Concepts\, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people in the Status Indian population.
URL:https://canadianrdn.ca/event/health-data-research-network-canada-quantifiable-indigenous-concepts-increasing-precision-of-population-analysis-by-including-indian-act-legislation/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1787602896646.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260922T164651Z
CREATED:20260922T164651Z
LAST-MODIFIED:20260922T164651Z
UID:11634-1790247600-1790251200@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789154047611-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T060000
DTEND;TZID=America/Edmonton:20260929T070000
DTSTAMP:20260910T154559Z
CREATED:20260910T154559Z
LAST-MODIFIED:20260910T154559Z
UID:11611-1790661600-1790665200@canadianrdn.ca
SUMMARY:Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
DESCRIPTION:This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility\, governance\, stakeholder alignment\, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into Universal Health Coverage frameworks and long-term national strategies\, and to the realities of low- and middle-income settings where financing gaps are most acute.
URL:https://canadianrdn.ca/event/rare-diseases-international-innovative-financing-for-rare-diseases-from-concept-to-implementation/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788252678497.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T100000
DTEND;TZID=America/Edmonton:20260929T120000
DTSTAMP:20260922T164330Z
CREATED:20260922T164330Z
LAST-MODIFIED:20260922T164330Z
UID:11631-1790676000-1790683200@canadianrdn.ca
SUMMARY:CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
DESCRIPTION:Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy\, what can we learn from Phase 1\, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia\, thalassemia and sickle cell disease\, examining diagnosis\, specialist care\, access to therapies\, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
URL:https://canadianrdn.ca/event/cord-webinar-1-how-readiness-is-built-lessons-from-canadian-rare-disease-pathways/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789739264388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T110000
DTEND;TZID=America/Edmonton:20260929T123000
DTSTAMP:20260910T155159Z
CREATED:20260910T155159Z
LAST-MODIFIED:20260910T155159Z
UID:11615-1790679600-1790685000@canadianrdn.ca
SUMMARY:Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
DESCRIPTION:In acknowledgement of the National Day for Truth and Reconciliation\, this virtual panel will centre the voices\, experiences\, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving\, culture\, community\, and reconciliation.
URL:https://canadianrdn.ca/event/indigenous-caregivers-collective-icc-virtual-panel-indigenous-values-in-care/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788281843629.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T123000
DTEND;TZID=America/Edmonton:20260929T133000
DTSTAMP:20260910T154339Z
CREATED:20260910T154339Z
LAST-MODIFIED:20260910T154339Z
UID:11608-1790685000-1790688600@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
DESCRIPTION:The Indigenous Health Office invites you to attend “Anti-Indigenous Racism in the Emergency Department”\, a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation-anti-indigenous-racism-in-the-emergency-department/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788891496595.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261006T110000
DTEND;TZID=America/Edmonton:20261006T120000
DTSTAMP:20261001T185808Z
CREATED:20261001T185808Z
LAST-MODIFIED:20261001T185808Z
UID:11726-1791284400-1791288000@canadianrdn.ca
SUMMARY:RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
DESCRIPTION:This webinar will provide a practical\, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs\, such as gene therapy products\, significantly differ from the traditional therapies (i.e.\, small molecule drugs\, biologics\, etc.). Therefore\, pharmacies require tailored workflows from the initial storage\, documentation and handling\, \, as well as chain-of-custody consideration.
URL:https://canadianrdn.ca/event/rarekids-can-logistics-of-atmp-workflows-for-pharmacy-teams/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9a37b757-49b5-4c82-bf34-f3a1e20eba1c.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261006T170000
DTEND;TZID=America/Toronto:20261006T180000
DTSTAMP:20260929T163857Z
CREATED:20260929T163857Z
LAST-MODIFIED:20260929T163857Z
UID:11689-1791306000-1791309600@canadianrdn.ca
SUMMARY:NMD4C and MDC: CPD-Accredited Webinar | DM1 Clinical and Translational Research Updates
DESCRIPTION:NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd4c-and-mdc-cpd-accredited-webinar-dm1-clinical-and-translational-research-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/10-2026-NMD-Mystery-Case-Rounds.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261014T120000
DTEND;TZID=America/Toronto:20261014T133000
DTSTAMP:20260929T163503Z
CREATED:20260929T163503Z
LAST-MODIFIED:20260929T163503Z
UID:11683-1791979200-1791984600@canadianrdn.ca
SUMMARY:Stem Cell Network: Careers Beyond Academia: Journal Editing and Scientific Writing
DESCRIPTION:The Stem Cell Network and Medicine by Design\, the academic division of CCRM\, have partnered to host Careers Beyond Academia\, a virtual career seminar series that will profile a wide variety of different careers available to trainees who hold a degree in the life sciences. The goal of this series is to help trainees understand the different careers available outside of academia\, the skills required for certain positions\, and some of the daily functions of those positions.
URL:https://canadianrdn.ca/event/stem-cell-network-careers-beyond-academia-journal-editing-and-scientific-writing/
CATEGORIES:Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788870329361.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261015T110000
DTEND;TZID=America/Edmonton:20261015T120000
DTSTAMP:20260922T171018Z
CREATED:20260922T164806Z
LAST-MODIFIED:20260922T171018Z
UID:11637-1792062000-1792065600@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-2/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261016T120000
DTEND;TZID=America/Toronto:20261016T133000
DTSTAMP:20261001T190544Z
CREATED:20261001T190544Z
LAST-MODIFIED:20261001T190544Z
UID:11735-1792152000-1792157400@canadianrdn.ca
SUMMARY:CORD: Webinar 2: When Innovation Rewrites the Pathway
DESCRIPTION:From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies – so that screening\, diagnosis\, eligibility\, expertise\, delivery\, patient choice\, monitoring and learning do not have to be rebuilt after each access decision?
URL:https://canadianrdn.ca/event/cord-webinar-2-when-innovation-rewrites-the-pathway/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1790866766307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261019T080000
DTEND;TZID=America/Edmonton:20261019T090000
DTSTAMP:20261001T190421Z
CREATED:20261001T190421Z
LAST-MODIFIED:20261001T190421Z
UID:11732-1792396800-1792400400@canadianrdn.ca
SUMMARY:Rare Disease Day 2027 Launch Webinar
DESCRIPTION:EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. They are hosting two identical sessions on Monday 19 October 16:00 CEST and the next is Tuesday 20 October 09:00 CEST.
URL:https://canadianrdn.ca/event/rare-disease-day-2027-launch-webinar/
CATEGORIES:Healthcare,International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/2026-Mailings-Resources-2-1024x284-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261126T110000
DTEND;TZID=America/Edmonton:20261126T120000
DTSTAMP:20260922T170955Z
CREATED:20260922T170955Z
LAST-MODIFIED:20260922T170955Z
UID:11641-1795690800-1795694400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-3/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR