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BEGIN:VTIMEZONE
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BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
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DTSTART:20240331T010000
END:DAYLIGHT
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TZOFFSETTO:+0200
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DTSTART:20241027T010000
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TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20250330T010000
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TZOFFSETTO:+0200
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DTSTART:20251026T010000
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TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20260329T010000
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TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20261025T010000
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BEGIN:VTIMEZONE
TZID:America/Sao_Paulo
BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0300
TZNAME:-03
DTSTART:20240101T000000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250227T080000
DTEND;TZID=Europe/Paris:20250227T170000
DTSTAMP:20260404T043834
CREATED:20250130T024725Z
LAST-MODIFIED:20250130T024725Z
UID:7444-1740643200-1740675600@canadianrdn.ca
SUMMARY:From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
DESCRIPTION:Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
URL:https://canadianrdn.ca/event/from-grassroots-to-global-growing-momentum-towards-a-wha-resolution-on-rare-diseases/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/1737547764811-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250226T110000
DTEND;TZID=America/New_York:20250226T123000
DTSTAMP:20260404T043834
CREATED:20250207T040108Z
LAST-MODIFIED:20250207T040108Z
UID:7465-1740567600-1740573000@canadianrdn.ca
SUMMARY:The Undiagnosed Hackathon: Driving Diagnosis Through Global Collaboration
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-undiagnosed-hackathon-driving-diagnosis-through-global-collaboration/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260404T043834
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250222T160000
DTEND;TZID=America/New_York:20250222T170000
DTSTAMP:20260404T043834
CREATED:20250207T041158Z
LAST-MODIFIED:20250207T041158Z
UID:7474-1740240000-1740243600@canadianrdn.ca
SUMMARY:CAPA Webinar Physical Activity in Arthritis
DESCRIPTION:
URL:https://canadianrdn.ca/event/capa-webinar-physical-activity-in-arthritis/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/GjHp9taXIAAP9iQ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250220T160000
DTEND;TZID=UTC:20250220T170000
DTSTAMP:20260404T043834
CREATED:20250121T233934Z
LAST-MODIFIED:20250121T233934Z
UID:7388-1740067200-1740070800@canadianrdn.ca
SUMMARY:Electrodiagnostic Patterns in Immune-Mediated Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/electrodiagnostic-patterns-in-immune-mediated-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250217T080000
DTEND;TZID=Europe/Helsinki:20250218T170000
DTSTAMP:20260404T043834
CREATED:20241022T210809Z
LAST-MODIFIED:20241022T210809Z
UID:6189-1739779200-1739898000@canadianrdn.ca
SUMMARY:3rd European Congress of Neurology and Neuropsychiatry
DESCRIPTION:
URL:https://canadianrdn.ca/event/3rd-european-congress-of-neurology-and-neuropsychiatry/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/67109d162e2c9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250217T080000
DTEND;TZID=Europe/Paris:20250218T170000
DTSTAMP:20260404T043834
CREATED:20240903T211852Z
LAST-MODIFIED:20240903T211852Z
UID:5555-1739779200-1739898000@canadianrdn.ca
SUMMARY:17th International Conference on Neurology and Neuromuscular Disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/17th-international-conference-on-neurology-and-neuromuscular-disorders/
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250214T080000
DTEND;TZID=Europe/Helsinki:20250215T170000
DTSTAMP:20260404T043834
CREATED:20240731T210032Z
LAST-MODIFIED:20240731T210032Z
UID:4897-1739520000-1739638800@canadianrdn.ca
SUMMARY:PKU CON 2025
DESCRIPTION:PKU CON aims to bring together all stakeholders from around the globe currently involved in the management of patients affected by this inborn error of metabolism with an unique and same\, single goal: optimize the care and assistance for patients affected by Phenylketonuria. \nMany topics will be discussed during this first edition\, starting from a renewed vision of the pathology\, with possible identification of new biomarkers and metabolic control indices\, to updates in the field of dietary and pharmacological interventions\, and addressing relevant assistance-related issues such as burden of illness and unmet needs.
URL:https://canadianrdn.ca/event/pku-con-2025/
LOCATION:milan\, italy\, Milan\, Italy
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/pkucon25-banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250213T160000
DTEND;TZID=Europe/Paris:20250213T170000
DTSTAMP:20260404T043834
CREATED:20250121T233751Z
LAST-MODIFIED:20250121T233751Z
UID:7386-1739462400-1739466000@canadianrdn.ca
SUMMARY:Multifocal motor neuropathy (MMN): diagnosis\, treatment and update on biomarkers
DESCRIPTION:
URL:https://canadianrdn.ca/event/multifocal-motor-neuropathy-mmn-diagnosis-treatment-and-update-on-biomarkers/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250212T140000
DTEND;TZID=Europe/Paris:20250212T150000
DTSTAMP:20260404T043834
CREATED:20250109T232855Z
LAST-MODIFIED:20250109T232855Z
UID:7346-1739368800-1739372400@canadianrdn.ca
SUMMARY:Rare Disease Expertise\, Centers & Networks: Results of the Public Survey
DESCRIPTION:This is a Public Webinar presenting the results of RDI Survey on rare disease expertise\, care-providing centers and networks. This survey aimed to map the global landscape of rare disease expertise\, identifying centers\, networks\, and collaborations dedicated to improving care for people living with rare diseases. \nDuring the webinar\, they will share key findings and insights from the survey\, providing an overview of the current landscape in rare disease care across different regions and countries.
URL:https://canadianrdn.ca/event/rare-disease-expertise-centers-networks-results-of-the-public-survey/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20250207T080000
DTEND;TZID=America/Sao_Paulo:20250208T170000
DTSTAMP:20260404T043834
CREATED:20250111T002118Z
LAST-MODIFIED:20250111T002118Z
UID:7358-1738915200-1739034000@canadianrdn.ca
SUMMARY:Update on NMOSD and MOGAD' Meeting\, 7-8 Feb 2025
DESCRIPTION:The Update on NMOSD and MOGAD meeting\, organized by the European Charcot Foundation in partnership with the European Network of NMOSD and MOGAD\, will take place in São Paulo\, Brazil\, on February 7-8\, 2025.
URL:https://canadianrdn.ca/event/update-on-nmosd-and-mogad-meeting-7-8-feb-2025/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250206T160000
DTEND;TZID=Europe/Paris:20250206T170000
DTSTAMP:20260404T043834
CREATED:20250121T233518Z
LAST-MODIFIED:20250121T233518Z
UID:7383-1738857600-1738861200@canadianrdn.ca
SUMMARY:Diagnosis and Treatment of Nodopathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/diagnosis-and-treatment-of-nodopathies/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250206T080000
DTEND;TZID=UTC:20250208T170000
DTSTAMP:20260404T043834
CREATED:20240819T212945Z
LAST-MODIFIED:20240819T212945Z
UID:5197-1738828800-1739034000@canadianrdn.ca
SUMMARY:The 8th International TREAT-NMD Conference
DESCRIPTION:The next TREAT-NMD international conference will take place in Dubai\, United Arab Emirates from the 6th to 8th of February 2025.  It will be a fantastic event welcoming delegates from all over the world including academics\, patients and carers\, patient advocacy organisations\, clinical specialists and industry. Delegates will have the opportunity to: \n\nNetwork with partners on key issues and challenges in neuromuscular disease\nEngage with panels of international experts who will inform\, stimulate and challenge debate\nAcquire the latest updates on standards of care\, outcome measures\, patient reviews\, and new developments\n\nIt is a fantastic opportunity for all stakeholders\, including patients\, academics\, clinicians\, registry curators and industry representatives\, to get together to network\, learn and exchange ideas about translational research. \nRegistration is not yet open however to be the first to find out updates on the programme\, themes\, speakers for the conference and to be notified when registration opens\, register your interest here.
URL:https://canadianrdn.ca/event/the-8th-international-treat-nmd-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250205T173000
DTEND;TZID=America/New_York:20250205T190000
DTSTAMP:20260404T043834
CREATED:20250111T000414Z
LAST-MODIFIED:20250111T000414Z
UID:7355-1738776600-1738782000@canadianrdn.ca
SUMMARY:PxP 2025 Webinar Series. The patient perspective: Barriers and facilitators to patient partnership in research
DESCRIPTION:The webinar series is all about patient engagement in health research\, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying a new treatment or management program) can be a great way to help advance healthcare\, but the role would not generally include giving input into the research study itself.
URL:https://canadianrdn.ca/event/pxp-2025-webinar-series-the-patient-perspective-barriers-and-facilitators-to-patient-partnership-in-research/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250204T190000
DTEND;TZID=America/New_York:20250204T200000
DTSTAMP:20260404T043834
CREATED:20250130T024529Z
LAST-MODIFIED:20250130T024529Z
UID:7441-1738695600-1738699200@canadianrdn.ca
SUMMARY:Neuromuscular Mystery Case Rounds
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians\, academics\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/neuromuscular-mystery-case-rounds/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250130T183000
DTEND;TZID=America/New_York:20250130T193000
DTSTAMP:20260404T043834
CREATED:20250107T230827Z
LAST-MODIFIED:20250107T230827Z
UID:7326-1738261800-1738265400@canadianrdn.ca
SUMMARY:Research Grant Announcement 2024
DESCRIPTION:
URL:https://canadianrdn.ca/event/research-grant-announcement-2024/
CATEGORIES:Events,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250130T160000
DTEND;TZID=Europe/Paris:20250130T170000
DTSTAMP:20260404T043834
CREATED:20250121T232927Z
LAST-MODIFIED:20250121T232927Z
UID:7380-1738252800-1738256400@canadianrdn.ca
SUMMARY:Update on Guillain-Barré Syndrome Guidelines
DESCRIPTION:
URL:https://canadianrdn.ca/event/update-on-guillain-barre-syndrome-guidelines/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250129T110000
DTEND;TZID=America/New_York:20250129T120000
DTSTAMP:20260404T043834
CREATED:20250107T230522Z
LAST-MODIFIED:20250107T230522Z
UID:7323-1738148400-1738152000@canadianrdn.ca
SUMMARY:Building Bridges: Essential Supports for Children with Disabilities and Their Families in Schools\, Healthcare\, and Community
DESCRIPTION:What do children with disabilities and their families need to thrive? A team of researchers\, mothers\, and children and youth with disabilities set out to answer this question by exploring their experiences during the COVID-19 pandemic and beyond. Their mission? To uncover what supports and services — spanning healthcare\, education\, and community life — families need now and in the future.
URL:https://canadianrdn.ca/event/building-bridges-essential-supports-for-children-with-disabilities-and-their-families-in-schools-healthcare-and-community/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/1735920103362.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250129T080000
DTEND;TZID=UTC:20250130T170000
DTSTAMP:20260404T043834
CREATED:20241112T225050Z
LAST-MODIFIED:20241112T225050Z
UID:6979-1738137600-1738256400@canadianrdn.ca
SUMMARY:The Festival of Genomics & Biodata London
DESCRIPTION:The UK’s largest life sciences event is back! \nNow celebrating its 10th year\, the Festival has long been the annual get-together for the UK genomics community. And with more speakers and sessions than ever before\, the 2025 edition is bigger and better than ever! \nAs the genomics sector has expanded\, so has its impact. The Festival now covers a diverse array of topics beyond genomics\, including biodata\, diagnostics\, cancer research\, healthcare\, drug discovery and development\, infectious diseases\, AI\, proteomics\, multi-omics\, single-cell & spatial analysis and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-london/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250128T080000
DTEND;TZID=America/Chicago:20250128T090000
DTSTAMP:20260404T043834
CREATED:20240830T232123Z
LAST-MODIFIED:20240830T232123Z
UID:5541-1738051200-1738054800@canadianrdn.ca
SUMMARY:ERKNet Webinar: "Streptococcus pneumoniae-HUS" by Nicole vande Kar
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-webinar-streptococcus-pneumoniae-hus-by-nicole-vande-kar/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250123T160000
DTEND;TZID=Europe/Paris:20250123T170000
DTSTAMP:20260404T043834
CREATED:20250121T232634Z
LAST-MODIFIED:20250121T232634Z
UID:7377-1737648000-1737651600@canadianrdn.ca
SUMMARY:Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
DESCRIPTION:Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam\, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies\, France)\, January 23rd 2025 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel
URL:https://canadianrdn.ca/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250123T120000
DTEND;TZID=America/New_York:20250123T130000
DTSTAMP:20260404T043834
CREATED:20241218T230447Z
LAST-MODIFIED:20241218T230447Z
UID:7277-1737633600-1737637200@canadianrdn.ca
SUMMARY:Webinar - Securing Funding for Clinical Trials
DESCRIPTION:Webinar objectives: \n\n\nIdentify various funding strategies for pediatric and perinatal clinical trials in Canada\, including academic grants and industry partnerships. \n\n\nDevelop realistic expectations regarding the timeline and effort required to fund clinical trials through shared examples. \n\n\nUnderstand different strategies when approaching industry and academic funders and identify key factors for successful proposals.
URL:https://canadianrdn.ca/event/webinar-securing-funding-for-clinical-trials/
CATEGORIES:Clinical Trials,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250121T080000
DTEND;TZID=Europe/Paris:20250124T170000
DTSTAMP:20260404T043834
CREATED:20250109T233514Z
LAST-MODIFIED:20250109T233514Z
UID:7352-1737446400-1737738000@canadianrdn.ca
SUMMARY:2025 International Scientific Conference on Albinism
DESCRIPTION:The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025\, that will be held virtually on January 21-24\, 2025. \nISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism and\, more generally\, improving the health of those with albinism. It builds on the momentum created in 2012 with the launch of the EDA (European Days of Albinism) conference series that evolved into ISCA in 2022.
URL:https://canadianrdn.ca/event/2025-international-scientific-conference-on-albinism/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250116T120000
DTEND;TZID=UTC:20250116T180000
DTSTAMP:20260404T043834
CREATED:20241017T212933Z
LAST-MODIFIED:20241017T212933Z
UID:6096-1737028800-1737050400@canadianrdn.ca
SUMMARY:TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
DESCRIPTION:Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025\, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways\, standards of care\, and emerging therapies\, while engaging with experts\, patients\, and peers to enhance DM1 care.
URL:https://canadianrdn.ca/event/treat-nmd-myotonic-dystrophy-type-1-dm1-expert-masterclass/
CATEGORIES:Healthcare,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/NMD.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T120000
DTEND;TZID=America/New_York:20250116T130000
DTSTAMP:20260404T043834
CREATED:20241217T235100Z
LAST-MODIFIED:20241217T235100Z
UID:7271-1737028800-1737032400@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
DESCRIPTION:Learning Objectives: \n\nReview the ways in which patients can contribute as partners on your CHIR grant application\nIdentify the challenges and barriers to patients in fulfilling grant application requirements and how researchers can support patient partners\nDescribe the considerations specific to grant application requirements for researchers working with patient partners from groups who are frequently under-served by health research
URL:https://canadianrdn.ca/event/act-canada-webinar-series-engaging-patient-partners-in-your-cihr-grant-application-everything-you-ever-wanted-to-know-with-maureen-smith-andrea-chow-ontario/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250115T120000
DTEND;TZID=America/New_York:20250115T123000
DTSTAMP:20260404T043834
CREATED:20250109T233230Z
LAST-MODIFIED:20250109T233230Z
UID:7349-1736942400-1736944200@canadianrdn.ca
SUMMARY:Webinar-Genetic Carriers of PKU-Possible Health and Metabolic Implications?
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-genetic-carriers-of-pku-possible-health-and-metabolic-implications/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250114T180000
DTEND;TZID=America/New_York:20250114T190000
DTSTAMP:20260404T043834
CREATED:20241228T053546Z
LAST-MODIFIED:20241228T053546Z
UID:7291-1736877600-1736881200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target
DESCRIPTION:NMD4C and MDC are pleased to invite you to a webinar on Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges\, opportunities and consideration of a possible cholesterol metabolism-related target. NMD4C and MDC are providing organizational and technical support. This is a an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-exploring-the-clinical-trial-landscape-in-duchenne-muscular-dystrophy-challenges-opportunities-and-consideration-of-a-possible-cholesterol-metabolism-related-target/
CATEGORIES:Clinical Trials,Healthcare,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1735063069640.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250114T140000
DTEND;TZID=Europe/Paris:20250114T160000
DTSTAMP:20260404T043834
CREATED:20250107T232714Z
LAST-MODIFIED:20250107T232714Z
UID:7332-1736863200-1736870400@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Extended Information Webinar
DESCRIPTION:The European Rare Diseases Research Alliance (ERDERA) invites you to the Joint Transnational Call (JTC) 2025 Extended Information Webinar. \nObjectives of this webinar: \nThe webinar scheduled for January 14th aims to provide educational and preparatory support to applicants at the pre-proposal stage\, focusing on key elements that enhance the quality of their submissions. The objectives include: \nInform applicants about lessons learned about the evaluation. \nGuide applicants with key translational\, regulatory\, data managing\, and methodological considerations for drafting strong pre-proposals. \nAddress your questions through dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-extended-information-webinar/
CATEGORIES:International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250114T080000
DTEND;TZID=America/Chicago:20250114T090000
DTSTAMP:20260404T043834
CREATED:20240830T232011Z
LAST-MODIFIED:20240830T232011Z
UID:5539-1736841600-1736845200@canadianrdn.ca
SUMMARY:ERKNet/ESPN Webinar: "Non-cystinosis Fanconi Syndrome" by Elena Levtchenko
DESCRIPTION:
URL:https://canadianrdn.ca/event/erknet-espn-webinar-non-cystinosis-fanconi-syndrome-by-elena-levtchenko/
CATEGORIES:Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241219T113000
DTEND;TZID=Europe/Paris:20241219T130000
DTSTAMP:20260404T043834
CREATED:20241203T024038Z
LAST-MODIFIED:20241203T024038Z
UID:7116-1734607800-1734613200@canadianrdn.ca
SUMMARY:Webinar: How do rare conditions impact family and social relationships
DESCRIPTION:This webinar will explore how rare conditions shape and inform social and family relationships\, drawing from the lived experience of affected individuals\, caregivers and parents\, and siblings. The outcome of the webinar will be a factsheet to help increase awareness about the impact of rare conditions on both social and family relationships\, and how to support these.
URL:https://canadianrdn.ca/event/webinar-how-do-rare-conditions-impact-family-and-social-relationships/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR