Canadian Rare Disease Network

Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
2025-11-04 13:00 - 2025-11-06 17:00 (America/Toronto)
This will include presentations and panel discussions focused on current scientific findings, the opportunities to strengthen research design, and the need to create more inclusive and accessible research spaces.

Webinar: Health Financing & Social Health Protection for Rare Diseases
2025-11-05 06:00 - 08:00 (America/Edmonton)
Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that concretely promote effective health coverage, increased access and adequate financial protection for people living with rare diseases.

IPIC 2025
2025-11-05 08:00 - 2025-11-07 17:00 (Europe/Helsinki)
IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. With a truly international impact, the congress has earned its definite place and role in the PID clinical landscape.

The McMaster Immune Thrombocytopenia (ITP) Summit 2025
2025-11-07 08:00 - 17:00 (America/Toronto)
By attending this activity, participants will be able to:

Compare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).
Evaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.
Interpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.
Discuss the role of antibody, complement, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.

2025 Canadian Fragile X Conference
2025-11-07 08:00 - 2025-11-08 17:00 (America/Toronto)
November 7–8, 2025 | Toronto, Ontario Canada’s first national Fragile X conference

TSF's Toronto Patient Day for Rare Neuroinflammatory Disorders
2025-11-08 11:00 - 17:00 (America/Toronto)
TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!

42nd International Conference on Advances in Psychiatry and Mental Health
2025-11-10 08:00 - 2025-11-11 17:00 (Asia/Dubai)
This premier event will bring together leading experts, researchers, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists, psychologists, researchers, clinicians, mental health professionals, neuroscientists, healthcare practitioners, academicians, and industry experts to join us on November 10-11, 2025, in Dubai, UAE.

ISCT North America Regional Virtual Town Hall
2025-11-10 12:00 - 14:00 (America/Toronto)
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan, leader of the gene therapy program for non-malignant disorders, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).

Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
2025-11-13 10:00 - 11:30 (America/Edmonton)
Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut, Assistant Professor and regular researcher at the CHUM Research Centre, Université de Montréal
Moderator: Jonathan Pratt, Executive Director of the RQMO

3rd Edition on International Neurology Conference 2025 in USA
2025-11-15 08:00 - 2025-11-16 17:00 (America/New_York)

Pan-Canadian OMOP Common Data Model Engagement Event
2025-11-17 08:00 - 2025-11-18 17:00 (America/Toronto)
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.

ITINERARE Symposium 2025
2025-11-18 08:00 - 17:00 (Europe/Zurich)
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.

2025 IMPaCT Summit
2025-11-18 08:00 - 2025-11-19 17:00 (America/New_York)

IP Strategies for Repurposing
2025-11-21 06:00 - 07:30 (America/Edmonton)
Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes.

Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
2025-11-22 11:00 - 16:00 (America/Toronto)
Bringing together neuroscience researchers, patients, advocates and caregivers to highlight brain health research in an accessible format.

CORD: Rare Disease Conference Fall 2025
2025-11-25 08:00 - 2025-11-26 17:00 (America/Toronto)

Hope on the Horizon: Trials, Treatments and Therapies for DMD, DM1 & MG
2025-11-26 18:00 - 2025-11-28 19:00 (America/Toronto)
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events!
These webinars are geared towards family members and people living with NMDs.
Join us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!

Child Health and Wellness Seminar: The Evolution of Medical AI: Progress, Potential, and Responsibility
2025-12-01 08:30 - 09:30 (America/Edmonton)
The Evolution of Medical AI: Progress, Potential, and Responsibility Speaker: Dr. Eman Rezk, PhD NSERC Postdoctoral Fellow Department of Electrical and Computer Engineering, University of Waterloo Host: Dr. Mohamed Eltorki, MD, FRCPC Associate Professor, University of Calgary

CARELeuko Symposium 2025
2025-12-05 08:00 - 17:00 (America/Toronto)
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care!
The 2025 CARELeuko Symposium is taking place on Friday, December 5, 2025, at the Research Institute of the McGill University Health Centre in Montreal, Quebec, Canada.

36th International Symposium on ALS/MND
2025-12-05 08:00 - 2025-12-07 17:00 (America/Los_Angeles)
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease.

STAGE International Speaker Seminar Series (ISSS)-Laura Arbour
2025-12-05 12:30 - 13:30 (America/Edmonton)
Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project

FA Together: Learn. Share. Connect. mini-regional conference in Calgary
2025-12-08 17:00 - 19:00 (America/Edmonton)

Webinar: 'The importance of genetic counselling in the diagnostic of rare neurological disorders' by Maria Judit Molnar
2025-12-09 07:00 - 09:00 (America/Edmonton)
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
2025-12-09 08:00 - 2025-12-10 17:00 (America/Edmonton)
This second edition will convene a wide range of international experts, including researchers, clinicians, patient advocates, industry representatives, policymakers, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.

Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies
2025-12-10 10:00 - 12:00 (America/Edmonton)
Full title: Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies
Episode 3 of the RQMO – RARE webinar series. QC presented by Anais Medouni, PhD student in Anatomy and Cell Biology in the laboratory of Dr. Gregor Andelfinger, CHU Sainte Justine Research Center, Université de Montréal
Moderator: Jonathan Pratt, Executive Director of the RQMO

Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
2025-12-11 17:30 - 18:30 (America/Edmonton)
The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD, seronegative NMOSD, and MOGAD in Canada.

Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
2025-12-12 12:00 - 14:00 (America/Edmonton)

Duchenne Patient Academy 2025
2025-12-13 08:00 - 2025-12-14 17:00 (America/Edmonton)

SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
2025-12-13 11:00 - 14:00 (America/Toronto)
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal muscular atrophy, including:

ERDERA: Joint Transnational Call 2026
2025-12-16 15:00 - 17:00 (America/Edmonton)
This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025, 15:00–17:00 CET, focusing on resolving unsolved rare genetic and non‑genetic diseases.
