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TZID:America/Halifax
BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
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DTSTART:20230312T060000
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DTSTART:20231105T050000
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BEGIN:DAYLIGHT
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TZOFFSETTO:-0300
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DTSTART:20240310T060000
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TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20241103T050000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
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DTSTART:20250309T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T120000
DTEND;TZID=America/New_York:20250116T130000
DTSTAMP:20260404T080009
CREATED:20241217T235100Z
LAST-MODIFIED:20241217T235100Z
UID:7271-1737028800-1737032400@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
DESCRIPTION:Learning Objectives: \n\nReview the ways in which patients can contribute as partners on your CHIR grant application\nIdentify the challenges and barriers to patients in fulfilling grant application requirements and how researchers can support patient partners\nDescribe the considerations specific to grant application requirements for researchers working with patient partners from groups who are frequently under-served by health research
URL:https://canadianrdn.ca/event/act-canada-webinar-series-engaging-patient-partners-in-your-cihr-grant-application-everything-you-ever-wanted-to-know-with-maureen-smith-andrea-chow-ontario/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T120000
DTEND;TZID=America/New_York:20250115T123000
DTSTAMP:20260404T080009
CREATED:20250109T233230Z
LAST-MODIFIED:20250109T233230Z
UID:7349-1736942400-1736944200@canadianrdn.ca
SUMMARY:Webinar-Genetic Carriers of PKU-Possible Health and Metabolic Implications?
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-genetic-carriers-of-pku-possible-health-and-metabolic-implications/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250114T180000
DTEND;TZID=America/New_York:20250114T190000
DTSTAMP:20260404T080009
CREATED:20241228T053546Z
LAST-MODIFIED:20241228T053546Z
UID:7291-1736877600-1736881200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target
DESCRIPTION:NMD4C and MDC are pleased to invite you to a webinar on Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target. NMD4C and MDC are providing organizational and technical support. This is a an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-exploring-the-clinical-trial-landscape-in-duchenne-muscular-dystrophy-challenges-opportunities-and-consideration-of-a-possible-cholesterol-metabolism-related-target/
CATEGORIES:Clinical Trials,Healthcare,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1735063069640.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250114T140000
DTEND;TZID=Europe/Paris:20250114T160000
DTSTAMP:20260404T080009
CREATED:20250107T232714Z
LAST-MODIFIED:20250107T232714Z
UID:7332-1736863200-1736870400@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Extended Information Webinar
DESCRIPTION:The European Rare Diseases Research Alliance (ERDERA) invites you to the Joint Transnational Call (JTC) 2025 Extended Information Webinar. \nObjectives of this webinar: \nThe webinar scheduled for January 14th aims to provide educational and preparatory support to applicants at the pre-proposal stage\, focusing on key elements that enhance the quality of their submissions. The objectives include: \nInform applicants about lessons learned about the evaluation. \nGuide applicants with key translational\, regulatory\, data managing\, and methodological considerations for drafting strong pre-proposals. \nAddress your questions through dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-extended-information-webinar/
CATEGORIES:International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250114T080000
DTEND;TZID=America/Chicago:20250114T090000
DTSTAMP:20260404T080009
CREATED:20240830T232011Z
LAST-MODIFIED:20240830T232011Z
UID:5539-1736841600-1736845200@canadianrdn.ca
SUMMARY:ERKNet/ESPN Webinar: "Non-cystinosis Fanconi Syndrome" by Elena Levtchenko
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-espn-webinar-non-cystinosis-fanconi-syndrome-by-elena-levtchenko/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241219T113000
DTEND;TZID=Europe/Paris:20241219T130000
DTSTAMP:20260404T080009
CREATED:20241203T024038Z
LAST-MODIFIED:20241203T024038Z
UID:7116-1734607800-1734613200@canadianrdn.ca
SUMMARY:Webinar: How do rare conditions impact family and social relationships
DESCRIPTION:This webinar will explore how rare conditions shape and inform social and family relationships\, drawing from the lived experience of affected individuals\, caregivers and parents\, and siblings. The outcome of the webinar will be a factsheet to help increase awareness about the impact of rare conditions on both social and family relationships\, and how to support these.
