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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VTIMEZONE
TZID:Europe/Paris
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20240331T010000
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TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20241027T010000
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
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TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20241206T080000
DTEND;TZID=UTC:20241207T170000
DTSTAMP:20260404T095419
CREATED:20241112T225700Z
LAST-MODIFIED:20241112T225700Z
UID:6985-1733472000-1733590800@canadianrdn.ca
SUMMARY:Duchenne Patient Academy 2024!
DESCRIPTION:This year\, the 8th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. \nDuchenne Patient Academy 2024 will take place on Friday December 6\, and Saturday December 7 fully online. \nOver the course of 2 days\, Duchenne Patient Academy attendees will listen to speakers and attend panel discussions moderated by experts in their respective fields. As with last year\, attendees have the opportunity to become involved in the dialogue and share their experiences.
URL:https://canadianrdn.ca/event/duchenne-patient-academy-2024/
CATEGORIES:Events,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/11/Screen-Shot-2020-09-21-at-12.19.48-e1600697688245.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241205T080000
DTEND;TZID=UTC:20241205T170000
DTSTAMP:20260404T095419
CREATED:20241017T225206Z
LAST-MODIFIED:20241121T024034Z
UID:6105-1733385600-1733418000@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation: Annual Research Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-annual-research-conference/
CATEGORIES:Conferences,Healthcare,International,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241205T080000
DTEND;TZID=America/Chicago:20241205T090000
DTSTAMP:20260404T095419
CREATED:20240830T231913Z
LAST-MODIFIED:20240830T231913Z
UID:5537-1733385600-1733389200@canadianrdn.ca
SUMMARY:IPNA Webinar: Nutritional management during AKI
DESCRIPTION:The webinar will discuss the current recommendations on nutritional management among children suffering from acute kidney injury.
URL:https://canadianrdn.ca/event/ipna-webinar-nutritional-management-during-aki/
CATEGORIES:Caregiver,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241204T190000
DTEND;TZID=America/New_York:20241204T200000
DTSTAMP:20260404T095419
CREATED:20241203T024251Z
LAST-MODIFIED:20241203T024251Z
UID:7119-1733338800-1733342400@canadianrdn.ca
SUMMARY:Hemophilia gene therapy webinar – December 4\, 2024
DESCRIPTION:
URL:https://canadianrdn.ca/event/hemophilia-gene-therapy-webinar-december-4-2024/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241204T110000
DTEND;TZID=America/Denver:20241204T120000
DTSTAMP:20260404T095419
CREATED:20241130T022325Z
LAST-MODIFIED:20241130T022325Z
UID:7098-1733310000-1733313600@canadianrdn.ca
SUMMARY:Accessing Data through DASH
DESCRIPTION:Learn how HDRN Canada’s Data Access Support Hub (DASH) can help health researchers access multi-regional data.
URL:https://canadianrdn.ca/event/accessing-data-through-dash/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241203T080000
DTEND;TZID=America/Halifax:20241203T170000
DTSTAMP:20260404T095419
CREATED:20240523T213710Z
LAST-MODIFIED:20240531T021448Z
UID:4222-1733212800-1733245200@canadianrdn.ca
SUMMARY:Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
DESCRIPTION:Earlier this year\, NMD4C\, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). \nTo complement this training session\, the NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. \nThis workshop will be taking place the day before the Allied Professionals Forum in Montreal. \nPlease ensure you register before the deadline of June 18th\, 2024.
URL:https://canadianrdn.ca/event/spinal-muscular-atrophy-outcome-measures-workshop-english-language/
LOCATION:Le Centre Sheraton Montreal\, Montreal\, Quebec\, Canada
CATEGORIES:Healthcare,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241203T080000
DTEND;TZID=America/Chicago:20241203T090000
DTSTAMP:20260404T095419
CREATED:20240830T231742Z
LAST-MODIFIED:20240830T231742Z
UID:5535-1733212800-1733216400@canadianrdn.ca
SUMMARY:ERKNet Webinar: "FSGS in adults" by Peter Conlon
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-fsgs-in-adults-by-peter-conlon/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241202T080000
DTEND;TZID=America/Denver:20241203T170000
DTSTAMP:20260404T095419
CREATED:20241121T024400Z
LAST-MODIFIED:20241121T024400Z
UID:7020-1733126400-1733245200@canadianrdn.ca
SUMMARY:Child Health Hub in Transition to Adult Healthcare
DESCRIPTION:The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3\, 2023\, at the beautiful Hyatt Regency in downtown Vancouver. This event aims to bring together youth\, families\, trainees\, researchers\, clinicians\, and policy/decision makers to celebrate the best of what we are learning\, and doing\, to help young people to develop fully\, even when they are challenged by health conditions. For those unable to join in-person\, aspects of the event will be made available in a virtual format.
URL:https://canadianrdn.ca/event/child-health-hub-in-transition-to-adult-healthcare/
CATEGORIES:Caregiver,Healthcare,Hybrid,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241202T080000
DTEND;TZID=UTC:20241203T170000
DTSTAMP:20260404T095419
CREATED:20241031T212706Z
LAST-MODIFIED:20241031T212706Z
UID:6880-1733126400-1733245200@canadianrdn.ca
SUMMARY:Organoid Symposium & Workshop
DESCRIPTION:Stem Cell Network is excited to partner with the University of Toronto’s Applied Organoid Core in delivering the 2024 Organoid Symposium: Generation and Applications of iPSC-Derived Organoid Models! \nHuman pluripotent stem cell (hPSC)-derived organoid research offers unique opportunities to explore human disease\, advance personalized drug discovery\, and study complex biological processes such as development and disease progression. \nThis two-day Symposium\, offered in a hybrid format\, will highlight cutting-edge research and developments in the field of organoids. The symposium includes national and international speakers with expertise in the development and utilization of organoid models across a range of tissue types.
URL:https://canadianrdn.ca/event/organoid-symposium-workshop/
CATEGORIES:Conferences,Healthcare,Hybrid,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/Screenshot-2024-10-16-at-9.27.12 AM-768x226-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241127T180000
DTEND;TZID=Europe/Paris:20241127T190000
DTSTAMP:20260404T095419
CREATED:20241126T225916Z
LAST-MODIFIED:20241126T225916Z
UID:7051-1732730400-1732734000@canadianrdn.ca
SUMMARY:Outcomes and challenges in Spina Bifida: bridging adolescence and adulthood
DESCRIPTION:This webinar explores the challenges individuals with spina bifida face from adolescence to adulthood\, focusing on patient-reported outcomes (PROMs) and urological management. Neurogenic bladder\, a prevalent complication in SB\, often leads to incontinence\, hydronephrosis\, and urinary tract infections\, which may significantly affect quality of life (QoL). Advances in medical and surgical management have reduced the risk of renal failure\, yet continence remains a persistent issue. Drawing on literature on PROMs and urological outcomes\, we examine general health and bladder-specific outcomes\, including tools to examine these. Factors influencing QoL include clean intermittent catheterization\, transition readiness\, mental health\, and social support. Despite multimodal interventions\, incontinence continues to impact daily life. The session highlights the importance of PROMs and multidisciplinary approaches to optimize care and improve long-term outcomes for SB patients.
URL:https://canadianrdn.ca/event/outcomes-and-challenges-in-spina-bifida-bridging-adolescence-and-adulthood/
CATEGORIES:Healthcare,Industry,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241126T150000
DTEND;TZID=Europe/Paris:20241126T160000
DTSTAMP:20260404T095419
CREATED:20241031T213740Z
LAST-MODIFIED:20241031T213740Z
UID:6890-1732633200-1732636800@canadianrdn.ca
SUMMARY:'Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases' by Nicole Wolf
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/differential-diagnosis-aside-from-neuroimaging-for-non-leukodystrophy-white-matter-diseases-by-nicole-wolf/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241126T080000
DTEND;TZID=America/Halifax:20241127T170000
DTSTAMP:20260404T095419
CREATED:20240917T220323Z
LAST-MODIFIED:20240917T220323Z
UID:5823-1732608000-1732726800@canadianrdn.ca
SUMMARY:Fall 2024 Rare Disease Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/fall-2024-rare-disease-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241125T100000
DTEND;TZID=America/Chicago:20241125T110000
DTSTAMP:20260404T095419
CREATED:20241105T223052Z
LAST-MODIFIED:20241105T223052Z
UID:6943-1732528800-1732532400@canadianrdn.ca
SUMMARY:The Role of Genetic Counselors in Genomic Mainstreaming
DESCRIPTION:The Role of Genetic Counselors in Genomic Mainstreaming is an international panel discussion and interactive Q & A with Demetra Georgiou\, Genomic Transformation Manager at Imperial College Healthcare NHS Trust\, Jill Stopfer\, Associate Director of Genetic Counseling at the Dana Farber Cancer Institute\, and Laura Hercher\, Director of Student Research at Sarah Lawrence College Human Genetics Program\, hosted by Kira Dineen\, DNA Today’s Founder\, Producer\, and Host.
URL:https://canadianrdn.ca/event/the-role-of-genetic-counselors-in-genomic-mainstreaming/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241124T080000
DTEND;TZID=America/Halifax:20241125T170000
DTSTAMP:20260404T095419
CREATED:20241007T215427Z
LAST-MODIFIED:20241007T215427Z
UID:6046-1732435200-1732554000@canadianrdn.ca
SUMMARY:Genetic Rare Immune Disorders Symposium (GRIDS)
DESCRIPTION:GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
URL:https://canadianrdn.ca/event/genetic-rare-immune-disorders-symposium-grids/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/GRIDS-LOGO_800pxW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241121T190000
DTEND;TZID=America/Chicago:20241121T200000
DTSTAMP:20260404T095419
CREATED:20241118T224118Z
LAST-MODIFIED:20241118T224118Z
UID:7004-1732215600-1732219200@canadianrdn.ca
SUMMARY:National Advocacy Update
DESCRIPTION:Join Cystic Fibrosis Canada’s National Advocacy Update on Thursday\, November 21\, from 7-8 PM ET. This virtual event is open to volunteer advocates\, and anyone wanting to advocate for individuals living with cystic fibrosis.
URL:https://canadianrdn.ca/event/national-advocacy-update/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241121T160000
DTEND;TZID=Europe/Paris:20241121T170000
DTSTAMP:20260404T095419
CREATED:20241031T213608Z
LAST-MODIFIED:20241031T213608Z
UID:6888-1732204800-1732208400@canadianrdn.ca
SUMMARY:Muscle pathology of storage diseases with focus on plyglucosan and lipid storage myopathies
DESCRIPTION:Delivered by Prof. Anders Oldfors (University of Gothenburg\, Sweden) on November 21st 2024 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel.
URL:https://canadianrdn.ca/event/muscle-pathology-of-storage-diseases-with-focus-on-plyglucosan-and-lipid-storage-myopathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241120T170000
DTEND;TZID=Europe/Paris:20241120T180000
DTSTAMP:20260404T095419
CREATED:20241119T234913Z
LAST-MODIFIED:20241119T234913Z
UID:7016-1732122000-1732125600@canadianrdn.ca
SUMMARY:Webinar on ''mental health and behavioral difficulties in children with rare neonatal surgical disease''
DESCRIPTION:You are invited to join an insightful webinar hosted by ERNICA\, eUROGEN\, and EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical disease: assessment\, outcomes and implications for research\, policy and practice’. \nThis interactive session will raise awareness of the mental health and behavioral challenges faced by children with rare neonatal surgical conditions\,
URL:https://canadianrdn.ca/event/webinar-on-mental-health-and-behavioral-difficulties-in-children-with-rare-neonatal-surgical-disease/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241120T130000
DTEND;TZID=America/Chicago:20241120T140000
DTSTAMP:20260404T095419
CREATED:20241107T230330Z
LAST-MODIFIED:20241107T230330Z
UID:6970-1732107600-1732111200@canadianrdn.ca
SUMMARY:ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials.
URL:https://canadianrdn.ca/event/als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241119T150000
DTEND;TZID=Europe/Paris:20241119T160000
DTSTAMP:20260404T095419
CREATED:20241031T213420Z
LAST-MODIFIED:20241031T213420Z
UID:6886-1732028400-1732032000@canadianrdn.ca
SUMMARY:'Autonomic dysfunction in movement disorders' by Pietro Guaraldi
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/autonomic-dysfunction-in-movement-disorders-by-pietro-guaraldi/
CATEGORIES:International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241119T080000
DTEND;TZID=America/Denver:20241119T090000
DTSTAMP:20260404T095419
CREATED:20240830T231620Z
LAST-MODIFIED:20240830T231620Z
UID:5533-1732003200-1732006800@canadianrdn.ca
SUMMARY:ERKNet Webinar: "Highlights from the KDIGO Clinical Practice Guideline for ADPKD" by Olivier Devuyst
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-highlights-from-the-kdigo-clinical-practice-guideline-for-adpkd-by-olivier-devuyst/
CATEGORIES:Clinical Trials,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241118
DTEND;VALUE=DATE:20241119
DTSTAMP:20260404T095419
CREATED:20240618T030756Z
LAST-MODIFIED:20240618T030756Z
UID:4471-1731888000-1731974399@canadianrdn.ca
SUMMARY:4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
DESCRIPTION:The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan\, Italy and offers access to the latest research and analysis related to this rare disease. \nMeeting participants will gain valuable insights into innovative perspectives in both basic and clinical research. The scientific programme will draw together experts from around the world to discuss breakthroughs in basic research\, advances in clinical practice\, novel therapeutic approaches and new insights into stem-cell and cellular therapies. An ideal forum to share knowledge\, connect with professional colleagues and grow your professional network.
URL:https://canadianrdn.ca/event/4th-annual-symposium-for-researchers-and-clinicians-on-wiskott-aldrich-syndrome/
LOCATION:San Raffaele Institute\, Milan\, Italy
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241114T160000
DTEND;TZID=Europe/Paris:20241114T170000
DTSTAMP:20260404T095419
CREATED:20241031T213203Z
LAST-MODIFIED:20241031T213203Z
UID:6883-1731600000-1731603600@canadianrdn.ca
SUMMARY:'DBS in Dystonia - the network perspective' by Juho Joutsa
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/dbs-in-dystonia-the-network-perspective-by-juho-joutsa/
CATEGORIES:Healthcare,International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241113T110000
DTEND;TZID=America/Chicago:20241113T120000
DTSTAMP:20260404T095419
CREATED:20241105T222729Z
LAST-MODIFIED:20241112T223415Z
UID:6940-1731495600-1731499200@canadianrdn.ca
SUMMARY:Neuroinclusion at Work: Six Principles for Inclusion
DESCRIPTION:In this presentation\, facilitators will walk attendees through Six Principles that promote more supportive and\, ultimately\, successful work environments. In addition to explaining the basic concepts of each principle\, attendees will receive practical\, actionable ideas and strategies to apply the principles in your own workplace.
URL:https://canadianrdn.ca/event/neuroinclusion-at-work-six-principles-for-inclusion/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241112T080000
DTEND;TZID=UTC:20241115T170000
DTSTAMP:20260404T095419
CREATED:20241112T224717Z
LAST-MODIFIED:20241112T224717Z
UID:6976-1731398400-1731690000@canadianrdn.ca
SUMMARY:2024 International Congress for Ataxia Research
DESCRIPTION:Today marks the opening of the largest-ever scientific conference on ataxia research — the International Congress for Ataxia Research (ICAR) is welcoming a record-setting 600 attendees. The London-based conference runs through to November 15 and will be a comprehensive scientific review of new research into the ataxias\, covering topics from advances in genetics and disease mechanisms to therapeutics approaches\, as well as a debate on emerging ataxia research topics. ICAR represents a strong collaboration between global advocacy organizations focused on advancing research for ataxia\, including co-hosts Ataxia UK\, Friedreich’s Ataxia Research Alliance (FARA)\, National Ataxia Foundation (NAF)\, and Ataxia Global Initiative (AGI).
