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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260616T190000
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UID:10846-1781636400-1781640000@canadianrdn.ca
SUMMARY:'Neuro-opthalmological presentations of ataxia and other rare neurological disorders' by Tatiana Brémovà-Ertl
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/neuro-opthalmological-presentations-of-ataxia-and-other-rare-neurological-disorders-by-tatiana-bremova-ertl/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/Edmonton:20260617T100000
DTEND;TZID=America/Edmonton:20260617T110000
DTSTAMP:20260604T125942
CREATED:20260526T015813Z
LAST-MODIFIED:20260526T015813Z
UID:10670-1781690400-1781694000@canadianrdn.ca
SUMMARY:Regroupement québécois des maladies orphelines: NRGI - open science to understand common and rare neurological disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-nrgi-open-science-to-understand-common-and-rare-neurological-disorders/
CATEGORIES:Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779725763822.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260617T120000
DTEND;TZID=America/Edmonton:20260617T133000
DTSTAMP:20260604T125942
CREATED:20260604T144508Z
LAST-MODIFIED:20260604T174114Z
UID:10844-1781697600-1781703000@canadianrdn.ca
SUMMARY:Cystic Fibrosis Canada's 2026 Webinar: Spotlight on CF Research 2026
DESCRIPTION:Register now for Cystic Fibrosis Canada’s 2026 Spotlight on CF Research Webinar\, offered in English and French with live simultaneous interpretation.
URL:https://canadianrdn.ca/event/cystic-fibrosis-canadas-2026-webinar-spotlight-on-cf-research-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/703763071_1393256339501763_581508815341888921_n.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260618T060000
DTEND;TZID=America/Edmonton:20260618T070000
DTSTAMP:20260604T125942
CREATED:20260527T160853Z
LAST-MODIFIED:20260527T195114Z
UID:10694-1781762400-1781766000@canadianrdn.ca
SUMMARY:Rare Diseases International-Innovative Models Reshaping Access to Diagnosis\, Treatment and Care - Practical examples and global case studies
DESCRIPTION:Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis\, treatment\, and care remains out of reach for millions of people living with a rare disease. \nThis webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms\, including venture philanthropy\, blended finance\, public-private partnerships\, solidarity funds\, and outcome-based models. Through real-world examples\, participants will gain insight into what makes these approaches work\, the conditions needed for success\, and how models can be adapted or combined across different health systems.
URL:https://canadianrdn.ca/event/rare-diseases-internationa-innovative-models-reshaping-access-to-diagnosis-treatment-and-care-practical-examples-and-global-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260623T120000
DTEND;TZID=America/Toronto:20260623T130000
DTSTAMP:20260604T125942
CREATED:20260604T144221Z
LAST-MODIFIED:20260604T174200Z
UID:10842-1782216000-1782219600@canadianrdn.ca
SUMMARY:CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
DESCRIPTION:Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of Canada’s Rare Disease Strategy
URL:https://canadianrdn.ca/event/cord-webinar-from-genomic-testing-readiness-to-rare-disease-system-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780406794177-1.jpg
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