URL:https://canadianrdn.ca/event/webinar-how-do-rare-conditions-impact-family-and-social-relationships/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241217T140000
DTEND;TZID=Europe/Paris:20241217T160000
DTSTAMP:20260404T080009
CREATED:20241203T035249Z
LAST-MODIFIED:20241203T035249Z
UID:7127-1734444000-1734451200@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Information Webinar
DESCRIPTION:This Webinar will: \n\nProvide general information on the call\, including its scientific goals\, administrative aspects\, support services\, and patient engagement strategies.\nAddress your questions through two dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-information-webinar/
CATEGORIES:Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/09/ERDERA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241212T120000
DTEND;TZID=America/Denver:20241212T130000
DTSTAMP:20260404T080009
CREATED:20241207T065249Z
LAST-MODIFIED:20241207T065249Z
UID:7180-1734004800-1734008400@canadianrdn.ca
SUMMARY:Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-fragile-x-research-rounds-protein-replacement-therapy-for-fragile-x-syndrome/
CATEGORIES:Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/Canadian-FX-Research-Rounds-7-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T130000
DTEND;TZID=America/New_York:20241211T150000
DTSTAMP:20260404T080009
CREATED:20241127T022934Z
LAST-MODIFIED:20241127T022934Z
UID:7054-1733922000-1733929200@canadianrdn.ca
SUMMARY:ALS Canada Webinar: Exploring Holistic Therapies
DESCRIPTION:Join ALS Canada and a panel of presenters for the ALS Canada Webinar: Exploring Holistic Therapies to learn about various holistic therapies and techniques including Reiki\, deep breathing\, intuitive energy healing\, and wellness drumming. Each presenter will have a small presentation and demonstration.
URL:https://canadianrdn.ca/event/als-canada-webinar-exploring-holistic-therapies/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T123000
DTEND;TZID=America/New_York:20241211T133000
DTSTAMP:20260404T080009
CREATED:20241204T225111Z
LAST-MODIFIED:20241204T225111Z
UID:7149-1733920200-1733923800@canadianrdn.ca
SUMMARY:Conférence sur les mesures et programmes financiers pour les personnes en situation de handicap
DESCRIPTION:
URL:https://canadianrdn.ca/event/conference-sur-les-mesures-et-programmes-financiers-pour-les-personnes-en-situation-de-handicap/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/Finautonome_logo_500_pixel_accueil.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T120000
DTEND;TZID=America/New_York:20241211T130000
DTSTAMP:20260404T080009
CREATED:20241203T024458Z
LAST-MODIFIED:20241203T024458Z
UID:7122-1733918400-1733922000@canadianrdn.ca
SUMMARY:Mental health trajectories and targeted treatments in neurodevelopmental conditions
DESCRIPTION:This presentation will summarize existing evidence as well as evidence gaps regarding mental health outcomes in children with neurodevelopmental conditions including rare genetic disorders.
URL:https://canadianrdn.ca/event/mental-health-trajectories-and-targeted-treatments-in-neurodevelopmental-conditions/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1733163721800.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T150000
DTEND;TZID=America/New_York:20241209T160000
DTSTAMP:20260404T080009
CREATED:20241204T223206Z
LAST-MODIFIED:20241204T223206Z
UID:7145-1733756400-1733760000@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Health Policy Trials Unit: Closing the gap between evidence and policy with David Campbell\, Amity Quinn & Terry Saunders-Smith (Calgary AB)
DESCRIPTION:This webinar will provide an introduction to the Health Policy Trials Unit at the University of Calgary\, which was established with funding from ACT Canada. The presenters will define policy trials and illustrate key elements and challenges of policy trials through examples of past and current projects. Learning objectives: 1. Understand what health policy trials are 2. Recognize why and when to conduct policy trials 3. Identify key components and challenges of health policy trials
URL:https://canadianrdn.ca/event/act-canada-webinar-series-health-policy-trials-unit-closing-the-gap-between-evidence-and-policy-with-david-campbell-amity-quinn-terry-saunders-smith-calgary-ab/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/Gd5WDEZXgAAQCzz.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241206T080000
DTEND;TZID=UTC:20241207T170000
DTSTAMP:20260404T080009
CREATED:20241112T225700Z
LAST-MODIFIED:20241112T225700Z
UID:6985-1733472000-1733590800@canadianrdn.ca
SUMMARY:Duchenne Patient Academy 2024!
DESCRIPTION:This year\, the 8th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. \nDuchenne Patient Academy 2024 will take place on Friday December 6\, and Saturday December 7 fully online. \nOver the course of 2 days\, Duchenne Patient Academy attendees will listen to speakers and attend panel discussions moderated by experts in their respective fields. As with last year\, attendees have the opportunity to become involved in the dialogue and share their experiences.
URL:https://canadianrdn.ca/event/duchenne-patient-academy-2024/
CATEGORIES:Events,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/11/Screen-Shot-2020-09-21-at-12.19.48-e1600697688245.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241205T080000
DTEND;TZID=UTC:20241205T170000
DTSTAMP:20260404T080009
CREATED:20241017T225206Z
LAST-MODIFIED:20241121T024034Z
UID:6105-1733385600-1733418000@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation: Annual Research Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-annual-research-conference/
CATEGORIES:Conferences,Healthcare,International,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241205T080000
DTEND;TZID=America/Chicago:20241205T090000
DTSTAMP:20260404T080009
CREATED:20240830T231913Z
LAST-MODIFIED:20240830T231913Z
UID:5537-1733385600-1733389200@canadianrdn.ca
SUMMARY:IPNA Webinar: Nutritional management during AKI
DESCRIPTION:The webinar will discuss the current recommendations on nutritional management among children suffering from acute kidney injury.
URL:https://canadianrdn.ca/event/ipna-webinar-nutritional-management-during-aki/
CATEGORIES:Caregiver,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241204T190000
DTEND;TZID=America/New_York:20241204T200000
DTSTAMP:20260404T080009
CREATED:20241203T024251Z
LAST-MODIFIED:20241203T024251Z
UID:7119-1733338800-1733342400@canadianrdn.ca
SUMMARY:Hemophilia gene therapy webinar – December 4\, 2024
DESCRIPTION:
URL:https://canadianrdn.ca/event/hemophilia-gene-therapy-webinar-december-4-2024/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241204T110000
DTEND;TZID=America/Denver:20241204T120000
DTSTAMP:20260404T080009
CREATED:20241130T022325Z
LAST-MODIFIED:20241130T022325Z
UID:7098-1733310000-1733313600@canadianrdn.ca
SUMMARY:Accessing Data through DASH
DESCRIPTION:Learn how HDRN Canada’s Data Access Support Hub (DASH) can help health researchers access multi-regional data.
URL:https://canadianrdn.ca/event/accessing-data-through-dash/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241203T080000
DTEND;TZID=America/Halifax:20241203T170000
DTSTAMP:20260404T080009
CREATED:20240523T213710Z
LAST-MODIFIED:20240531T021448Z
UID:4222-1733212800-1733245200@canadianrdn.ca
SUMMARY:Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
DESCRIPTION:Earlier this year\, NMD4C\, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). \nTo complement this training session\, the NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. \nThis workshop will be taking place the day before the Allied Professionals Forum in Montreal. \nPlease ensure you register before the deadline of June 18th\, 2024.
URL:https://canadianrdn.ca/event/spinal-muscular-atrophy-outcome-measures-workshop-english-language/
LOCATION:Le Centre Sheraton Montreal\, Montreal\, Quebec\, Canada
CATEGORIES:Healthcare,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241203T080000
DTEND;TZID=America/Chicago:20241203T090000
DTSTAMP:20260404T080009
CREATED:20240830T231742Z
LAST-MODIFIED:20240830T231742Z
UID:5535-1733212800-1733216400@canadianrdn.ca
SUMMARY:ERKNet Webinar: "FSGS in adults" by Peter Conlon
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-fsgs-in-adults-by-peter-conlon/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241202T080000
DTEND;TZID=America/Denver:20241203T170000
DTSTAMP:20260404T080009
CREATED:20241121T024400Z
LAST-MODIFIED:20241121T024400Z
UID:7020-1733126400-1733245200@canadianrdn.ca
SUMMARY:Child Health Hub in Transition to Adult Healthcare
DESCRIPTION:The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3\, 2023\, at the beautiful Hyatt Regency in downtown Vancouver. This event aims to bring together youth\, families\, trainees\, researchers\, clinicians\, and policy/decision makers to celebrate the best of what we are learning\, and doing\, to help young people to develop fully\, even when they are challenged by health conditions. For those unable to join in-person\, aspects of the event will be made available in a virtual format.
URL:https://canadianrdn.ca/event/child-health-hub-in-transition-to-adult-healthcare/
CATEGORIES:Caregiver,Healthcare,Hybrid,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241202T080000
DTEND;TZID=UTC:20241203T170000
DTSTAMP:20260404T080009
CREATED:20241031T212706Z
LAST-MODIFIED:20241031T212706Z
UID:6880-1733126400-1733245200@canadianrdn.ca
SUMMARY:Organoid Symposium & Workshop
DESCRIPTION:Stem Cell Network is excited to partner with the University of Toronto’s Applied Organoid Core in delivering the 2024 Organoid Symposium: Generation and Applications of iPSC-Derived Organoid Models! \nHuman pluripotent stem cell (hPSC)-derived organoid research offers unique opportunities to explore human disease\, advance personalized drug discovery\, and study complex biological processes such as development and disease progression. \nThis two-day Symposium\, offered in a hybrid format\, will highlight cutting-edge research and developments in the field of organoids. The symposium includes national and international speakers with expertise in the development and utilization of organoid models across a range of tissue types.
URL:https://canadianrdn.ca/event/organoid-symposium-workshop/
CATEGORIES:Conferences,Healthcare,Hybrid,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/Screenshot-2024-10-16-at-9.27.12 AM-768x226-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241127T180000
DTEND;TZID=Europe/Paris:20241127T190000
DTSTAMP:20260404T080009
CREATED:20241126T225916Z
LAST-MODIFIED:20241126T225916Z
UID:7051-1732730400-1732734000@canadianrdn.ca
SUMMARY:Outcomes and challenges in Spina Bifida: bridging adolescence and adulthood
DESCRIPTION:This webinar explores the challenges individuals with spina bifida face from adolescence to adulthood\, focusing on patient-reported outcomes (PROMs) and urological management. Neurogenic bladder\, a prevalent complication in SB\, often leads to incontinence\, hydronephrosis\, and urinary tract infections\, which may significantly affect quality of life (QoL). Advances in medical and surgical management have reduced the risk of renal failure\, yet continence remains a persistent issue. Drawing on literature on PROMs and urological outcomes\, we examine general health and bladder-specific outcomes\, including tools to examine these. Factors influencing QoL include clean intermittent catheterization\, transition readiness\, mental health\, and social support. Despite multimodal interventions\, incontinence continues to impact daily life. The session highlights the importance of PROMs and multidisciplinary approaches to optimize care and improve long-term outcomes for SB patients.
URL:https://canadianrdn.ca/event/outcomes-and-challenges-in-spina-bifida-bridging-adolescence-and-adulthood/
CATEGORIES:Healthcare,Industry,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241126T150000
DTEND;TZID=Europe/Paris:20241126T160000
DTSTAMP:20260404T080009
CREATED:20241031T213740Z
LAST-MODIFIED:20241031T213740Z
UID:6890-1732633200-1732636800@canadianrdn.ca
SUMMARY:'Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases' by Nicole Wolf
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/differential-diagnosis-aside-from-neuroimaging-for-non-leukodystrophy-white-matter-diseases-by-nicole-wolf/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241126T080000
DTEND;TZID=America/Halifax:20241127T170000
DTSTAMP:20260404T080009
CREATED:20240917T220323Z
LAST-MODIFIED:20240917T220323Z
UID:5823-1732608000-1732726800@canadianrdn.ca
SUMMARY:Fall 2024 Rare Disease Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/fall-2024-rare-disease-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241125T100000
DTEND;TZID=America/Chicago:20241125T110000
DTSTAMP:20260404T080009
CREATED:20241105T223052Z
LAST-MODIFIED:20241105T223052Z
UID:6943-1732528800-1732532400@canadianrdn.ca
SUMMARY:The Role of Genetic Counselors in Genomic Mainstreaming
DESCRIPTION:The Role of Genetic Counselors in Genomic Mainstreaming is an international panel discussion and interactive Q & A with Demetra Georgiou\, Genomic Transformation Manager at Imperial College Healthcare NHS Trust\, Jill Stopfer\, Associate Director of Genetic Counseling at the Dana Farber Cancer Institute\, and Laura Hercher\, Director of Student Research at Sarah Lawrence College Human Genetics Program\, hosted by Kira Dineen\, DNA Today’s Founder\, Producer\, and Host.
URL:https://canadianrdn.ca/event/the-role-of-genetic-counselors-in-genomic-mainstreaming/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241124T080000
DTEND;TZID=America/Halifax:20241125T170000
DTSTAMP:20260404T080009
CREATED:20241007T215427Z
LAST-MODIFIED:20241007T215427Z
UID:6046-1732435200-1732554000@canadianrdn.ca
SUMMARY:Genetic Rare Immune Disorders Symposium (GRIDS)
DESCRIPTION:GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
URL:https://canadianrdn.ca/event/genetic-rare-immune-disorders-symposium-grids/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/GRIDS-LOGO_800pxW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241121T190000
DTEND;TZID=America/Chicago:20241121T200000
DTSTAMP:20260404T080009
CREATED:20241118T224118Z
LAST-MODIFIED:20241118T224118Z
UID:7004-1732215600-1732219200@canadianrdn.ca
SUMMARY:National Advocacy Update
DESCRIPTION:Join Cystic Fibrosis Canada’s National Advocacy Update on Thursday\, November 21\, from 7-8 PM ET. This virtual event is open to volunteer advocates\, and anyone wanting to advocate for individuals living with cystic fibrosis.
URL:https://canadianrdn.ca/event/national-advocacy-update/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241121T160000
DTEND;TZID=Europe/Paris:20241121T170000
DTSTAMP:20260404T080009
CREATED:20241031T213608Z
LAST-MODIFIED:20241031T213608Z
UID:6888-1732204800-1732208400@canadianrdn.ca
SUMMARY:Muscle pathology of storage diseases with focus on plyglucosan and lipid storage myopathies
DESCRIPTION:Delivered by Prof. Anders Oldfors (University of Gothenburg\, Sweden) on November 21st 2024 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel.
URL:https://canadianrdn.ca/event/muscle-pathology-of-storage-diseases-with-focus-on-plyglucosan-and-lipid-storage-myopathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241120T170000
DTEND;TZID=Europe/Paris:20241120T180000
DTSTAMP:20260404T080009
CREATED:20241119T234913Z
LAST-MODIFIED:20241119T234913Z
UID:7016-1732122000-1732125600@canadianrdn.ca
SUMMARY:Webinar on ''mental health and behavioral difficulties in children with rare neonatal surgical disease''
DESCRIPTION:You are invited to join an insightful webinar hosted by ERNICA\, eUROGEN\, and EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical disease: assessment\, outcomes and implications for research\, policy and practice’. \nThis interactive session will raise awareness of the mental health and behavioral challenges faced by children with rare neonatal surgical conditions\,
URL:https://canadianrdn.ca/event/webinar-on-mental-health-and-behavioral-difficulties-in-children-with-rare-neonatal-surgical-disease/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241120T130000
DTEND;TZID=America/Chicago:20241120T140000
DTSTAMP:20260404T080009
CREATED:20241107T230330Z
LAST-MODIFIED:20241107T230330Z
UID:6970-1732107600-1732111200@canadianrdn.ca
SUMMARY:ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials.
URL:https://canadianrdn.ca/event/als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR