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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/Edmonton
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DTSTART:20261101T080000
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TZID:America/Toronto
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TZOFFSETTO:-0400
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T080000
DTEND;TZID=America/Edmonton:20250819T090000
DTSTAMP:20260403T174032
CREATED:20250729T164703Z
LAST-MODIFIED:20250729T164703Z
UID:8610-1755590400-1755594000@canadianrdn.ca
SUMMARY:PxP Australia 2025
DESCRIPTION:PxP Australia is a regional webinar\, led by Letisha Living and Janelle Bowden who are members of the 2025 steering committee for the global PxP conference taking place in September. The theme of PxP Australia is “working well together” and Dr. Joan Carlini will be joining the session as a speaker.
URL:https://canadianrdn.ca/event/pxp-australia-2025/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/GxCMjC_bUAIXkYa.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T120000
DTEND;TZID=America/Edmonton:20250819T133000
DTSTAMP:20260403T174032
CREATED:20250812T200201Z
LAST-MODIFIED:20250812T200201Z
UID:8741-1755604800-1755610200@canadianrdn.ca
SUMMARY:Genome Editing in Stem Cells and Regenerative Medicine
DESCRIPTION:CRISPR-based genome editing has revolutionized biomedical research\, offering powerful tools to investigate gene function\, model diseases\, and develop novel therapies. This focused workshop will provide participants with both theoretical grounding and practical insights into current genome editing technologies. \nThe Stem Cell Network (SCN) is pleased to offer the online workshop “Genome Editing in Stem Cells and Regenerative Medicine”. This workshop will equip participants with both a theoretical grounding and practical insights into current genome editing technologies. It will also explore key concepts in experimental design\, delivery\, and selection methods.
URL:https://canadianrdn.ca/event/genome-editing-in-stem-cells-and-regenerative-medicine/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1752150318229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250827T000000
DTEND;TZID=America/Edmonton:20250827T000000
DTSTAMP:20260403T174032
CREATED:20250827T165451Z
LAST-MODIFIED:20250827T165535Z
UID:8777-1756252800-1756252800@canadianrdn.ca
SUMMARY:Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:Co-developed by ERN ReCONNET and LUPUS EUROPE\, The Lupus100 Project is a multilingual resource based on real patient questions about lupus\, turning a national patient booklet into a Europe-wide\, medically validated information tool. Speakers Eric Hachulla (clinician\, ERN ReCONNET)\, Jeanette Andersen (patient representative\, ERN ReCONNET)\, and Zoe Karakikla-Mitsakou (General Secretary\, Lupus Europe) will share how meaningful collaboration between patients and clinicians shaped this impactful communication initiative!
URL:https://canadianrdn.ca/event/webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Lupus100-Webinar-FT-2048x640-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250828T060000
DTEND;TZID=America/Edmonton:20250828T073000
DTSTAMP:20260403T174032
CREATED:20250728T213522Z
LAST-MODIFIED:20250728T213535Z
UID:8595-1756360800-1756366200@canadianrdn.ca
SUMMARY:WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action
DESCRIPTION:This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
URL:https://canadianrdn.ca/event/wha-resolution-coalition-webinar-turning-the-wha-resolution-on-rare-diseases-into-action/
CATEGORIES:Hybrid,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753701477773.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250904T110000
DTEND;TZID=America/Edmonton:20250904T120000
DTSTAMP:20260403T174032
CREATED:20250902T192015Z
LAST-MODIFIED:20250902T192015Z
UID:8836-1756983600-1756987200@canadianrdn.ca
SUMMARY:Back-to-School with PH: Q&A Session
DESCRIPTION:Getting ready for a new school year can be exciting—but also challenging when pulmonary hypertension (PH) is part of the picture. \nJoin in on Thursday\, Sept 4 at 11:00 AM EST for a virtual round table with Janette Reyes\, PH Pediatric Nurse at SickKids Hospital.
URL:https://canadianrdn.ca/event/back-to-school-with-ph-qa-session/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756317681290.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250910T100000
DTEND;TZID=America/Edmonton:20250910T110000
DTSTAMP:20260403T174032
CREATED:20250722T203504Z
LAST-MODIFIED:20250722T203504Z
UID:8581-1757498400-1757502000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
DESCRIPTION:Speakers: Tannis Erickson & Naveen Poonai Title: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
URL:https://canadianrdn.ca/event/impact-webinar-lessons-learned-from-the-innovative-pediatric-clinical-trials-ipct-network/
CATEGORIES:Clinical Trials,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/Septemberwebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250917T140000
DTEND;TZID=America/Toronto:20250917T150000
DTSTAMP:20260403T174032
CREATED:20250916T185523Z
LAST-MODIFIED:20250916T185523Z
UID:8906-1758117600-1758121200@canadianrdn.ca
SUMMARY:RareKids-CAN-Education Session: Family Engagement in Research Fundamentals
DESCRIPTION:Join RareKids-CAN on September 17\, 2025\, from 2-3pm ET for their next education session\, led by their Patient and Family Engagement Facilitators. This session is open to everyone interested in strengthening engagement practices. Don’t miss out!
URL:https://canadianrdn.ca/event/rarekids-can-education-session-family-engagement-in-research-fundamentals/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1758037684535.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250918T180000
DTEND;TZID=America/Edmonton:20250918T190000
DTSTAMP:20260403T174032
CREATED:20250916T184602Z
LAST-MODIFIED:20250916T184602Z
UID:8894-1758218400-1758222000@canadianrdn.ca
SUMMARY:EURORDIS Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:The Lupus100 Project\, recognized as a winner of the 2025 Patient Partnership Good Practice Challenge\, highlights the crucial role of patient partnership in improving communication about rare diseases such as lupus.
URL:https://canadianrdn.ca/event/eurordis-webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757432391221.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250919T150000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T174032
CREATED:20250916T184302Z
LAST-MODIFIED:20250916T184302Z
UID:8891-1758294000-1758301200@canadianrdn.ca
SUMMARY:LHON Awareness Day 2025 Webinar: "Exploring the Power of Nutrition in Mitochondrial Diseases"
DESCRIPTION:This year’s theme focuses on how nutrition can support mitochondrial health. You’ll hear from experts across Australia\, Italy\, and Brazil\, sharing practical strategies and the latest research relevant to LHON and other types of mito.
URL:https://canadianrdn.ca/event/lhon-awareness-day-2025-webinar-exploring-the-power-of-nutrition-in-mitochondrial-diseases/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756391764881.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250923T093000
DTEND;TZID=America/Edmonton:20250923T113000
DTSTAMP:20260403T174032
CREATED:20250916T184831Z
LAST-MODIFIED:20250916T184831Z
UID:8897-1758619800-1758627000@canadianrdn.ca
SUMMARY:Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease
DESCRIPTION:Please join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.
URL:https://canadianrdn.ca/event/advancing-rare-disease-healthcare-spotlighting-the-economic-and-health-system-burden-of-disease/
CATEGORIES:Caregiver,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757616693554.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250924T100000
DTEND;TZID=America/Edmonton:20250924T120000
DTSTAMP:20260403T174032
CREATED:20250814T153021Z
LAST-MODIFIED:20250814T153021Z
UID:8751-1758708000-1758715200@canadianrdn.ca
SUMMARY:La dysferlinopathie: Une dystrophie musculaire affectant le muscle strié
DESCRIPTION:1st episode of the RQMO – RARE webinar series. QC presented by Camille Bouchard\, PhD student in molecular medicine in the laboratory of Professor Jacques P. Tremblay\, Université Laval \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/la-dysferlinopathie-une-dystrophie-musculaire-affectant-le-muscle-strie/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1755177496772.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260403T174032
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757349450505.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251010T070000
DTEND;TZID=America/Edmonton:20251010T080000
DTSTAMP:20260403T174032
CREATED:20251006T202336Z
LAST-MODIFIED:20251006T202336Z
UID:8952-1760079600-1760083200@canadianrdn.ca
SUMMARY:Rare Diseases International-Community Conversations on Mental Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-diseases-international-community-conversations-on-mental-health/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759479484624.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251015T100000
DTEND;TZID=America/Edmonton:20251015T113000
DTSTAMP:20260403T174032
CREATED:20251006T201940Z
LAST-MODIFIED:20251006T201940Z
UID:8949-1760522400-1760527800@canadianrdn.ca
SUMMARY:A Conversation About Patient Partner Outsider Syndrome
DESCRIPTION:Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However\, findings from the Patient Advisors Network (PAN) “Reimagining the Research Landscape” report\, commissioned by CIHR in 2024 for the SPOR Refresh\, revealed that patient/caregiver partners often feel like outsiders in the research ecosystem. This webinar will take a deeper dive into the OSSU Research Day presentation “Why do patient/caregiver partners feel like outsiders?” \nMs. Maureen Smith will moderate a frank discussion between two of the report authors\, Mses. Alies Maybee and Annette McKinnon\, and PAN Board member Ms. Sandra Holdsworth\, and leading patient-oriented researchers Drs. Manoj Lalu\, Ambreen Sayani and Stuart Nicholls\, on the barriers uncovered by the report and showcasing best practices to mitigate these barriers.
URL:https://canadianrdn.ca/event/a-conversation-about-patient-partner-outsider-syndrome/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758888477388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T123000
DTEND;TZID=America/Toronto:20251016T133000
DTSTAMP:20260403T174032
CREATED:20251015T212343Z
LAST-MODIFIED:20251015T212343Z
UID:9023-1760617800-1760621400@canadianrdn.ca
SUMMARY:Aging Out: Transition of care for children with rare neurodevelopmental disorders
DESCRIPTION:Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children\, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases\, qualified specialists are hard to find. After years of assembling a trusted pediatric care team\, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care. \nWhat strategies would ease the pediatric to adult care transition? This webcast will bring health care providers\, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.
URL:https://canadianrdn.ca/event/aging-out-transition-of-care-for-children-with-rare-neurodevelopmental-disorders/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/download.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T200000
DTEND;TZID=America/Toronto:20251016T210000
DTSTAMP:20260403T174032
CREATED:20251014T180518Z
LAST-MODIFIED:20251014T180518Z
UID:9017-1760644800-1760648400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield\, a RareKids-CAN parent partner\, B.C. mom\, digital storytelling facilitator + photographer.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-digital-storytelling-with-krystle-schofield/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1760118853512.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251020T130000
DTEND;TZID=America/Toronto:20251023T160000
DTSTAMP:20260403T174032
CREATED:20250916T185259Z
LAST-MODIFIED:20250916T185259Z
UID:8903-1760965200-1761235200@canadianrdn.ca
SUMMARY:KTDRR’s 2025 Virtual Knowledge Translation Conference
DESCRIPTION:This conference will look at different ways to make knowledge translation (KT) more effective and impactful. They seek presentations that will discuss how to measure the success of KT efforts\, including involving users early on\, working with people with disabilities\, and customizing products and outreach to meet user needs. They’ll also look for presentations that talk about sharing KT content online\, ensuring it’s credible\, teaching digital literacy\, spotting false information\, and making sure disability is represented accurately. In addition\, they encourage presentations that explore how technology can boost KT projects\, such as using digital tools to build online communities\, check text readability\, and summarize research. They also welcome presentations that highlight the role of artificial intelligence (AI) in creating easy-to-understand summaries\, organizing research\, addressing AI bias\, and writing effective prompts. Join them to discover new strategies and tools to enhance your KT efforts.
URL:https://canadianrdn.ca/event/ktdrrs-2025-virtual-knowledge-translation-conference/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756924002853.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251030T170000
DTSTAMP:20260403T174032
CREATED:20250529T204853Z
LAST-MODIFIED:20250529T204853Z
UID:8388-1761724800-1761843600@canadianrdn.ca
SUMMARY:The 5th Annual Canadian Children\, Youth and Communities (CCYC) In | Equity Conference
DESCRIPTION:This conference reaches a national\, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together\, you’ll explore how sustainable solutions and community partnerships can improve child and youth health equity.
URL:https://canadianrdn.ca/event/the-5th-annual-canadian-children-youth-and-communities-ccyc-in-equity-conference/
CATEGORIES:Conferences,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1746795705282.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260403T174032
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/Child-health-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T100000
DTEND;TZID=America/Edmonton:20251029T120000
DTSTAMP:20260403T174032
CREATED:20251015T184026Z
LAST-MODIFIED:20251015T184026Z
UID:9020-1761732000-1761739200@canadianrdn.ca
SUMMARY:Taking multiple medications? 5 questions to ask
DESCRIPTION:In recognition of Canadian Patient Safety Week 2025 (October 27-31)\, join Dr. Emily McDonald — a physician specializing in patient safety and Director of the Canadian Medication Appropriateness and Deprescribing Network — for a live\, interactive webinar. \nLearn essential questions to ask to ensure all your medications are still necessary and helping you.
URL:https://canadianrdn.ca/event/taking-multiple-medications-5-questions-to-ask/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/5Qs-Webinar-Banner_2025-08-25-FINAL2-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251030T110000
DTEND;TZID=America/Edmonton:20251030T120000
DTSTAMP:20260403T174032
CREATED:20250924T182926Z
LAST-MODIFIED:20250924T182926Z
UID:8919-1761822000-1761825600@canadianrdn.ca
SUMMARY:They are sacred: First Nations' Journey in Autistic Care and Advocacy
DESCRIPTION:UPCOMING RESEARCH FORUM | Grant Bruno\, Mariam Ahmad and Tierney Littlechild offer insights on how First Nations families\, Elders\, autistic individuals\, and community leaders are reshaping autism support through Indigenous knowledge\, ceremony\, and relational approaches.
URL:https://canadianrdn.ca/event/they-are-sacred-first-nations-journey-in-autistic-care-and-advocacy/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757089804796.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251101T080000
DTEND;TZID=America/Edmonton:20251101T180000
DTSTAMP:20260403T174032
CREATED:20251024T182943Z
LAST-MODIFIED:20251024T182943Z
UID:9081-1761984000-1762020000@canadianrdn.ca
SUMMARY:Ehlers-Danlos Society ECHO Summit: Mental Health
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health\, a virtual event held on November 1\, 2025. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals. \nThis event will feature presentations\, case studies\, and panel discussions around the latest management and care strategies\, featuring presentations on the following topics: \n\nThe Mind/Body Connection\nCoping with a Diagnosis\nIntersectionality\nNeurodivergence\nPractical Management Strategies
URL:https://canadianrdn.ca/event/ehlers-danlos-society-echo-summit-mental-health/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/Web_banner_EDSECHO_MH-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251104T053000
DTEND;TZID=America/Edmonton:20251104T073000
DTSTAMP:20260403T174032
CREATED:20251027T200736Z
LAST-MODIFIED:20251027T200736Z
UID:9094-1762234200-1762241400@canadianrdn.ca
SUMMARY:Screen4Rare: Making AI Diagnosis Understandable
DESCRIPTION:A co-creation workshop  inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable\, trustworthy and human.
URL:https://canadianrdn.ca/event/screen4rare-making-ai-diagnosis-understandable/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761554907608.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251104T130000
DTEND;TZID=America/Toronto:20251106T170000
DTSTAMP:20260403T174032
CREATED:20251014T175501Z
LAST-MODIFIED:20251014T175501Z
UID:9011-1762261200-1762448400@canadianrdn.ca
SUMMARY:Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
DESCRIPTION:This will include presentations and panel discussions focused on current scientific findings\, the opportunities to strengthen research design\, and the need to create more inclusive and accessible research spaces.
URL:https://canadianrdn.ca/event/canadian-collaborative-conference-on-myalgic-encephalomyelitis-me/
CATEGORIES:Conferences,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/ICanCME-Conference-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251105T060000
DTEND;TZID=America/Edmonton:20251105T080000
DTSTAMP:20260403T174032
CREATED:20251006T202535Z
LAST-MODIFIED:20251006T202535Z
UID:8955-1762322400-1762329600@canadianrdn.ca
SUMMARY:Webinar: Health Financing & Social Health Protection for Rare Diseases
DESCRIPTION:Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that concretely promote effective health coverage\, increased access and adequate financial protection for people living with rare diseases.
URL:https://canadianrdn.ca/event/webinar-health-financing-social-health-protection-for-rare-diseases/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758185385885.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251107T170000
DTSTAMP:20260403T174032
CREATED:20251014T175245Z
LAST-MODIFIED:20251014T175245Z
UID:9008-1762502400-1762534800@canadianrdn.ca
SUMMARY:The McMaster Immune Thrombocytopenia (ITP) Summit 2025
DESCRIPTION:By attending this activity\, participants will be able to: \n\nCompare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).\nEvaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.\nInterpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.\nDiscuss the role of antibody\, complement\, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.
URL:https://canadianrdn.ca/event/the-mcmaster-immune-thrombocytopenia-itp-summit-2025/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/ITP25_website_card-1-768x432-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20260403T174032
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761051641857.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251113T100000
DTEND;TZID=America/Edmonton:20251113T113000
DTSTAMP:20260403T174032
CREATED:20250924T182037Z
LAST-MODIFIED:20250924T182037Z
UID:8916-1763028000-1763033400@canadianrdn.ca
SUMMARY:Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
DESCRIPTION:Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut\, Assistant Professor and regular researcher at the CHUM Research Centre\, Université de Montréal \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/le-poisson-zebre-pour-accelerer-la-recherche-sur-les-maladies-rares/
CATEGORIES:Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1758293765715.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251121T060000
DTEND;TZID=America/Edmonton:20251121T073000
DTSTAMP:20260403T174032
CREATED:20251024T183912Z
LAST-MODIFIED:20251024T183913Z
UID:9087-1763704800-1763710200@canadianrdn.ca
SUMMARY:IP Strategies for Repurposing
DESCRIPTION:Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes. \n 
URL:https://canadianrdn.ca/event/ip-strategies-for-repurposing/
CATEGORIES:Industry,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761038081322.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251122T110000
DTEND;TZID=America/Toronto:20251122T160000
DTSTAMP:20260403T174032
CREATED:20251103T203915Z
LAST-MODIFIED:20251103T203915Z
UID:9119-1763809200-1763827200@canadianrdn.ca
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
DESCRIPTION:Bringing together neuroscience researchers\, patients\, advocates and caregivers to highlight brain health research in an accessible format.
URL:https://canadianrdn.ca/event/bridging-gaps-a-patient-oriented-neuroscience-research-symposium/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/https___cdn.evbuc_.com_images_1131808373_245876360330_1_original.jpg
END:VEVENT
END:VCALENDAR