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UID:7900-1744293600-1744297200@canadianrdn.ca
SUMMARY:RDI: Leveraging the EML for Access to Rare Disease Treatments
DESCRIPTION:The WHO Essential Medicines List (EML) is a critical instrument for advancing Universal Health Coverage (UHC) by ensuring equitable access to essential medicines. However\, its role in rare disease treatment remains under-recognized. This webinar will explore how the EML can serve as a powerful tool to improve access to treatments for persons living with a rare disease (PLWRD) at both global and national levels. \nWebinar Objectives: \n\nGain a deeper understanding of the WHO Essential Medicines List and its significance for rare diseases\nLearn about the findings from RDI’s Essential Medicine Working Group on challenges\, best practices\, and opportunities for regarding the application process of EML\nHear about call-to-action to enhance global and national access to essential medicines
URL:https://canadianrdn.ca/event/rdi-leveraging-the-eml-for-access-to-rare-disease-treatments/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
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DTSTART;TZID=America/New_York:20250410T143000
DTEND;TZID=America/New_York:20250410T160000
DTSTAMP:20260403T192237
CREATED:20250325T074400Z
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UID:7811-1744295400-1744300800@canadianrdn.ca
SUMMARY:Thinking Outside of Your In Box: Innovative Fundraising Opportunities
DESCRIPTION:Leadership in rare disease advocacy requires creativity and resourcefulness. This session highlights unconventional fundraising strategies and case studies of successful campaigns. Participants will discover how to secure funding through innovative approaches\, such as partnering with non-traditional sponsors\, and receive actionable tips to implement these ideas in their own organizations.
URL:https://canadianrdn.ca/event/thinking-outside-of-your-in-box-innovative-fundraising-opportunities/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
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