URL:https://canadianrdn.ca/event/2024-international-congress-for-ataxia-research/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241109T083000
DTEND;TZID=America/New_York:20241109T130000
DTSTAMP:20260404T095419
CREATED:20241107T230742Z
LAST-MODIFIED:20241107T230742Z
UID:6973-1731141000-1731157200@canadianrdn.ca
SUMMARY:Montreal Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/montreal-patient-education-meeting-in-person/
CATEGORIES:Caregiver,Conferences,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241108T160000
DTEND;TZID=America/Halifax:20241108T170000
DTSTAMP:20260404T095419
CREATED:20241106T224356Z
LAST-MODIFIED:20241106T224356Z
UID:6958-1731081600-1731085200@canadianrdn.ca
SUMMARY:Understanding Your Lab Results
DESCRIPTION:Making sense of your lab tests involves more than just knowing why the test is done. It’s also important to understand what the results mean and what can affect the results.  Join the webinar to better understand how your results affect your treatment and help you to manage your MDS\, AA or PNH.
URL:https://canadianrdn.ca/event/understanding-your-lab-results/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241108T080000
DTEND;TZID=UTC:20241109T170000
DTSTAMP:20260404T095419
CREATED:20241017T212626Z
LAST-MODIFIED:20241017T212626Z
UID:6093-1731052800-1731171600@canadianrdn.ca
SUMMARY:Global Congress of the GANSID: November 8-9\, 2024
DESCRIPTION:GANSID Congress 2024 is the 2nd Congress of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) taking place virtually to ensure all clinicians\, people with hereditary blood disorders\, and global advocates can participate from any part of the world.
URL:https://canadianrdn.ca/event/global-congress-of-the-gansid-november-8-9-2024/
CATEGORIES:Conferences,Healthcare,International,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/462814113_1091299899663904_8574680770729088772_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241107T190000
DTEND;TZID=America/New_York:20241107T200000
DTSTAMP:20260404T095419
CREATED:20241106T224244Z
LAST-MODIFIED:20241106T224244Z
UID:6955-1731006000-1731009600@canadianrdn.ca
SUMMARY:Nutrition for your Energy and Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/nutrition-for-your-energy-and-health/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241107T130000
DTEND;TZID=America/Chicago:20241107T140000
DTSTAMP:20260404T095419
CREATED:20241031T211720Z
LAST-MODIFIED:20241031T211720Z
UID:6874-1730984400-1730988000@canadianrdn.ca
SUMMARY:Measuring the Value of Genomics in Healthcare
DESCRIPTION:This virtual workshop will focus on exchanging strategies\, tools and experience in measuring the value of genomic testing in healthcare. Demonstrating value is key in informing health technology assessments (HTAs)\, clinical practice and policy decisions and yet standardized outcome measures and frameworks are still in their infancy. The task of demonstrating value is further complicated by genomic technologies and their clinical applications continuing to evolve at pace.
URL:https://canadianrdn.ca/event/measuring-the-value-of-genomics-in-healthcare/
CATEGORIES:Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/22ddcbc7-2021-4d95-a9f8-02c0612d0602.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241107T080000
DTEND;TZID=America/Denver:20241107T090000
DTSTAMP:20260404T095419
CREATED:20240830T231441Z
LAST-MODIFIED:20240830T231441Z
UID:5531-1730966400-1730970000@canadianrdn.ca
SUMMARY:IPNA Webinar: 2024 ISPD guidelines on peritonitis and exit site infection in children receiving peritoneal dialysis
DESCRIPTION:
URL:https://canadianrdn.ca/event/ipna-webinar-2024-ispd-guidelines-on-peritonitis-and-exit-site-infection-in-children-receiving-peritoneal-dialysis/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR