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BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250512T120000
DTEND;TZID=America/Vancouver:20250512T130000
DTSTAMP:20260403T122805
CREATED:20250421T222546Z
LAST-MODIFIED:20250421T222546Z
UID:8026-1747051200-1747054800@canadianrdn.ca
SUMMARY:PxP-Upcoming webinar: Growing your influence and a patient partner
DESCRIPTION:Join PxP for an engaging webinar hosted in collaboration with the Patient Engagement Research Ambassadors at the Institute of Musculoskeletal Health and Arthritis.
URL:https://canadianrdn.ca/event/pxp-upcoming-webinar-growing-your-influence-and-a-patient-partner/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744843903932.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250509T120000
DTEND;TZID=America/Toronto:20250509T130000
DTSTAMP:20260403T122805
CREATED:20250507T180114Z
LAST-MODIFIED:20250507T180114Z
UID:8170-1746792000-1746795600@canadianrdn.ca
SUMMARY:Webinar: Canadian Survey on the Impact of Disease
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-canadian-survey-on-the-impact-of-disease/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/CORD-Survey-Promo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250508T110000
DTEND;TZID=America/Edmonton:20250508T120000
DTSTAMP:20260403T122805
CREATED:20250501T163248Z
LAST-MODIFIED:20250501T163248Z
UID:8123-1746702000-1746705600@canadianrdn.ca
SUMMARY:Webinar for Patient Groups: Evolving Patient Group Input in Drug Reimbursement Reviews
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-for-patient-groups-evolving-patient-group-input-in-drug-reimbursement-reviews/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250508T080000
DTEND;TZID=UTC:20250508T170000
DTSTAMP:20260403T122805
CREATED:20250207T035749Z
LAST-MODIFIED:20250207T035749Z
UID:7462-1746691200-1746723600@canadianrdn.ca
SUMMARY:TruePKU Meeting
DESCRIPTION:Mark your calendar for May 8\, 2025\, for the TruePKU meeting – a first-of-its-kind opportunity for members of the PKU community to share their experiences\, needs\, and treatment priorities directly with the U.S. Food and Drug Administration\, life science companies with active PKU programs\, researchers\, and healthcare professionals.
URL:https://canadianrdn.ca/event/truepku-meeting/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250506T190000
DTEND;TZID=America/Edmonton:20250506T200000
DTSTAMP:20260403T122805
CREATED:20250501T163054Z
LAST-MODIFIED:20250501T163054Z
UID:8120-1746558000-1746561600@canadianrdn.ca
SUMMARY:Palliative Care in Chorea and Huntington's Disease
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-in-chorea-and-huntingtons-disease/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1743598476117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T150000
DTEND;TZID=America/New_York:20250505T170000
DTSTAMP:20260403T122805
CREATED:20250403T022441Z
LAST-MODIFIED:20250403T022441Z
UID:7894-1746457200-1746464400@canadianrdn.ca
SUMMARY:Applying Principles of Equity\, Diversity\, Inclusion\, and Accessibility in Patient Engagement with Equity Seeking Groups
DESCRIPTION:
URL:https://canadianrdn.ca/event/applying-principles-of-equity-diversity-inclusion-and-accessibility-in-patient-engagement-with-equity-seeking-groups/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250501T183000
DTEND;TZID=America/Edmonton:20250501T203000
DTSTAMP:20260403T122805
CREATED:20250501T161720Z
LAST-MODIFIED:20250501T161720Z
UID:8103-1746124200-1746131400@canadianrdn.ca
SUMMARY:Managing Anxiety in Children and Adolescents with Neurodevelopmental Disorders (NDDs)
DESCRIPTION:Presenters: Thomas Qiao\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Noah Furlani\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Dr. Kara Murias\, MD PhD FRCPC\, Pediatric Neurologist\, Alberta Children’s Hospital; Assistant Professor\, Department of Pediatrics and Clinical Neuroscience\, University of Calgary
URL:https://canadianrdn.ca/event/managing-anxiety-in-children-and-adolescents-with-neurodevelopmental-disorders-ndds/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745532032179.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250429T100000
DTEND;TZID=America/Edmonton:20250429T110000
DTSTAMP:20260403T122805
CREATED:20250421T215244Z
LAST-MODIFIED:20250421T215244Z
UID:8004-1745920800-1745924400@canadianrdn.ca
SUMMARY:Neurodiversity in the Workplace: 6 Principles for Inclusion
DESCRIPTION:Learn how to create a more inclusive workplace for neurodivergent employees with our 6 principles! \n 
URL:https://canadianrdn.ca/event/neurodiversity-in-the-workplace-6-principles-for-inclusion/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744204038937.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250429T080000
DTEND;TZID=America/Denver:20250501T170000
DTSTAMP:20260403T122805
CREATED:20250123T225518Z
LAST-MODIFIED:20250123T225535Z
UID:7417-1745913600-1746118800@canadianrdn.ca
SUMMARY:Save the Date: Rare Disease Day 2025 Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/Gh11VK5WcAAg2ym.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250429T080000
DTEND;TZID=America/New_York:20250429T160000
DTSTAMP:20260403T122805
CREATED:20250325T074724Z
LAST-MODIFIED:20250325T074724Z
UID:7814-1745913600-1745942400@canadianrdn.ca
SUMMARY:Health Data for All of Us: A Public Dialogue on AI in Health
DESCRIPTION:Join HRDN conversation about key ethical\, equity and privacy challenges related to AI and health!
URL:https://canadianrdn.ca/event/health-data-for-all-of-us-a-public-dialogue-on-ai-in-health-2/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741049866628.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20250429T080000
DTEND;TZID=Asia/Karachi:20250429T160000
DTSTAMP:20260403T122805
CREATED:20250318T022412Z
LAST-MODIFIED:20250318T022412Z
UID:7708-1745913600-1745942400@canadianrdn.ca
SUMMARY:Health Data for All of Us: A Public Dialogue on AI in Health
DESCRIPTION:Join the conversation about key ethical\, equity and privacy challenges related to AI and health!
URL:https://canadianrdn.ca/event/health-data-for-all-of-us-a-public-dialogue-on-ai-in-health/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741651558022.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250425T113000
DTEND;TZID=America/Toronto:20250425T123000
DTSTAMP:20260403T122805
CREATED:20250421T215541Z
LAST-MODIFIED:20250421T215541Z
UID:8007-1745580600-1745584200@canadianrdn.ca
SUMMARY:Navigating Conflict with Care: Building Stronger Patient Engagement Teams in Research
DESCRIPTION:​Conflict is a natural part of teamwork—but in family engagement in research\, how we navigate it matters. Join them for a compassionate conversation on resolving conflicts in family engagement teams\, fostering trust\, and strengthening collaboration.
URL:https://canadianrdn.ca/event/navigating-conflict-with-care-building-stronger-patient-engagement-teams-in-research/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1742246725097.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250424T120000
DTEND;TZID=America/Toronto:20250424T133000
DTSTAMP:20260403T122805
CREATED:20250422T184202Z
LAST-MODIFIED:20250422T184202Z
UID:8034-1745496000-1745501400@canadianrdn.ca
SUMMARY:Lunch N’ Learn: Talking Research with Patient Partners
DESCRIPTION:Join this virtual workshop on Zoom on April 24\, 2025\, at 12:00 p.m. (EST) to develop communication skills for engaging with patient partners in research. \nHosted by the HBHL EDI Trainee Committee\, the session features medical librarians and a patient advocate sharing insights on plain language and patient-oriented research. \nPresenters: \n\nSabrina Burr\, MISt – Librarian of the Neuro-Patient Resource Centre at The Neuro-MNI\nPaule Kelly-Rhéaume – Medical librarian at the McGill University Health Centre\nJoAnne Mosel\, CPA – Advocate in the Rare Disease space with over 30 years of experience
URL:https://canadianrdn.ca/event/lunch-n-learn-talking-research-with-patient-partners/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/Gn8WHWIXEAA9Uoh.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250417T100000
DTEND;TZID=America/Halifax:20250417T110000
DTSTAMP:20260403T122805
CREATED:20250403T022642Z
LAST-MODIFIED:20250403T022642Z
UID:7897-1744884000-1744887600@canadianrdn.ca
SUMMARY:ACE Inhibitors as a Cardioprotective Treatment in Dystrophinopathies.
DESCRIPTION:Join C-PATH on April 17\, noon ET\, for an insightful presentation by Dr. Karim Wahbi\, Professor of Cardiology at the University of Paris and head of the Reference Center for Neuromuscular Cardiomyopathies. Dr. Wahbi specializes in the clinical management of cardiomyopathies\, with a focus on neuromuscular diseases like Duchenne muscular dystrophy.
URL:https://canadianrdn.ca/event/ace-inhibitors-as-a-cardioprotective-treatment-in-dystrophinopathies/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T143000
DTEND;TZID=America/New_York:20250410T160000
DTSTAMP:20260403T122805
CREATED:20250325T074400Z
LAST-MODIFIED:20250325T074400Z
UID:7811-1744295400-1744300800@canadianrdn.ca
SUMMARY:Thinking Outside of Your In Box: Innovative Fundraising Opportunities
DESCRIPTION:Leadership in rare disease advocacy requires creativity and resourcefulness. This session highlights unconventional fundraising strategies and case studies of successful campaigns. Participants will discover how to secure funding through innovative approaches\, such as partnering with non-traditional sponsors\, and receive actionable tips to implement these ideas in their own organizations.
URL:https://canadianrdn.ca/event/thinking-outside-of-your-in-box-innovative-fundraising-opportunities/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Global-Genes.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250410T140000
DTEND;TZID=UTC:20250410T150000
DTSTAMP:20260403T122805
CREATED:20250403T023036Z
LAST-MODIFIED:20250403T023036Z
UID:7900-1744293600-1744297200@canadianrdn.ca
SUMMARY:RDI: Leveraging the EML for Access to Rare Disease Treatments
DESCRIPTION:The WHO Essential Medicines List (EML) is a critical instrument for advancing Universal Health Coverage (UHC) by ensuring equitable access to essential medicines. However\, its role in rare disease treatment remains under-recognized. This webinar will explore how the EML can serve as a powerful tool to improve access to treatments for persons living with a rare disease (PLWRD) at both global and national levels. \nWebinar Objectives: \n\nGain a deeper understanding of the WHO Essential Medicines List and its significance for rare diseases\nLearn about the findings from RDI’s Essential Medicine Working Group on challenges\, best practices\, and opportunities for regarding the application process of EML\nHear about call-to-action to enhance global and national access to essential medicines
URL:https://canadianrdn.ca/event/rdi-leveraging-the-eml-for-access-to-rare-disease-treatments/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T110000
DTEND;TZID=America/New_York:20250409T120000
DTSTAMP:20260403T122805
CREATED:20250403T022159Z
LAST-MODIFIED:20250403T022159Z
UID:7891-1744196400-1744200000@canadianrdn.ca
SUMMARY:Five Good Ideas to support and benefit from working caregivers in your workplace
DESCRIPTION:
URL:https://canadianrdn.ca/event/five-good-ideas-to-support-and-benefit-from-working-caregivers-in-your-workplace/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250407T100000
DTEND;TZID=America/Halifax:20250407T110000
DTSTAMP:20260403T122805
CREATED:20250403T022042Z
LAST-MODIFIED:20250403T022042Z
UID:7888-1744020000-1744023600@canadianrdn.ca
SUMMARY:Caregiving Essentials Webinar: Mapping a Brighter Future for Canadian Caregivers
DESCRIPTION:
URL:https://canadianrdn.ca/event/caregiving-essentials-webinar-mapping-a-brighter-future-for-canadian-caregivers/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/04/4e7ca4f1-e359-4c41-8508-73bf39a078d4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260403T122805
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260403T122805
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T123000
DTEND;TZID=America/New_York:20250401T133000
DTSTAMP:20260403T122805
CREATED:20250325T080251Z
LAST-MODIFIED:20250325T080251Z
UID:7826-1743510600-1743514200@canadianrdn.ca
SUMMARY:National Healthcare Provider Workshop
DESCRIPTION:In celebration of National Caregiving Day\, the Canadian Home Care Association (CHCA) is hosting the National Healthcare Provider Workshop on\, which will bridge insights from Hope for the Best\, Plan for the Rest (McMaster University) and the CHCA eiCOMPASS Project\, highlighting the transformative work of both initiatives.
URL:https://canadianrdn.ca/event/national-healthcare-provider-workshop/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Gmv4QgOXQAAtSQS-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T120000
DTEND;TZID=America/New_York:20250401T130000
DTSTAMP:20260403T122805
CREATED:20250321T030627Z
LAST-MODIFIED:20250321T030627Z
UID:7799-1743508800-1743512400@canadianrdn.ca
SUMMARY:Transdiagnostic approaches vs precision health in neurodevelopmental conditions: perfect match or irreconcilable differences?
DESCRIPTION:Dr. Anagnostou will explore the intersection of transdiagnostic approaches and precision health in neurodevelopmental conditions. With significant investments in both precision medicine and needs-based care\, how can learning health systems reconcile these two approaches? This talk will examine emerging data\, recent innovations\, and ways to integrate these frameworks to improve care for children and youth with neurodevelopmental conditions.
URL:https://canadianrdn.ca/event/transdiagnostic-approaches-vs-precision-health-in-neurodevelopmental-conditions-perfect-match-or-irreconcilable-differences/
CATEGORIES:Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742243952424.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260403T122805
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Socioeconomic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250327T160000
DTEND;TZID=Europe/Paris:20250327T170000
DTSTAMP:20260403T122805
CREATED:20250121T234423Z
LAST-MODIFIED:20250121T234423Z
UID:7392-1743091200-1743094800@canadianrdn.ca
SUMMARY:Navigating Life with Dysimmune and Inflammatory Neuropathies: Q&A Session on Quality of Life and Management
DESCRIPTION:
URL:https://canadianrdn.ca/event/navigating-life-with-dysimmune-and-inflammatory-neuropathies-qa-session-on-quality-of-life-and-management/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260403T122805
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T070000
DTEND;TZID=America/New_York:20250325T150000
DTSTAMP:20260403T122805
CREATED:20250321T031551Z
LAST-MODIFIED:20250321T031551Z
UID:7808-1742886000-1742914800@canadianrdn.ca
SUMMARY:AIHA Awareness Day 2025
DESCRIPTION:AIHA Awareness Day 2025 brings together patients\, care partners\, physicians\, researchers\, industry leaders\, and legislators for virtual presentations that honor and support the journeys of those affected by Autoimmune Hemolytic Anemia and other Acquired Hemolytic Anemias. This day is a powerful call to action to inspire us all to champion hope\, understanding\, and awareness.
URL:https://canadianrdn.ca/event/aiha-awareness-day-2025/
CATEGORIES:Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/AIHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T080000
DTEND;TZID=America/New_York:20250324T110000
DTSTAMP:20260403T122805
CREATED:20250219T020555Z
LAST-MODIFIED:20250219T020555Z
UID:7513-1742803200-1742814000@canadianrdn.ca
SUMMARY:Save-The-Date: RareKids-CAN Virtual Information Session
DESCRIPTION:During this information session\, you will gain an overview of RareKids-CAN\, build connections within the community\, and more!
URL:https://canadianrdn.ca/event/save-the-date-rarekids-can-virtual-information-session/
CATEGORIES:National,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250320T160000
DTEND;TZID=Europe/Paris:20250320T170000
DTSTAMP:20260403T122805
CREATED:20250121T234252Z
LAST-MODIFIED:20250121T234252Z
UID:7390-1742486400-1742490000@canadianrdn.ca
SUMMARY:Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/peripheral-nerve-imaging-with-focus-on-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250318T150000
DTEND;TZID=America/Chicago:20250318T160000
DTSTAMP:20260403T122805
CREATED:20250318T022101Z
LAST-MODIFIED:20250318T022101Z
UID:7704-1742310000-1742313600@canadianrdn.ca
SUMMARY:Webinar on “Neurogeriatric Aspects of Huntington’s Disease and Chorea”
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-on-neurogeriatric-aspects-of-huntingtons-disease-and-chorea/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/GlskZSvWkAADp6T.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250317T180000
DTEND;TZID=Europe/Paris:20250317T193000
DTSTAMP:20260403T122805
CREATED:20250304T034103Z
LAST-MODIFIED:20250304T034103Z
UID:7620-1742234400-1742239800@canadianrdn.ca
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. Patients\, caregivers\, clinicians\, researchers\, and advocates from around the world are invited to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://canadianrdn.ca/event/nmosd-in-sub-saharan-africa/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
END:VEVENT
END:VCALENDAR