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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250114T080000
DTEND;TZID=America/Chicago:20250114T090000
DTSTAMP:20260403T222842
CREATED:20240830T232011Z
LAST-MODIFIED:20240830T232011Z
UID:5539-1736841600-1736845200@canadianrdn.ca
SUMMARY:ERKNet/ESPN Webinar: "Non-cystinosis Fanconi Syndrome" by Elena Levtchenko
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-espn-webinar-non-cystinosis-fanconi-syndrome-by-elena-levtchenko/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250114T140000
DTEND;TZID=Europe/Paris:20250114T160000
DTSTAMP:20260403T222842
CREATED:20250107T232714Z
LAST-MODIFIED:20250107T232714Z
UID:7332-1736863200-1736870400@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Extended Information Webinar
DESCRIPTION:The European Rare Diseases Research Alliance (ERDERA) invites you to the Joint Transnational Call (JTC) 2025 Extended Information Webinar. \nObjectives of this webinar: \nThe webinar scheduled for January 14th aims to provide educational and preparatory support to applicants at the pre-proposal stage\, focusing on key elements that enhance the quality of their submissions. The objectives include: \nInform applicants about lessons learned about the evaluation. \nGuide applicants with key translational\, regulatory\, data managing\, and methodological considerations for drafting strong pre-proposals. \nAddress your questions through dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-extended-information-webinar/
CATEGORIES:International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250114T180000
DTEND;TZID=America/New_York:20250114T190000
DTSTAMP:20260403T222842
CREATED:20241228T053546Z
LAST-MODIFIED:20241228T053546Z
UID:7291-1736877600-1736881200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target
DESCRIPTION:NMD4C and MDC are pleased to invite you to a webinar on Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target. NMD4C and MDC are providing organizational and technical support. This is a an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-exploring-the-clinical-trial-landscape-in-duchenne-muscular-dystrophy-challenges-opportunities-and-consideration-of-a-possible-cholesterol-metabolism-related-target/
CATEGORIES:Clinical Trials,Healthcare,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1735063069640.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T120000
DTEND;TZID=America/New_York:20250115T123000
DTSTAMP:20260403T222842
CREATED:20250109T233230Z
LAST-MODIFIED:20250109T233230Z
UID:7349-1736942400-1736944200@canadianrdn.ca
SUMMARY:Webinar-Genetic Carriers of PKU-Possible Health and Metabolic Implications?
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-genetic-carriers-of-pku-possible-health-and-metabolic-implications/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T130000
DTEND;TZID=America/New_York:20250115T160000
DTSTAMP:20260403T222842
CREATED:20250107T232923Z
LAST-MODIFIED:20250107T232923Z
UID:7335-1736946000-1736956800@canadianrdn.ca
SUMMARY:CIHI-Foundations of Patient Partnering Virtual Sessions
DESCRIPTION:Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts\, participate in skill-building activities\, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
URL:https://canadianrdn.ca/event/cihi-foundations-of-patient-partnering-virtual-sessions/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T120000
DTEND;TZID=America/New_York:20250116T130000
DTSTAMP:20260403T222842
CREATED:20241217T235100Z
LAST-MODIFIED:20241217T235100Z
UID:7271-1737028800-1737032400@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
DESCRIPTION:Learning Objectives: \n\nReview the ways in which patients can contribute as partners on your CHIR grant application\nIdentify the challenges and barriers to patients in fulfilling grant application requirements and how researchers can support patient partners\nDescribe the considerations specific to grant application requirements for researchers working with patient partners from groups who are frequently under-served by health research
URL:https://canadianrdn.ca/event/act-canada-webinar-series-engaging-patient-partners-in-your-cihr-grant-application-everything-you-ever-wanted-to-know-with-maureen-smith-andrea-chow-ontario/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250116T120000
DTEND;TZID=UTC:20250116T180000
DTSTAMP:20260403T222842
CREATED:20241017T212933Z
LAST-MODIFIED:20241017T212933Z
UID:6096-1737028800-1737050400@canadianrdn.ca
SUMMARY:TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
DESCRIPTION:Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025\, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways\, standards of care\, and emerging therapies\, while engaging with experts\, patients\, and peers to enhance DM1 care.
URL:https://canadianrdn.ca/event/treat-nmd-myotonic-dystrophy-type-1-dm1-expert-masterclass/
CATEGORIES:Healthcare,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/NMD.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250123T120000
DTEND;TZID=America/New_York:20250123T130000
DTSTAMP:20260403T222842
CREATED:20241218T230447Z
LAST-MODIFIED:20241218T230447Z
UID:7277-1737633600-1737637200@canadianrdn.ca
SUMMARY:Webinar - Securing Funding for Clinical Trials
DESCRIPTION:Webinar objectives: \n\n\nIdentify various funding strategies for pediatric and perinatal clinical trials in Canada\, including academic grants and industry partnerships. \n\n\nDevelop realistic expectations regarding the timeline and effort required to fund clinical trials through shared examples. \n\n\nUnderstand different strategies when approaching industry and academic funders and identify key factors for successful proposals.
URL:https://canadianrdn.ca/event/webinar-securing-funding-for-clinical-trials/
CATEGORIES:Clinical Trials,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250123T160000
DTEND;TZID=Europe/Paris:20250123T170000
DTSTAMP:20260403T222842
CREATED:20250121T232634Z
LAST-MODIFIED:20250121T232634Z
UID:7377-1737648000-1737651600@canadianrdn.ca
SUMMARY:Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
DESCRIPTION:Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam\, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies\, France)\, January 23rd 2025 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel
URL:https://canadianrdn.ca/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250123T160000
DTEND;TZID=America/New_York:20250123T190000
DTSTAMP:20260403T222842
CREATED:20250107T233058Z
LAST-MODIFIED:20250107T233058Z
UID:7338-1737648000-1737658800@canadianrdn.ca
SUMMARY:CIHI-Foundations of Patient Partnering Virtual Sessions
DESCRIPTION:Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts\, participate in skill-building activities\, and network with other patient and family partners? Consider signing up for a free 3-hour virtual training session developed in collaboration by CIHI and the Patient Advisors Network (PAN).
URL:https://canadianrdn.ca/event/cihi-foundations-of-patient-partnering-virtual-sessions-2/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250128T080000
DTEND;TZID=America/Chicago:20250128T090000
DTSTAMP:20260403T222842
CREATED:20240830T232123Z
LAST-MODIFIED:20240830T232123Z
UID:5541-1738051200-1738054800@canadianrdn.ca
SUMMARY:ERKNet Webinar: "Streptococcus pneumoniae-HUS" by Nicole vande Kar
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-streptococcus-pneumoniae-hus-by-nicole-vande-kar/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T110000
DTEND;TZID=America/New_York:20250129T120000
DTSTAMP:20260403T222842
CREATED:20250107T230522Z
LAST-MODIFIED:20250107T230522Z
UID:7323-1738148400-1738152000@canadianrdn.ca
SUMMARY:Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools\, Healthcare\, and Community
DESCRIPTION:What do children with disabilities and their families need to thrive? A team of researchers\, mothers\, and children and youth with disabilities set out to answer this question by exploring their experiences during the COVID-19 pandemic and beyond. Their mission? To uncover what supports and services — spanning healthcare\, education\, and community life — families need now and in the future.
URL:https://canadianrdn.ca/event/building-bridges-essential-supports-for-children-with-disabilities-and-their-families-in-schools-healthcare-and-community/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/1735920103362.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250130T160000
DTEND;TZID=Europe/Paris:20250130T170000
DTSTAMP:20260403T222842
CREATED:20250121T232927Z
LAST-MODIFIED:20250121T232927Z
UID:7380-1738252800-1738256400@canadianrdn.ca
SUMMARY:Update on Guillain-Barré Syndrome Guidelines
DESCRIPTION:
URL:https://canadianrdn.ca/event/update-on-guillain-barre-syndrome-guidelines/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250130T183000
DTEND;TZID=America/New_York:20250130T193000
DTSTAMP:20260403T222842
CREATED:20250107T230827Z
LAST-MODIFIED:20250107T230827Z
UID:7326-1738261800-1738265400@canadianrdn.ca
SUMMARY:Research Grant Announcement 2024
DESCRIPTION:
URL:https://canadianrdn.ca/event/research-grant-announcement-2024/
CATEGORIES:Events,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR