Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights, and cGMP Gene Therapy Manufacturing capabilities in Canada
2025-10-01 13:00 - 16:00 (America/Toronto)
The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness.
This virtual symposium will convene international regulatory authorities, Canadian manufacturing experts, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.

CAGC & CCMG Joint Conference
2025-10-05 08:00 - 2025-10-08 17:00 (America/Edmonton)
The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations, workshops, breakout sessions, abstract sessions, and engagement with industry partners, the event propels forward clinical practice, scientific advancements, and excellence across all aspects of genetics in Canada.

Connected Minds: Exploring the Intersection of Brains, Machines & Society
2025-10-06 08:00 - 2025-10-08 17:00 (America/Toronto)
Explore the future of tech, health & society at the Connected Minds Conference 2025, where ideas ignite and innovation thrives!

Global Alliance for Genomics and Health (GA4GH) 13th Plenary
2025-10-06 08:00 - 2025-10-10 17:00 (Europe/Paris)
GA4GH 13th Plenary will bring together the global genomics and health community for workshops, presentations, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.

30th Annual International Congress of the World Muscle Society
2025-10-07 08:00 - 2025-10-11 17:00 (Europe/Vienna)
The World Muscle Society is a dynamic community that aims to promote, disseminate, and share all aspects of neuromuscular physiology and diseases, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.

Rare Diseases International-Community Conversations on Mental Health
2025-10-10 07:00 - 08:00 (America/Edmonton)

A Conversation About Patient Partner Outsider Syndrome
2025-10-15 10:00 - 11:30 (America/Edmonton)
Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However, findings from the Patient Advisors Network (PAN) “Reimagining the Research Landscape” report, commissioned by CIHR in 2024 for the SPOR Refresh, revealed that patient/caregiver partners often feel like outsiders in the research ecosystem. This webinar will take a deeper dive into the OSSU Research Day presentation “Why do patient/caregiver partners feel like outsiders?”
Ms. Maureen Smith will moderate a frank discussion between two of the report authors, Mses. Alies Maybee and Annette McKinnon, and PAN Board member Ms. Sandra Holdsworth, and leading patient-oriented researchers Drs. Manoj Lalu, Ambreen Sayani and Stuart Nicholls, on the barriers uncovered by the report and showcasing best practices to mitigate these barriers.

2nd Canadian Symposium on Neurofibromatosis
2025-10-16 08:00 - 2025-10-17 17:00 (America/Edmonton)
This Symposium is aimed at the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers).

Aging Out: Transition of care for children with rare neurodevelopmental disorders
2025-10-16 12:30 - 13:30 (America/Toronto)
Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases, qualified specialists are hard to find. After years of assembling a trusted pediatric care team, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care.
What strategies would ease the pediatric to adult care transition? This webcast will bring health care providers, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.

RQMO 2025 Education Day
2025-10-18 08:00 - 17:00 (America/Toronto)
Under the theme “Rare Diseases: Let’s Break Isolation Together!”, this event aims to build bridges between those who live the daily reality of rare diseases and those who accompany and care for them.

International Neurology Conference 2025 | Mental Health Conference, Thailand
2025-10-18 08:00 - 2025-10-19 17:00 (Asia/Krasnoyarsk)
Neurology & Mental Health conference 2025 is set to be held on the 18th and 19th of October 2025, in Bangkok, Thailand in hybrid mode, allowing everyone to gain knowledge and providing a platform for discussing the latest advancements in treatments and techniques, future and present challenges, and sharing invaluable experiences in Neurology and allied disciplines. The event will feature plenary lectures, speeches, research & technical presentations, and hands-on experience workshops to help shape the future of neurology & psychiatry.

KTDRR’s 2025 Virtual Knowledge Translation Conference
2025-10-20 13:00 - 2025-10-23 16:00 (America/Toronto)
This conference will look at different ways to make knowledge translation (KT) more effective and impactful. They seek presentations that will discuss how to measure the success of KT efforts, including involving users early on, working with people with disabilities, and customizing products and outreach to meet user needs. They’ll also look for presentations that talk about sharing KT content online, ensuring it’s credible, teaching digital literacy, spotting false information, and making sure disability is represented accurately. In addition, they encourage presentations that explore how technology can boost KT projects, such as using digital tools to build online communities, check text readability, and summarize research. They also welcome presentations that highlight the role of artificial intelligence (AI) in creating easy-to-understand summaries, organizing research, addressing AI bias, and writing effective prompts. Join them to discover new strategies and tools to enhance your KT efforts.

Building Bridges: Advancing Collaborative Pediatric Palliative Care
2025-10-22 08:00 - 17:00 (America/Toronto)
This pediatric palliative care symposium is for health care professionals interested in increasing their knowledge and skill in working with children with serious illness and their families.
The goal is to share research and clinical experiences that broaden the perspectives and collaborative efforts to enhance the care delivery in hospital, home and hospice.
Pediatric-focused clinician’s and adult palliative care clinicians most welcome

The World Orphan Drug Congress
2025-10-27 08:00 - 2025-10-29 17:00 (Europe/Amsterdam)
The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe.
From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.

The 5th Annual Canadian Children, Youth and Communities (CCYC) In | Equity Conference
2025-10-29 08:00 - 2025-10-30 17:00 (America/Toronto)
This conference reaches a national, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together, you’ll explore how sustainable solutions and community partnerships can improve child and youth health equity.

Cardiac Precision Medicine in the 21st Century
2025-10-29 08:00 - 2025-10-31 17:00 (America/Toronto)
The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme, “Cardiac Precision Medicine in the 21st Century,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine.
This event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati.

Easing Pain, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
2025-10-29 09:00 - 10:00 (America/Edmonton)
This webinar will provide an overview of the multi-phased project, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians, children with health complexity, and their families; as well as key lessons for patient-oriented research and implementation science.

YPAHD Day + National Conference
2025-10-30 08:00 - 2025-11-01 17:00 (America/Toronto)

They are sacred: First Nations' Journey in Autistic Care and Advocacy
2025-10-30 11:00 - 12:00 (America/Edmonton)
UPCOMING RESEARCH FORUM | Grant Bruno, Mariam Ahmad and Tierney Littlechild offer insights on how First Nations families, Elders, autistic individuals, and community leaders are reshaping autism support through Indigenous knowledge, ceremony, and relational approaches.

Ehlers-Danlos Society ECHO Summit: Mental Health
2025-11-01 08:00 - 18:00 (America/Edmonton)
The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health, a virtual event held on November 1, 2025. This event is suitable for community members, their friends, families, and caregivers, as well as healthcare professionals.
This event will feature presentations, case studies, and panel discussions around the latest management and care strategies, featuring presentations on the following topics:

The Mind/Body Connection
Coping with a Diagnosis
Intersectionality
Neurodivergence
Practical Management Strategies

Canadian Caregiving Summit 2025
2025-11-03 08:00 - 2025-11-04 17:00 (America/New_York)
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence, will mobilize caregivers, care providers, systems leaders, policy makers and researchers across the aging, disability and healthcare communities to work together to make caregiving a national priority.

Screen4Rare: Making AI Diagnosis Understandable
2025-11-04 05:30 - 07:30 (America/Edmonton)
A co-creation workshop inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable, trustworthy and human.

Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
2025-11-04 13:00 - 2025-11-06 17:00 (America/Toronto)
This will include presentations and panel discussions focused on current scientific findings, the opportunities to strengthen research design, and the need to create more inclusive and accessible research spaces.

Webinar: Health Financing & Social Health Protection for Rare Diseases
2025-11-05 06:00 - 08:00 (America/Edmonton)
Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that concretely promote effective health coverage, increased access and adequate financial protection for people living with rare diseases.

IPIC 2025
2025-11-05 08:00 - 2025-11-07 17:00 (Europe/Helsinki)
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. With a truly international impact, the congress has earned its definite place and role in the PID clinical landscape.

The McMaster Immune Thrombocytopenia (ITP) Summit 2025
2025-11-07 08:00 - 17:00 (America/Toronto)
By attending this activity, participants will be able to:

Compare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).
Evaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.
Interpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.
Discuss the role of antibody, complement, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.

2025 Canadian Fragile X Conference
2025-11-07 08:00 - 2025-11-08 17:00 (America/Toronto)
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference

TSF's Toronto Patient Day for Rare Neuroinflammatory Disorders
2025-11-08 11:00 - 17:00 (America/Toronto)
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!

42nd International Conference on Advances in Psychiatry and Mental Health
2025-11-10 08:00 - 2025-11-11 17:00 (Asia/Dubai)
This premier event will bring together leading experts, researchers, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists, psychologists, researchers, clinicians, mental health professionals, neuroscientists, healthcare practitioners, academicians, and industry experts to join us on November 10-11, 2025, in Dubai, UAE.

ISCT North America Regional Virtual Town Hall
2025-11-10 12:00 - 14:00 (America/Toronto)
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan, leader of the gene therapy program for non-malignant disorders, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
