RQMO: 4th Zebinary of the Month of Zebra 2026
2026-02-11 10:00 - 12:00 (America/Edmonton)
Speaker: – Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval

RQMO: 5th Zebinary of the Month of Zebra 2026
2026-02-16 10:00 - 12:00 (America/Edmonton)
Speakers: – Christine Yergeau, Msc, RARE Network Manager. QC
– Lilit Antonyan, Research Pillars Coordinator at RARe.qc

Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
2026-02-17 17:00 - 18:30 (America/Edmonton)
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories, trusted information, and meaningful connection, RareTalks offers support for every stage of the journey, from first symptoms to long-term care.

RQMO: 6th Zebinary of the Month of Zebra 2026
2026-02-19 10:00 - 12:00 (America/Edmonton)
Speaker: – Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais

Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
2026-02-19 13:00 - 14:30 (America/Edmonton)
HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional, national, and local action within HTA. This event is the inaugural webinar in a year-long webinar series, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.

Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
2026-02-24 09:00 - 16:00 (Europe/Brussels)
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and priorities on the rare brain disease research, care, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies to advance the RBD Ecosystem and develop a comprehensive Knowledge Hub.

RQMO: 7th Zebinary of the Month of Zebra 2026
2026-02-24 10:00 - 12:00 (America/Edmonton)
Speakers: – Kim Auclair, consultant, speaker and blogger
– Elsie Côté, Founder and President of Sirote-moi

PhenoTips: Matchmaking for Rare Disease Diagnosis
2026-02-25 10:00 - 11:00 (America/Edmonton)
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.

RQMO: Last Zebinary of the Month of Zebra 2026
2026-02-26 10:00 - 12:00 (America/Edmonton)
Speaker: – François Bernier, entrepreneur, strategist, co-founder of Horizon b2b

CORD Rare Disease Day 2026 Webinar
2026-02-27 10:00 - 11:00 (America/Edmonton)
ACCELERATED ACCESS TODAY, DEMONSTRATING VALUE FOR 2026 AND BEYOND
This Rare Disease Day, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.

Massey College: Rare Disease Day
2026-02-27 12:00 - 13:30 (America/Toronto)
This Rare Disease Day, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize.
Lindy Forte, Mai K., Catherine Stratton, MPH, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together, they’ll explore how we can move beyond viewing rare diseases as isolated diagnoses and instead recognize them as part of one heterogeneous community united by shared experiences. The discussion will also highlight some of the most pressing challenges in the rare disease space today.

RQMO 2026 International Rare Disease Day
2026-02-28 10:00 - 16:00 (America/Toronto)
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, meaning that it will be possible to attend in person or virtually.

EP PerMed Hackathon
2026-03-03 08:00 - 2026-03-04 17:00 (America/Guadeloupe)
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and visionaries to shape the future of healthcare.

Stem Cell Network: Clinical Translation in Cell and Gene Therapy
2026-03-04 11:00 - 12:30 (America/Edmonton)
Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation, offering trainees, early-career investigators, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.

McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
2026-03-06 09:00 - 16:00 (America/Toronto)
Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research, systems, and policy.
The session will share practical approaches, real-world case examples, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact and address common challenges.

Rare Kidney Disease Foundation: 5th International ADTKD Summit
2026-03-06 10:00 - 2026-03-07 13:00 (America/Toronto)
The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit – A Time For Action Friday, March 6, 10AM – 1:00PM EST – Science Program Saturday, March 7, 10AM – 1:00PM EST – Patient Program

RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
2026-03-11 13:00 - 14:00 (America/Toronto)
Are you a rare disease methodologist, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11.
Learn what expert elicitation is, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.

CAN-Child: F-words Foundations Workshop
2026-03-12 10:00 - 13:00 (America/Edmonton)
Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!

Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
2026-03-17 08:00 - 09:00 (America/Edmonton)
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Rare Disease Summit: Access USA
2026-03-17 08:00 - 2026-03-19 17:00 (America/Edmonton)
The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning, market access, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.

Rare Diseases International-Global Perspectives on Rare Disease Centers: What We Learned from Case Studies
2026-03-18 07:00 - 08:00 (America/Edmonton)
Join RDI for a public webinar exploring how rare disease centers are organized and how they function in practice across different countries and health system contexts. Rare disease centers play a critical role in improving diagnosis, care coordination, research, and access to treatment for people living with rare diseases. Yet, their structures, levels of recognition, funding models, and integration into national and international networks vary widely. To better understand this diversity, Rare Diseases International (RDI) conducted a series of qualitative case studies of selected rare disease centers worldwide. This public webinar will present key insights from the case studies. Through a panel discussion with representatives from participating centers, the session will reflect on shared enablers and barriers and highlight practical lessons learned.

MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
2026-03-18 08:00 - 2026-03-19 17:00 (Europe/Rome)
Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO), the Barcelona Supercomputing Center (BSC), and the Institute of Research in Biomedicine (IRB), this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence, computational chemistry, and small-molecule drug discovery.

RAREDIG McGill: Rare Disease Day 2026
2026-03-18 16:30 - 19:30 (America/Toronto)
McGill’s RareDIG is excited to welcome you to the eighth edition of Rare Disease Day! Millions of individuals are affected by rare diseases worldwide and Rare Disease Day is hosted in support of these patients and family members.

Students, researchers, physicians, patients, and community members will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th to discuss the challenges faced by people with rare diseases, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field.

CIHR Café Scientifique: Chronic Pain and Primary Care
2026-03-18 18:00 - 19:00 (America/Edmonton)
Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST
Together you’ll explore what chronic pain looks like for young people and their families, how pain can occur across generations, and why quality care in our communities matters.

People's Perspectives: Living with Loeys-Dietz Syndrome
2026-03-19 19:00 - 20:00 (America/Toronto)
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion.

4th Annual Scientific Symposium on SPG4
2026-03-25 08:00 - 2026-03-27 17:00 (America/Toronto)
The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists, clinicians, industry innovators, patient advocates, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment, the symposium will feature experts from across the U.S. and abroad, offering a rare opportunity to share knowledge, align priorities, and drive progress.

PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
2026-03-25 10:00 - 11:00 (America/Edmonton)
Save the date on *March 25th 2026* for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.

Gene Therapy for IEI: It's Taken Us So Long 'Cause We've Got So Far To Come
2026-03-25 10:00 - 12:00 (America/Edmonton)
Moderated by Dr. Jordan Orange, this important conversation will explore the progress, promise, and future of gene therapy for Inborn Errors of Immunity.

RARE.Qc's Scientific Day and Annual General Meeting
2026-03-27 08:00 - 17:00 (America/Toronto)
The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal, and will also be offered in a virtual format.

CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
2026-04-07 15:00 - 17:00 (America/Edmonton)
NMD4C, MDC, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians, academics and trainees with an interest in neuromuscular diseases.
